Cracked tongue.

[Merryfield]

Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?

[SheffieldJane]

I have experienced a very dry mouth and have been prescribed pastilles that ease it at night. What does your GP say?

[Rachmaninov2 in reply to SheffieldJane]

Same here. I have been waking up in the night with a very dry mouth, I know I breathe through my mouth when I am asleep. Did your GP prescribe the pastilles?

[Merryfield in reply to Rachmaninov2]

I sleep w mouth open too. I am drinking more water but icky tongue

[Rachmaninov2 in reply to Merryfield]

I think breathing through the mouth draws air in, which adds to the problem, which in my case only started after I started taking heart medications.

[SheffieldJane in reply to Rachmaninov2]

Initially I was prescribed some pretty useless gel. The pharmacist recommended Salivix pastilles that work well. I have managed to get them on prescription.

[Rachmaninov2 in reply to SheffieldJane]

Thank you for the info. very helpful. I will try the pastilles. Glad they are helping you, it’s a real nuisance.

[Merryfield in reply to SheffieldJane]

Hi, Sheff. Will ask his thoughts. Need to communicate w him on several things.

[SheffieldJane in reply to Merryfield]

write yourself a list. X

[RachelJDH]

Sorry but your post made me laugh so much as that was my list of misery plus terrible cramp which magnesium is not really helping (prob giving me an upset stomach making me dehydrated). 😅 my language has got worse too!!

[PMRpro Ambassador in reply to RachelJDH]

PMR-induced Tourettes - and it is PMR, not pred. I had it long before I went onto pred!

And please try to get the GP to check your calcium and potassium levels - also potential candidates for muscle cramps.

[Merryfield in reply to RachelJDH]

oh brother, it never ends!

[Merryfield in reply to RachelJDH]

Sorry about the cramps. Learned to cuss from my stepdad so not PMR!

[PMRpro Ambassador in reply to Merryfield]

I learned it from my holier than though grandfather but I did control it fairly well until PMR!!

[Merryfield in reply to PMRpro]

Let it fly!

[Missus835]

Maybe thrush? Yes to all the others. Facial hair is peach fuzz though the hair on my head is now more salt and pepper than the silver it was. Hair on my arms is ginger (never before) and quite a bit of it. I may have back hair, but I can't really see it. Armpit hair ha stopped growing for the mostpart. LOL.

[Merryfield in reply to Missus835]

I got my hands and fingers waxed. Monkey paws!!

[Missus835 in reply to Merryfield]

😂

[orangemax in reply to Merryfield]

I don't get it! Why would you do that??🦁

[Merryfield in reply to orangemax]

i was having a mourning ring made and the hair on my fingers was so long it was embarrassing.

[Cofab2]

Hi Merryfield, are you on methotrexate by any chance? I was diagnosed in 2015, been ups and downs with pred, and Rheumy put me on methotrexate to help weaning off pred. (BTW, I had every side effect there is to pred). I developed the sore mouth as you describe. I had huge cankers on my tongue, could hardly eat. Well, that’s one of the side effects of methotrexate. Once I was off, my mouth finally healed. I am down to 5mg of pred, which is where I have to stay, as when attempts to go lower causes a flare, then back up again! PMR changed my life drastically. I was healthy and very active, now, not. (PS, I am in US, also)

[Merryfield in reply to Cofab2]

Hi, Cofab. Not on methotrexate. Steroids and diabetes meds. (and bp, statin, antidepressants). Glad your mouth has healed. Am trying a peroxide mouth wash for blisters. Doubt that it will help cracked tongue.

[Cofab2 in reply to Merryfield]

Hi again, one thing that soothed my large, painful blisters/cankers, was honey. It has healing properties. I had a script/mouth rinse from my DDS, which didn’t help. Good luck

[Merryfield in reply to Cofab2]

thx!

[Wallysma in reply to Merryfield]

Hi...I had issues with a canker for months that would not go away. I had tried OTC stuff then saw doc after that I was given 5 different treatments. I knew I needed an antibiotic...FINALLY the treatment that worked, a specially.made mouthwash with an antibiotic in it, worked. It helped my tongue some but it is still sore at times. I like spicy food which does irritate my tongue.....I.am hoping it will eventually go away. The.canker.sore was extremely painful...it would wake me up. Not just sore but throbbing pain. Very happy that is gone! Good luck..

I hope you can get something for it.

[Merryfield in reply to Wallysma]

Wow, that is one sore tongue! I am calling doc today for tongue issue appt.

[Wallysma in reply to Merryfield]

Good idea....good luck. I hope you get some treatment and it works right away. 👅

[PMRpro Ambassador in reply to Cofab2]

It IS one of the side effects of MTX - but you should have been given enough folic acid to prevent them forming. Some people need more than others and some doctors seem to think 1x 5mg folic acid a week is adequate but it rarely is.

[Merryfield in reply to PMRpro]

folic acid. good idea.

[Cofab2 in reply to PMRpro]

Hi, I was prescribed folic acid, but as you stated, probably not enough to offset the condition. Thank you and others for helping. I found this forum after diagnosis in 2015. It let me know I wasn’t alone, and not ‘imagining it!’

[choirsinger1986]

I use an alcohol free mouthwash for any mouth sores I get, which may or may help your cracked tongue - along side any gel to help lubricate and heal.

[Merryfield in reply to choirsinger1986]

Thank you.