Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,888 posts

All posts for May 2023

Prednisone Alendrolic acid -Dexa scan

The GP has now informed me that at 73 and I deemed be to be at high risk because of pred and bone thinning NHS will NOT give you a scan. If your under 65 and...

The GP has now informed me that at 73 and I deemed be to be at high risk because...

Bobbury

•1 year ago

42 Replies

Spring Covid Booster

Hi everyone, it’s a while since I posted (I’ve been recovering from a bad fall in March) but I read the posts everyday. I have a question re the latest Covid...

Hi everyone, it’s a while since I posted (I’ve been recovering from a bad fall i...

Tiggy70

•1 year ago

13 Replies

Mangled and potentially dangerous prescriptions

Department of Anything That Can Go Wrong Will Go Wrong. Letter to my GP, real one with stamp and envelope, since messages appear ill-absorbed. My...

Department of Anything That Can Go Wrong Will Go Wrong. Letter to my GP, real...

Mayadill

•1 year ago

71 Replies

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Down to 1 mg Pred and how to let go?!

Hi all, I followed the protocol to reduce slowly from 15/ 12.5 in Aug of 2018. At times had to go up and then down as everyone knows. Now I am down to 1mg...

Hi all, I followed the protocol to reduce slowly from 15/ 12.5 in Aug of 2018...

bluegirl7

•1 year ago

47 Replies

Attended pain clinic today . Have been offered injection for Bursitis .

Met with Doctor today , he asked me what pain at present time is the worse for me ? I explained to him the pain in my buttocks especially the right side ,...

Met with Doctor today , he asked me what pain at present time is the worse for...

Staffieblue

•1 year ago

21 Replies

Reducing Prednisone dose again, am dose from 10 to 7.5mg

I have been feeling pretty good at the evening dose reduction from 10 to 5, I split my dose morning and evening. At the first reduction I felt kind of like run...

I have been feeling pretty good at the evening dose reduction from 10 to 5, I sp...

sdowney717

•1 year ago

15 Replies

Injections

Hi. Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on leflunomide,been on...

Hi. Just a question,was wondering,if it is OK to have a injection,as got dentist...

Flosy

•1 year ago

4 Replies

Hiatus Hernia Operation

Hi Do any of ever had an operation for HH? I have a 5cm one and it’s causing tight chest and chest pain after eating which is really getting me down also...

Hi Do any of ever had an operation for HH? I have a 5cm one and it’s causin...

Leepy67

•1 year ago

4 Replies

A Cautionary Tale

Early the other morning I woke up feeling nauseous, lightheaded, cold, clammy and ill. I never felt that way before so I called for an ambulance to take me to...

Early the other morning I woke up feeling nauseous, lightheaded, cold, clammy an...

Miacaro45

•1 year ago

39 Replies

PPI’s Side Effects

Hi, does anyone suffer sore joints like knees and hips also red rashes on skin taking Omeprazole/Lansoprazole?

Hi, does anyone suffer sore joints like knees and hips also red rashes on skin ...

Leepy67

•1 year ago

17 Replies

Battle with GP’s

Felt some relief when latest GP said her mother had PMR but after yesterday’s appointment she seems as incompetent as the rest. Been back on 40mg three weeks...

Felt some relief when latest GP said her mother had PMR but after yesterday’s ap...

Body_bonkers

•1 year ago

13 Replies

Puzzled!!

I posted a few weeks ago about the difficult appointment I had with my Rheumatologist. After that appointment I had blood tests to check everything including...

I posted a few weeks ago about the difficult appointment I had with my Rheumatol...

Judywalks

•1 year ago

14 Replies

Little graphic for the forum

Body can not be empty. I should hope not indeed.

Mayadill

•1 year ago

1 Reply

What is a normal CRP level?

After a recent flare of PMR I have been put on 5mg pred. My blood tests last week showed CRP levels of 4, so to refresh my memory I looked up "normal" levels...

After a recent flare of PMR I have been put on 5mg pred. My blood tests last wee...

humlies

•1 year ago

12 Replies

Cracked tongue.

Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair,...

Right side of tongue is sore. Opened mouth to examine (blisters). and found th...

Merryfield

•1 year ago

31 Replies

Mycophenolate - Anyone know anything good/bad about this drug.

Been on a bit of a journey recently after having seen another rheumy on the NHS where I was referred 18 months ago by my original rheumy when my health...

Been on a bit of a journey recently after having seen another rheumy on the NHS ...

Purpleprimate

•1 year ago

14 Replies

Biopsy results

As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised...

As I suspected given the delay the biopsy results came back negative. Most rece...

Menno1525

•1 year ago

3 Replies

Questions for a rheumatologist Appt tomorrow

Hi, My partner developed PMR in February 2021 and has managed to taper down from the original 20mg to 5mg over time using the DSNS system with occasional...

Hi, My partner developed PMR in February 2021 and has managed to taper down fro...

Fudgethecat

•1 year ago

5 Replies

Naming ceremony

Very uplifted by oncoming event saturday. Travelling down the day before to sort things and rest. Get together meal with good friends whom I haven't seen for...

Very uplifted by oncoming event saturday. Travelling down the day before to sort...

cycli

•1 year ago

27 Replies

predi

why cant you have dentist treatment while on pred isnt there a lower level like say 5 % where its safer

why cant you have dentist treatment while on pred isnt there a lower level like ...

deeperpurple

•1 year ago

28 Replies

Rishi Sunak's proposals for the NHS. I'll believe it when I see it!

https://www.gov.uk/government/news/what-the-prime-ministers-primary-care-recovery-plan-means-for-you?embedded_webview=true My prescriptions tell me I need a...

https://www.gov.uk/government/news/what-the-prime-ministers-primary-care-recover...

Broseley

•1 year ago

14 Replies

CT-Scan of Chest, Updates

After ER doc did more indepth bloodwork night before last, my CRP had gone up from April 28 (it was at 3) to a whopping 42. He also did a test that can show...

After ER doc did more indepth bloodwork night before last, my CRP had gone up fr...

Missus835

•1 year ago

15 Replies

lab results

So since starting Prednisone 20 mg Jan 4 and tapering to 15 mg on March 21 my ESR on monthly labs has gone from 41 ,34, 22.,44 & today 63 . My CRP started @...

So since starting Prednisone 20 mg Jan 4 and tapering to 15 mg on March 21 my E...

GMA74

•1 year ago

9 Replies

Polymyalgia Rheumatica

I developed PMR in January 2015 and still struggling can’t get lower than 4.5mg Prednisone. Consequently I had to retire sooner than I wanted to. I have more...

I developed PMR in January 2015 and still struggling can’t get lower than 4.5mg ...

Hunstonhun

•1 year ago

9 Replies

Back from cruise update!

So, first let me start off with many thanks for all who helped me on here before I left. I am happy to report that I didn't feel "too" badly for most of the...

So, first let me start off with many thanks for all who helped me on here befor...

sidra1968

•1 year ago

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PMR symptoms

Hello this is my first time posting on this site. I would like your opinions, in January after two severe attacks of gout only a couple of months apart my GP...

Hello this is my first time posting on this site. I would like your opinions, in...

Woollyback1

•1 year ago

17 Replies

Short synacthen test

My test results are 250nmol/l prior to receiving the serum then 469 nmol/L then 547 nmol/L The rheumatologist wrote saying the results are satisfactory but...

My test results are 250nmol/l prior to receiving the serum then 469 nmol/L then...

Hidden

•1 year ago

11 Replies

Cortisol results

9days since last posted, and a lot has happened since. I’m on 3mg at moment and as my DR refused to do a Cortisol test for me, I had it done private on Friday...

9days since last posted, and a lot has happened since. I’m on 3mg at moment and ...

Maggie1313

•1 year ago

12 Replies

Advice and have you felt like this reducing pred ?

Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see...

Hello folksLooking for some advicePlease have been trying to reduce my pred My ...

Staffieblue

•1 year ago

16 Replies

Vitamin D3 Necessity?

Hi all, I'm a GCA patient, having started at 60 MG in AUG 2022. I'm down to 12.5 MG today. I have felt lousy in so many respects including fatigue, vision...

Hi all, I'm a GCA patient, having started at 60 MG in AUG 2022. I'm down to 12...

montebello

•1 year ago

39 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

Prednisone Alendrolic acid -Dexa scan

Spring Covid Booster

Mangled and potentially dangerous prescriptions

Down to 1 mg Pred and how to let go?!

Attended pain clinic today . Have been offered injection for Bursitis .

Reducing Prednisone dose again, am dose from 10 to 7.5mg

Injections

Hiatus Hernia Operation

A Cautionary Tale

PPI’s Side Effects

Battle with GP’s

Puzzled!!

Little graphic for the forum

What is a normal CRP level?

Cracked tongue.

Mycophenolate - Anyone know anything good/bad about this drug.

Biopsy results

Questions for a rheumatologist Appt tomorrow

Naming ceremony

predi

Rishi Sunak's proposals for the NHS. I'll believe it when I see it!

CT-Scan of Chest, Updates

lab results

Polymyalgia Rheumatica

Back from cruise update!

PMR symptoms

Short synacthen test

Cortisol results

Advice and have you felt like this reducing pred ?

Vitamin D3 Necessity?

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