Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for July 2023

Well I didn't know that

According to a post by Dr. Karthikeya T M, MD Internal Medicine on Microsoft Start Health, PMR is caused by "hereditary and environmental conditions" -...

According to a post by Dr. Karthikeya T M, MD Internal Medicine on Microsoft Sta...

Flivoless

•1 year ago

13 Replies

Another option for research - have you had a PET scan?

https://healthunlocked.com/vasculitis-uk/posts/149788129/for-members-with-gca-and-or-pmr-survey-request-from-a-researcher.?utm_source=notification&utm_medium=em

https://healthunlocked.com/vasculitis-uk/posts/149788129/for-members-with-gca-an...

PMRpro

Ambassador•1 year ago

3 Replies

Pmr and heart attack

Hi thereI'm writing for my husband. He had pmr for about 18 months diagnosed after a bout of covid. He did really well with the steroids, they worked to manage...

Hi thereI'm writing for my husband. He had pmr for about 18 months diagnosed aft...

Trappybird

•1 year ago

7 Replies

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Burning Pains

Is burning sensation/pain normal with PMR?

WaltzG

•1 year ago

13 Replies

UTI infection

I have a UTI infection and so far two antibiotics have not worked, and I am allergic to most other kinds. I assume this shows how my immune system is not...

I have a UTI infection and so far two antibiotics have not worked, and I am alle...

Paulagcl

•1 year ago

5 Replies

have I really got PMR?

hello all I haven’t posted on here for a while but keep having a look in at what’s occurring with you all. I was diagnosed (over the phone) at the start of...

hello all I haven’t posted on here for a while but keep having a look in at wha...

Doraflora

•1 year ago

18 Replies

to sleep perchance to dream !? too much is OTT

Hi all, I think I am now entering tiger country, I am now down to 5mg of my Preds and swimming against the tide to 4.5mg but am now having a big -...

Hi all, I think I am now entering tiger country, I am now down to 5mg of my ...

seamaid

•1 year ago

11 Replies

Considering whether the AFib is from asthma inhaler.

With PMR we have other comorbidities. As I tapered My pred from 8 to 7 3/4 I noticed increased palpitations …? Blame it on prednisone? Adrenal insufficiency ?...

With PMR we have other comorbidities. As I tapered My pred from 8 to 7 3/4 I not...

Karenjaninaz

•1 year ago

14 Replies

Hydroxychloroquine

Hello, Everyone was so helpful last time I posted about being stuck on 3 mg of pred for nearly 5 years and suffering flares when I go lower and the rheumy's...

Hello, Everyone was so helpful last time I posted about being stuck on 3 mg of ...

JudithWarrior

•1 year ago

24 Replies

At what point is a Dexa Scan necessary?

Does anyone know when or if I am likely to need/be offered a dexa scan? Will symptoms occur which may lead my doctor to suggest one or this a routine...

Does anyone know when or if I am likely to need/be offered a dexa scan? Will sy...

Lclmlbls

•1 year ago

27 Replies

The "other" symptoms of PMR?

I was diagnosed with PMR in July 2022 after 2 months of sudden onset of symptoms. I was very fit & healthy at time of first symptoms. I am using DSNS weaning...

I was diagnosed with PMR in July 2022 after 2 months of sudden onset of symptoms...

Flinders61

•1 year ago

74 Replies

red rash

Hi I was diagnosed with PMR in April . Since then on several occasions, I’ve had The Butterfly marks across cheeks and bridge of nose , & red marks on neck...

Hi I was diagnosed with PMR in April . Since then on several occasions, I’ve ...

TedTheMaineCoon

•1 year ago

13 Replies

rheumy?

new member unfamiliar with your Club Code! What is a ‘rheumy’?

Plateman

•1 year ago

2 Replies

dogs don’t like Predisolone part 2

I am sure you have all been losing sleep wondering how I got on working my way through the dog pellet food in order to find the 0.5mgs within the sack....

I am sure you have all been losing sleep wondering how I got on working my way ...

Gossiplady

•1 year ago

14 Replies

Depomedrone pre operation

Just a follow up to my recent post when I asked if anyone had any advice on whether I should have my Depomedrone injection scheduled for three days before...

Just a follow up to my recent post when I asked if anyone had any advice on whet...

Countrykitten

•1 year ago

2 Replies

Has 3 years on Prednisolone caused all these problems?

Hi All,I haven't posted for a while but regularly read the daily highlights and continue to learn about our condition and take comfort that there are others...

Hi All,I haven't posted for a while but regularly read the daily highlights and ...

CarolF1312

•1 year ago

35 Replies

Head Pains

Hi, today am experiencing intermittent dull head pain on right hand side at top of head and down towards behind of ear. Not excruciating by any means and...

Hi, today am experiencing intermittent dull head pain on right hand side at top ...

Pusph

•1 year ago

10 Replies

Plant Sterols for reduction of cholesterol

Not necessarily related to PMR as I have had high cholesterol since I first started having blood tests years ago. My 'good' and 'bad' have always been about...

Not necessarily related to PMR as I have had high cholesterol since I first star...

Pr0jection

•1 year ago

26 Replies

Taking ibuprofen while on a low dose of prednisolone

Hi I’ve already had one hip replaced 13 years ago (before my PMR diagnosis) and I’ve been lucky to get away with not having any trouble with the other - until...

Hi I’ve already had one hip replaced 13 years ago (before my PMR diagnosis) and...

calibriel

•1 year ago

12 Replies

Update on Cataracts

Update on my cataracts- went to the hospital this week-10 days after my initial app. when I was told I needed the cataract op. Saw a different Dr & she said...

Update on my cataracts- went to the hospital this week-10 days after my initial ...

Janeval

•1 year ago

22 Replies

Right hip and shoulder pain

I have been on Prednisone for two and half years and have slowly reduced to 2and half mg. Now got pain in Rt hip and the outside of the thigh. Also a slight...

I have been on Prednisone for two and half years and have slowly reduced to 2and...

UmiMck

•1 year ago

20 Replies

I hope this is ok to post here…..

Hi everyone, I’m awake again. The weirdest thing just happened. I can’t wake my son up to talk to him so I hope it’s ok to chat here but it’s not PMR...

Hi everyone, I’m awake again. The weirdest thing just happened. I can’t wake ...

Bramble2000

•1 year ago

6 Replies

Breast pain on prednisolone

This might be a bit of a strange one, but have you experienced twinges in the breast on pred? I get these quite sharp twinges every now and again and I...

This might be a bit of a strange one, but have you experienced twinges in the br...

Gimme

•1 year ago

52 Replies

tapering

could you direct me to the post that shows the sensible tapering programme please.

could you direct me to the post that shows the sensible tapering programme pleas...

Nanatoo

•1 year ago

6 Replies

Sourmouth

Dry sour mouth all the time. Started a few weeks ago but been on prednisone since April. Could it be that I was also on an antibiotic (bactrin) for UTI for 10...

Dry sour mouth all the time. Started a few weeks ago but been on prednisone sinc...

Seal49

•1 year ago

4 Replies

Sharp pain in arm

recently I have had intermittent sharp pain in left lower arm ….bit like a nerve pain … wonder if it’s anything to do with tapering off steroids ?

recently I have had intermittent sharp pain in left lower arm ….bit like a nerve...

shella

•1 year ago

5 Replies

Interesting rheumatologist appointment

I have had pmr for 8 years. When I was first diagnosed, the dr. Told me it will last about 2 years on average. I have taken about 15 mg of prednisone most of...

I have had pmr for 8 years. When I was first diagnosed, the dr. Told me it will ...

Linny3

•1 year ago

37 Replies

STILL ON THE BED, STILL TRYING TO DEAL WITH OUR FLAILING MED SYSTEM - NO ANSWERS

Ok. Been putting off writing because it's going to be long. Rheumy still hasn't gotten back to me on CT scan done July 6. Hips screaming. Shoulders tolerable....

Ok. Been putting off writing because it's going to be long. Rheumy still hasn't ...

Missus835

•1 year ago

54 Replies

Logged out

Hello, I don't know why I keep on getting logged out of this helpful site but nearly everyday I have to input my login details.Thanks Peter

Hello, I don't know why I keep on getting logged out of this helpful site but ne...

Petertaffy

•1 year ago

13 Replies

Odd shaky feeling in my legs

Hi, on day 6 post diagnosis PMR, on 20mgs Pred and really feeling a lot better apart from occasional shoulder pains. However I do seem to have a peculiar lower...

Hi, on day 6 post diagnosis PMR, on 20mgs Pred and really feeling a lot better a...

Sillydogsmum

•1 year ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Well I didn't know that

Another option for research - have you had a PET scan?

Pmr and heart attack

Burning Pains

UTI infection

have I really got PMR?

to sleep perchance to dream !? too much is OTT

Considering whether the AFib is from asthma inhaler.

Hydroxychloroquine

At what point is a Dexa Scan necessary?

The "other" symptoms of PMR?

red rash

rheumy?

dogs don’t like Predisolone part 2

Depomedrone pre operation

Has 3 years on Prednisolone caused all these problems?

Head Pains

Plant Sterols for reduction of cholesterol

Taking ibuprofen while on a low dose of prednisolone

Update on Cataracts

Right hip and shoulder pain

I hope this is ok to post here…..

Breast pain on prednisolone

tapering

Sourmouth

Sharp pain in arm

Interesting rheumatologist appointment

STILL ON THE BED, STILL TRYING TO DEAL WITH OUR FLAILING MED SYSTEM - NO ANSWERS

Logged out

Odd shaky feeling in my legs

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