Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for July 2023

Conflicting information

Would appreciate any thoughts/advice please. Approx 10wks ago I developed some aches & pains in arms and legs followed by a really bad cold that lasted a week...

Would appreciate any thoughts/advice please. Approx 10wks ago I developed some ...

Kendrew

•1 year ago

33 Replies

Prednisone and hair coloring

My stylist is blaming the prednisone after a disastrous hair coloring episode…going from grey to my usual blonde tone and it turned bright orange….really...

My stylist is blaming the prednisone after a disastrous hair coloring episode…go...

Spartans1

•1 year ago

43 Replies

omeprazole

does anyone else get a fuzzy head soon after taking omeprazole? I initially thought it was a reaction to my steroids but having tried taking them in the night...

does anyone else get a fuzzy head soon after taking omeprazole? I initially tho...

Meggs01

•1 year ago

16 Replies

Want to take advantage of all our features? Just log in!

tapering….again

I am down to 1mg per day; each taper has resulted in few days for my adrenals to catch up but this time (from 1.5mg) is proving much more difficult. How long...

I am down to 1mg per day; each taper has resulted in few days for my adrenals to...

Calliope22

•1 year ago

6 Replies

Cortisol levels and anti anxiety medication

After 3 1/2 years with PMR I am down to 2 mg pred! I have just been reading your posts this morning about adrenal insufficiency and lethargy etc. I would be...

After 3 1/2 years with PMR I am down to 2 mg pred! I have just been reading your...

Bubble56

•1 year ago

15 Replies

still no answers

I wrote in a week or so ago about rib pain and protruding left rib cage. Since then I've been to see a private rhematologist, then the practice nurse at my...

I wrote in a week or so ago about rib pain and protruding left rib cage. Since ...

Bennijax

•1 year ago

23 Replies

Cortisol

Hello, I took an 8AM blood test to determine how my adrenal gland was working, the result not very well. Your value...

Hello, I took an 8AM blood test to determine how my adrenal gland was working,...

Southmead

•1 year ago

28 Replies

Hi there 👋

Always looking for tips in dealing with PMR, prednisone, side effects of steroids, tapering, lifestyle adjustments and interpersonal relations. And sometimes...

Always looking for tips in dealing with PMR, prednisone, side effects of steroid...

Satya70

•1 year ago

3 Replies

omeprazole

I’ve been given omeprazole to take to protect my stomach while taking steroids. I was given them when I was taking strong anti inflammatory pills before they...

I’ve been given omeprazole to take to protect my stomach while taking steroids. ...

Nanatoo

•1 year ago

16 Replies

thank you

Thank you to everyone for their support and responses. I feel now I am making the right choice to stay on steroids as my improvement has been so positive. I am...

Thank you to everyone for their support and responses. I feel now I am making th...

Nanatoo

•1 year ago

8 Replies

Asking for a friend

I hope that no-one minds this post but I have a friend who is suffering a lot, and some of his symptoms cross-over with mine although there is no suggestion...

I hope that no-one minds this post but I have a friend who is suffering a lot, a...

marionofnorwich

•1 year ago

8 Replies

Can you believe it?

I've just been rung up and told I should be carrying a steroid card!!! I've only been diagnosed with GCA almost eleven years ago. Thanks to the Charity I have...

I've just been rung up and told I should be carrying a steroid card!!! I've only...

prunus

•1 year ago

29 Replies

timing of taking prednisolone

the best time to take prednisolone when down to 4.5 mg

Buster1610

•1 year ago

9 Replies

Prednisone increase what is best time

Diagnosed with PMR in Dec 2020. Started 30mg Prednisone and with help of supplements came down to 2.5mg (not completely pain free) but was managing until...

Diagnosed with PMR in Dec 2020. Started 30mg Prednisone and with help of supplem...

Anic

•1 year ago

10 Replies

Hip replacement

Hello I think I have to have a hip replacement. I find it hard with polymyalgia to move my legs without stiffness even with the steroids. So I'm wondering if...

Hello I think I have to have a hip replacement. I find it hard with polymyalgia ...

Hidden

•1 year ago

29 Replies

Is this my PMR?

Hello all, I am a male 60yrs of age and was diagnosed with PMR on Xmas day 2020. I have never got below 5mgs and have just reduced to 6mgs.Around last Oct/Nov...

Hello all, I am a male 60yrs of age and was diagnosed with PMR on Xmas day 2020....

Achyjoints

•1 year ago

7 Replies

PMR Cured?

After 9 years and 11 months I have finally weaned myself off Prednisone. I started at 20mg per day for PMR and used the slow reduction method to reduce the...

After 9 years and 11 months I have finally weaned myself off Prednisone. I star...

Whytee

•1 year ago

7 Replies

dogs don’t like Predisolone!

How stupid can I be? Down happily to O.75mgs in 2 years 2 months and quartering the 1mg. Today I accidentally dropped the quarter. It landed in the bag of...

How stupid can I be? Down happily to O.75mgs in 2 years 2 months and quartering...

Gossiplady

•1 year ago

22 Replies

Painkillers.

Hi everyone, it's been a while since I was on here. I have whittled myself down to 3pg pred.and have been going along ok. I do however have a question and...

Hi everyone, it's been a while since I was on here. I have whittled myself down ...

Dukeyears

•1 year ago

15 Replies

A good day at last - enjoy while you can

"O frabjous day! Callooh! Callay! My PMR has gone away! I can work and I can play!" "Oh, has it gone away to stay?" "Alas, good friends, the answer's...

"O frabjous day! Callooh! Callay! My PMR has gone away! I can work and I can p...

papadapadoo

•1 year ago

5 Replies

speech problems

I am having some speech slowness and articulation problems. I am 55 and have had PMR for three years I have an excellent GP and I am on 4mg predsat moment...

I am having some speech slowness and articulation problems. I am 55 and have ha...

Lemon1967

•1 year ago

13 Replies

confused

I had my second appointment with the rheumatologist and left feeling confused. I’ve been taking 20mg prednisolone for two weeks and the improvement has been...

I had my second appointment with the rheumatologist and left feeling confused. I...

Nanatoo

•1 year ago

14 Replies

Update on progress

Saw Dr ❤️ following the ECHO who said it were no surprises and as I had found AF myself not significant. As I am now anticoagulated he didn’t want to see me...

Saw Dr ❤️ following the ECHO who said it were no surprises and as I had found A...

EdithWales

•1 year ago

26 Replies

Early tapering advice/suggestions needed

Diagnosed very recently with PMR - was on 15mg for 21 days and then 20mg for a further 29 days as there was still aching/pain/stifness - which was then much...

Diagnosed very recently with PMR - was on 15mg for 21 days and then 20mg for a f...

44blue

•1 year ago

13 Replies

Hello

Hi everyone, hope you are all as well as can be. No point to this post really. I was awake for hours and hours in the night and I felt quite isolated. I’ve...

Hi everyone, hope you are all as well as can be. No point to this post really. ...

Bramble2000

•1 year ago

59 Replies

Colds

Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years

Have another really bad cough and cold (not COVID) - is this related to the immu...

Daffodilia

•1 year ago

10 Replies

Reducing pred and flares

I was diagnosed with PMR in March 2020 just as lockdown started, having been in pain and struggling to walk for months, I had severe groin and buttock pain on...

I was diagnosed with PMR in March 2020 just as lockdown started, having been in ...

Ramsgate

•1 year ago

9 Replies

Upper arm pain ,one arm .

I have tapered over 2yrs to 1 1/2mg daily Pred. In the last week I have really bad muscle pain in my left upper arm. I am right handed. I can't lift my arm...

I have tapered over 2yrs to 1 1/2mg daily Pred. In the last week I have really ...

Posey1

•1 year ago

9 Replies

cool packs

I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as...

I thought I’d share the fact that I have found great relief from the pain in my ...

Garden__lover

•1 year ago

2 Replies

Hydrocortisone versus Prednisone

My wife was diagnosed with addison's disease, she started using predsinose up to 7.5mg daily and 0. 2mg of fludrocortisone, after starting the treatment she...

My wife was diagnosed with addison's disease, she started using predsinose up to...

vaderdev68

•1 year ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Conflicting information

Prednisone and hair coloring

omeprazole

tapering….again

Cortisol levels and anti anxiety medication

still no answers

Cortisol

Hi there 👋

omeprazole

thank you

Asking for a friend

Can you believe it?

timing of taking prednisolone

Prednisone increase what is best time

Hip replacement

Is this my PMR?

PMR Cured?

dogs don’t like Predisolone!

Painkillers.

A good day at last - enjoy while you can

speech problems

confused

Update on progress

Early tapering advice/suggestions needed

Hello

Colds

Reducing pred and flares

Upper arm pain ,one arm .

cool packs

Hydrocortisone versus Prednisone

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive