Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for May 2023

PMR flare symptoms but bloods clear.

Hi AllI have been taking pred for 2.5 years for PMR and after a couple of flare ups in that time have managed to taper to 2mg per day. In the last few weeks...

Hi AllI have been taking pred for 2.5 years for PMR and after a couple of flare ...

GarryB63

•1 year ago

15 Replies

Reduced prednisolone - rapid onset of discomfort but ? PMR or coincidence - what dose next?

To update from my history, I reduced pred to 5mg daily (taken after breakfast) on 13.2.23. About 2 weeks later I developed some return of stiffness in...

To update from my history, I reduced pred to 5mg daily (taken after breakfast) o...

liz6620

•1 year ago

6 Replies

PMR and shingles

Just wondering if you should see GP Wright away for antiviral meds if you have shingles and PMR,thanks so much xx

Just wondering if you should see GP Wright away for antiviral meds if you have s...

Harrywogan

•1 year ago

7 Replies

Want to take advantage of all our features? Just log in!

Pondering what to do

Been on steroids for PMR now for 8 weeks now - started on 40mg and felt fantastic very quickly. Dose was lowered following week to 35 and week after to 30...

Been on steroids for PMR now for 8 weeks now - started on 40mg and felt fantasti...

Body_bonkers

•1 year ago

20 Replies

Victory with scrip mess

I trust. Been told the scrip has been issued. With my luck the chemist's will mislay it. No, I didn't say that. I took on board Body_bonkers' point about...

I trust. Been told the scrip has been issued. With my luck the chemist's will ...

Mayadill

•1 year ago

61 Replies

Best to go back on Pred?

Hi Everyone, I was diagnosed with PMR in March 2021 after having symptoms for at least 10 months prior. I was started on 15mg and followed Dorset Lady’s...

Hi Everyone, I was diagnosed with PMR in March 2021 after having symptoms for a...

LeighDelaine

•1 year ago

4 Replies

done it

Done it

Glasgow55

•1 year ago

2 Replies

15mg MTX on holiday and in pain

Good afternoon my pmr diagnoses from July ‘22 was changed to RA in Dec’22 I’ve been taking 15mg MTX since February while reducing from 10mg pred to zero....

Good afternoon my pmr diagnoses from July ‘22 was changed to RA in Dec’22 I’ve b...

Dancesaver

•1 year ago

9 Replies

Covid jab during a diverticulitis flare with some PMR stiffness.

I am due to have my Covid booster on 18/5. I am experiencing a diverticulitis flare accompanied by PMR stiffness and pain. Would it be sensible to postpone the...

I am due to have my Covid booster on 18/5. I am experiencing a diverticulitis fl...

SheffieldJane

•1 year ago

15 Replies

DSNS Taper

I am on 18 years of prednisone :0. I am down to 10mg and need to taper and my doctor just told me to try this DSNS taper but I don’t understand it in the...

I am on 18 years of prednisone :0. I am down to 10mg and need to taper and my do...

saintmels

•1 year ago

16 Replies

leflulamide / aledronic acid

my pmr has now added gca in January this year, I was supposed to start leflunemide in March, but before taking my bp went sky high. so I couldn’t start. then...

my pmr has now added gca in January this year, I was supposed to start leflunemi...

Sasol

•1 year ago

8 Replies

It was going so well

Hello again, I was tapering along quite nicely, hovering around 4.5 mgs, then the below 5mg flare curse struck. I went back to 5mg, with no avail. In...

Hello again, I was tapering along quite nicely, hovering around 4.5 mgs, then t...

Southmead

•1 year ago

17 Replies

Stuck at 5, but should I increase ..adrenals or flare?

Hi Everyone. Reached 4 on DSNS 5 week taper. Symptoms arrived including head and ears buzzing, nausea, dizziness, extreme fatigue and brain fog, and hot...

Hi Everyone. Reached 4 on DSNS 5 week taper. Symptoms arrived including head an...

Temoral

•1 year ago

27 Replies

Reduced prednisone again now at 5 in am, 5 in evening, feeling ok

On 3rd day at 5 and 5, right wrist got sore and swollen. Everything else ok but did feel a little wiped out. Today feeling great, wrist swelling going down....

On 3rd day at 5 and 5, right wrist got sore and swollen. Everything else ok but ...

sdowney717

•1 year ago

16 Replies

Please nominate us to receive £5,000

Hi everyone, please can I ask everyone to take just one minute to nominate us for a £5,000 grant. The voting is open just today through to Friday and all you...

Hi everyone, please can I ask everyone to take just one minute to nominate us fo...

Fran_Benson

Partner•1 year ago

78 Replies

Benefact Group Health & Wellbeing Special Draw

I've received an email from the Benefact Group. They are holding a special draw from today until Friday for Health and Wellbeing charities. Ten charities will...

I've received an email from the Benefact Group. They are holding a special draw ...

Marijo1951

•1 year ago

6 Replies

Liver problems

I feel quite sorry for myself. After a weekend of severe pain and vomiting, it turns out my liver isn't doing so well. I'm in hospital atm, and consultant...

I feel quite sorry for myself. After a weekend of severe pain and vomiting, it ...

Phoebess

•1 year ago

36 Replies

This maybe a silly question

This maybe a silly question but can PMR just disappear suddenly. I've been stuck on 8mg for 2 years and cannot get down below that. Usually I have a bit of...

This maybe a silly question but can PMR just disappear suddenly. I've been stuck...

Alan7690

•1 year ago

4 Replies

Humble pie

After worrying about interrupting my sleep by getting up early in the morning to take my steroids, I changed to 8 a.m. Some aches and pains returned and I...

After worrying about interrupting my sleep by getting up early in the morning to...

Hidden

•1 year ago

8 Replies

Blood tests

I started with 15mg of pred in February 2023. Currently tapering and now on 12mg. Since my initial blood tests I have had no further tests. Should my doctor be...

I started with 15mg of pred in February 2023. Currently tapering and now on 12mg...

Lclmlbls

•1 year ago

18 Replies

Q. about under 10 mg and can PMR burn itself out?

Last summer, I was way down, with no problems, 9, 8, 7, 6, 5, 4 mg. It’s only with hindsight reading this site I realize it could be usual to have had adrenal...

Last summer, I was way down, with no problems, 9, 8, 7, 6, 5, 4 mg. It’s only w...

Mayadill

•1 year ago

3 Replies

Off Prednisone?

Finally did it:-). How long until one feels symptoms returning if they are going to? I just took 10 months reducing from 3mg. (Started at 40!)

Finally did it:-). How long until one feels symptoms returning if they are going...

Missmymuscles

•1 year ago

29 Replies

Steroids

My friend is on 65mg of pred. steroids. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin...

My friend is on 65mg of pred. steroids. I read that he needs a low salt and low ...

Hope2024

•1 year ago

16 Replies

intermittent fasting - impact of delaying steroid intake

Hi has anyone tried the 16:8 version of this by delaying breakfast til c 11am . There are many health benefits including anti inflammatory and bone health in...

Hi has anyone tried the 16:8 version of this by delaying breakfast til c 11am . ...

Sydney0503

•1 year ago

45 Replies

Pfizer jab PMR

Hi All I’ve just been diagnosed with PMR my crp was 105, my symptoms virtually disappeared after 4 hours of taking 15mg of prednisolone last Saturday and...

Hi All I’ve just been diagnosed with PMR my crp was 105, my symptoms virtually ...

Lulucat46

•1 year ago

9 Replies

Splitting Pred Dosage

Where can I find posts about splitting my Pred daily dosage between morning and evening please. I am on 13mg and take the lot at 8am, feel better as day wears...

Where can I find posts about splitting my Pred daily dosage between morning and ...

craighead72

•1 year ago

2 Replies

Do people feel their doctors told them what they need to know?

I was diagnosed just after the start of the pandemic. It was lockdown = pandemonium. All the same it sticks in my mind that all I was told about Pred was when...

I was diagnosed just after the start of the pandemic. It was lockdown = pandemon...

Mayadill

•1 year ago

42 Replies

Update after Rheumy visit

Rheumy was happy all labs good but ESR climbing is concern . He examined and questioned me for GCA symptoms. Bumping me back up from 15 to 20 for a few days...

Rheumy was happy all labs good but ESR climbing is concern . He examined and qu...

GMA74

•1 year ago

2 Replies

Error

Hello everyone. I was truly convinced that I had taken my 4.5 mg ec coated Prednisolone last night at 23:00 but was feeling a bit rubbish all day at work. By...

Hello everyone. I was truly convinced that I had taken my 4.5 mg ec coated Pred...

Pangolin43

•1 year ago

11 Replies

Pain in hands

Why am I getting pain, numbness and loss of fine muscle power in my hands? Am on pred 6mg for PMRGCA along with leflunomide theical D and lansaprazole, and...

Why am I getting pain, numbness and loss of fine muscle power in my hands? Am on...

Steal

•1 year ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

PMR flare symptoms but bloods clear.

Reduced prednisolone - rapid onset of discomfort but ? PMR or coincidence - what dose next?

PMR and shingles

Pondering what to do

Victory with scrip mess

Best to go back on Pred?

done it

15mg MTX on holiday and in pain

Covid jab during a diverticulitis flare with some PMR stiffness.

DSNS Taper

leflulamide / aledronic acid

It was going so well

Stuck at 5, but should I increase ..adrenals or flare?

Reduced prednisone again now at 5 in am, 5 in evening, feeling ok

Please nominate us to receive £5,000

Benefact Group Health & Wellbeing Special Draw

Liver problems

This maybe a silly question

Humble pie

Blood tests

Q. about under 10 mg and can PMR burn itself out?

Off Prednisone?

Steroids

intermittent fasting - impact of delaying steroid intake

Pfizer jab PMR

Splitting Pred Dosage

Do people feel their doctors told them what they need to know?

Update after Rheumy visit

Error

Pain in hands

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive