Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for July 2023

Reducing post op.

Had managed to get down to 1mg. Last Saturday l was hanging the washing out when l stupidly tripped over the clothes prop. Crashed to the ground, couldn't get...

Had managed to get down to 1mg. Last Saturday l was hanging the washing out when...

SilverCruiser

•1 year ago

10 Replies

Just don't know what to do with myself

Was supposed to see the rheumatologist a month after first appointment but now it will be 14 weeks and a rheumatology nurse cannot phone me back for 6 weeks so...

Was supposed to see the rheumatologist a month after first appointment but now i...

Body_bonkers

•1 year ago

16 Replies

2mg and fatigue and nausea

hello again all but can anyone give me advice on what I’m suffering is normal. I’m sitting at 2mg now and it’s 5weeks since I started the reduction. I take my...

hello again all but can anyone give me advice on what I’m suffering is normal. I...

Maggie1313

•1 year ago

18 Replies

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Hair loss

I have wrote this several times but never able to find any replies My hair is so thin and looks like a Brillo pad is this the steroids

I have wrote this several times but never able to find any replies My hair is ...

Harry8388

•1 year ago

31 Replies

can I colour my hair when on steroids

has anyone had trouble with hair colouring when taking steroids

Nanatoo

•1 year ago

9 Replies

Synacthen test

I’ve received notification from the Consultant Rheumatologist that “it shows a slightly suboptimal response with a post synacthen level of 432. Normally the...

I’ve received notification from the Consultant Rheumatologist that “it shows a s...

AnniesRyder5

•1 year ago

11 Replies

Excessive sweating

I'm noticing that I sweat alot more than ever since I started on prednisone. Sometimes even wsje ip in a sweat. Your other advice was spot on a b out keeping...

I'm noticing that I sweat alot more than ever since I started on prednisone. So...

Seal49

•1 year ago

4 Replies

achille’s tendons anyone?

I was doing great on 5 mgs prednisone and feeling like my old self. Frankly thought I was on my way to remission. Went to 2.5 mg. Okay for a couple days then...

I was doing great on 5 mgs prednisone and feeling like my old self. Frankly thou...

Lydia08

•1 year ago

31 Replies

GCA/muzziness

Now 7 months in. Can anyone please tell me if this heady feeling is just going to last through the whole of this process? It just feels like my head is too...

Now 7 months in. Can anyone please tell me if this heady feeling is just going t...

lennysmummy

•1 year ago

42 Replies

Food Facts that Tim Spector has changed his mind on ... (not sure what took him so long)

It's a bit of advertising for his new book and he and Chattergee have a bit of a luv-in but 95% of it is excellent. I sat and shouted at him when he got to...

It's a bit of advertising for his new book and he and Chattergee have a bit of a...

PMRpro

Ambassador•1 year ago

129 Replies

It's not the adrenals it’s AF!

I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at...

I kept thinking it was because of my tapering: I was short of breath, felt “che...

Karenjaninaz

•1 year ago

21 Replies

Painkillers with Prednisolone

I have some slight hip and shoulder pains that may or may not be caused by PMR, I am not sure how I can tell? I have just got back down to 8mg of...

I have some slight hip and shoulder pains that may or may not be caused by PMR, ...

Golf-1

•1 year ago

6 Replies

Prednisolone and Omeprazole

I have had PMR and GCA for 7 Years and was told I had to take 10 mg daily of Omeprazole which I have been on for the 7 Years. I am now on 3mg steroids but...

I have had PMR and GCA for 7 Years and was told I had to take 10 mg daily of Om...

Sorop

•1 year ago

19 Replies

Synacthen Test looming in a moment...quick query

Morning all, I've been missing this forum due to events taking a turn for the worst. I'm at the lowest ever dose 5mg pred. Not been feeling well since January,...

Morning all, I've been missing this forum due to events taking a turn for the wo...

Artnmusiclover

•1 year ago

20 Replies

Follow up to my “what does GCA feel like”…….

Hi everyone, as usual, I’m awake! I asked the other day if people could describe their GCA. Reason being, I was lying down the other day trying to have a...

Hi everyone, as usual, I’m awake! I asked the other day if people could descri...

Bramble2000

•1 year ago

9 Replies

How long did it take for your ACTH to come back?

Hi everyone, Hope your all safe and well. So i am currently taking 15mg of hydrocortisone a day. I was diagnosed with secondary adrenal insufficiency after i...

Hi everyone, Hope your all safe and well. So i am currently taking 15mg of hydr...

Saffron2022

•1 year ago

15 Replies

Why do my symptoms feel like Multiple Sclerosis when I taper?

Hi Everyone, I have had to go backwards from 2 years of tapering. I am now at 12 1/4 mg Prednisone today. At times during the day, when I can feel the...

Hi Everyone, I have had to go backwards from 2 years of tapering. I am now at 1...

lisbonportugal

•1 year ago

10 Replies

Understanding DL's Slow Taper Plan

Good evening lovely people. I think I'm being a bit thick! I've been on 4mgs for 6 weeks and was going to go to 3.5 mgs for 6 weeks. And then 3.0 etc and so...

Good evening lovely people. I think I'm being a bit thick! I've been on 4mgs for...

Tabletennis123

•1 year ago

7 Replies

How long to take Actemra?

I've had PMR & GCA for a year. I've been on Actemra for almost a year. I was tapering steroids pretty well, but had a flare that lasted 2-3 months so I'm back...

I've had PMR & GCA for a year. I've been on Actemra for almost a year. I was tap...

potterylady

•1 year ago

40 Replies

Jakey2020

I have RA and on methotrexate but am getting bad side effects.. mouth ulcers nausea fatigue.. rheumatology said to take the folic acid every day apart from...

I have RA and on methotrexate but am getting bad side effects.. mouth ulcers nau...

Jakey2020

•1 year ago

9 Replies

Is methotrexate better than continuing with tapering of steroids?

Hello everyone - this is my first post so I am hoping someone will be able to give me some advice. I am currently on5mg of Prednisolone, having started on 15mg...

Hello everyone - this is my first post so I am hoping someone will be able to gi...

Di1863

•1 year ago

29 Replies

puffy eyes

hi, I have recently had 2 cataract ops and since not wearing my glasses so much I have noticed my eyes look puffy and swollen. Does abybody have any thoughts...

hi, I have recently had 2 cataract ops and since not wearing my glasses so much ...

Koalajane

•1 year ago

18 Replies

PMR: The importance of moving on, keeping active

Hi there, A research project is in progress re PMR and the importance moving on and keeping active. Please send me an email s.eng@keele.ac.uk to contribute...

Hi there, A research project is in progress re PMR and the importance moving ...

NobleGoodHero

•1 year ago

2 Replies

NHS shingles vaccine will be offered to almost one million more people

I’m not sure whether this has been mentioned already (I did check) but as I just found this recently elsewhere thought it might be of interest to those of us...

I’m not sure whether this has been mentioned already (I did check) but as I just...

Floridafan

•1 year ago

11 Replies

Platelet blood work

Hi, Dr initially diagnosed me with PMR (47 yr old). After being on 30 mg prednisone for 13 weeks almost and not a lot of improvement he is now exploring other...

Hi, Dr initially diagnosed me with PMR (47 yr old). After being on 30 mg prednis...

Monkey321

•1 year ago

2 Replies

Uncomfortable day time body sweats

First aware of the start of PMR in Autumn 2020, but with Covid restrictions and NHS delays, not officially diagnosed until summer 2021. Did not start on Pred...

First aware of the start of PMR in Autumn 2020, but with Covid restrictions and...

LeonardCohen

•1 year ago

16 Replies

some advice

swelling in the collarbone I have some swelling in my collarbone which could be linked to rheumatoid arthritis . Is there a link between PMR and rheumatoid...

swelling in the collarbone I have some swelling in my collarbone which could b...

Stanca

•1 year ago

9 Replies

omprezole. Can I stop?

Started PMR in April 2021. Given 15 mgs Predisolone and Omprezole of 20mgs. Now down to 0.75mgs and feeling fine. Taking the marathon very slowly, but as I...

Started PMR in April 2021. Given 15 mgs Predisolone and Omprezole of 20mgs. No...

Gossiplady

•1 year ago

15 Replies

Can anyone describe….

Hi, can anyone describe what a GCA headache feels like and also scalp plain please? Thanks

Hi, can anyone describe what a GCA headache feels like and also scalp plain plea...

Bramble2000

•1 year ago

33 Replies

Exercise: you really don't have to do very much

I posted some time ago about my left leg starting to give way and starting to fix it by walking. This is what actually fixed it. I figured I wasn’t being...

I posted some time ago about my left leg starting to give way and starting to fi...

Mayadill

•1 year ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Reducing post op.

Just don't know what to do with myself

2mg and fatigue and nausea

Hair loss

can I colour my hair when on steroids

Synacthen test

Excessive sweating

achille’s tendons anyone?

GCA/muzziness

Food Facts that Tim Spector has changed his mind on ... (not sure what took him so long)

It's not the adrenals it’s AF!

Painkillers with Prednisolone

Prednisolone and Omeprazole

Synacthen Test looming in a moment...quick query

Follow up to my “what does GCA feel like”…….

How long did it take for your ACTH to come back?

Why do my symptoms feel like Multiple Sclerosis when I taper?

Understanding DL's Slow Taper Plan

How long to take Actemra?

Jakey2020

Is methotrexate better than continuing with tapering of steroids?

puffy eyes

PMR: The importance of moving on, keeping active

NHS shingles vaccine will be offered to almost one million more people

Platelet blood work

Uncomfortable day time body sweats

some advice

omprezole. Can I stop?

Can anyone describe….

Exercise: you really don't have to do very much

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