Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for May 2023

Today, another CT Scan to Rule Out Blood Clot on Lung

CRP up to 42 last night (May 8) after being 3 on April 28th. This is the CRP where my PMR began for goodness sakes. Obviously there's an infection there...

CRP up to 42 last night (May 8) after being 3 on April 28th. This is the CRP whe...

Missus835

•1 year ago

2 Replies

Cortisol levels

Just looking for insights here. I was diagnosed mid-2020 and have been taking Pre since August 2020, started on 15mg, got down to 4mg, got Covid (a year ago),...

Just looking for insights here. I was diagnosed mid-2020 and have been taking Pr...

marionofnorwich

•1 year ago

5 Replies

Covid Booster

Quick query . I have not received an invitation to have my booster this time. I understand that I am not due to have it because I am only on 6.5 mgs of...

Quick query . I have not received an invitation to have my booster this time. I ...

Hollybee21

•1 year ago

27 Replies

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Ankle Replacement surgery

I saw my surgeon today. Yes my practice was open! Anyway I don't have to have the dreaded ankle replacement but will have another fusion asap. And our two City...

I saw my surgeon today. Yes my practice was open! Anyway I don't have to have th...

Hidden

•1 year ago

6 Replies

Breathless

Hi just wondering does anyone know that when reducing preds ,and as I have copd can reducing make you more breathless as I am ,wondering if it has anything to...

Hi just wondering does anyone know that when reducing preds ,and as I have copd ...

Alice70

•1 year ago

5 Replies

TRURO SUPPORT GROUP MEETING

If you'd like to meet others living with PMR or GCA in Cornwall, you are warmly invited to our next meeting at Truro Golf Club, Treliske, Truro TR1 3LG on...

If you'd like to meet others living with PMR or GCA in Cornwall, you are warmly ...

Pollyanna16

•1 year ago

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Change the time I take Pred? Update

Thanks to everyone who replied to my question. I have tried splitting the dose but actually found that I then had two reactions, after taking each tablet, so...

Thanks to everyone who replied to my question. I have tried splitting the dose b...

Hidden

•1 year ago

2 Replies

diarrhoea

On reducing prednisolone (I am now on 4.5 and 4 mg alternate days ) is it usual to get diarrhoea.

On reducing prednisolone (I am now on 4.5 and 4 mg alternate days ) is it usual ...

Creamtea

•1 year ago

13 Replies

Jbobby

diagnosed in Jan this year with PMR and then GCA. Long story but have been up to 70 mg Pred for a week and gradually been coming down. A few Ups and downs...

diagnosed in Jan this year with PMR and then GCA. Long story but have been up to...

Jbobby

•1 year ago

8 Replies

Actemra frequency query

Hi Everyone, I’m wondering if there is anyone on here who is managing their Actemra injection pen shots four-weekly? I’m interested to know why your shots...

Hi Everyone, I’m wondering if there is anyone on here who is managing their Act...

LemonZest11

•1 year ago

45 Replies

Adcal-D3 Caplets

Hi all,been on Adcal-D3 for 6years,2 in afternoon and 2 at bed time, just wondering how long you have to take them, 🤔 was worrying about kidney stones don't...

Hi all,been on Adcal-D3 for 6years,2 in afternoon and 2 at bed time, just wonder...

Harrywogan

•1 year ago

10 Replies

Prednisolone and osteoarthritis

As I posted recently, after more than a year of taking 2.5 mg of pred daily, at long last I had an appointment with a rheumatologist who advised me to reduce...

As I posted recently, after more than a year of taking 2.5 mg of pred daily, at ...

Marijo1951

•1 year ago

71 Replies

Splitting Pred dose

Hi, maybe a stupid question. I am now on a reduced dose of 15mg pred. Due to be reduced to 10mg tomorrow. Is it possible to take 5mg in the and 5mg in evening...

Hi, maybe a stupid question. I am now on a reduced dose of 15mg pred. Due to be ...

Worthy10

•1 year ago

46 Replies

Hail to King Charles III

Congratulations on the coronation of King Charles III. Loved watching the whole coronation and, then on Sunday, the fabulous concert. I know this has nothing...

Congratulations on the coronation of King Charles III. Loved watching the whole...

Miacaro45

•1 year ago

15 Replies

Prednisone and blurry vision

I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs...

I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg pred...

GMA74

•1 year ago

7 Replies

Tapering tiredness

I’ve been on pred for about 6 years and down to 1.5 at the moment. Struggling a bit but hoping things will settle and I won’t have to increase again. I’ve...

I’ve been on pred for about 6 years and down to 1.5 at the moment. Struggling a ...

Suzan62

•1 year ago

12 Replies

ER Doc further messed up my back?

On Tuesday gone by I went the ER here in Nova Scotia. During his exam, the doctor manipulated my legs up and down and had me press feet, etc. to test strength,...

On Tuesday gone by I went the ER here in Nova Scotia. During his exam, the docto...

Missus835

•1 year ago

33 Replies

Two Questions

My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before...

My sister and I, both in our '80's, take Omeprazole. She takes it because she h...

caftan

•1 year ago

19 Replies

In limbo

Hi Everyone, I sat down to read test posts, and propose my own question (partly covered by Strawclutching's - hope things improve for you with new...

Hi Everyone, I sat down to read test posts, and propose my own question (part...

Frewen1

•1 year ago

23 Replies

Simvastin and muscle pain

Back story aged 58 now PMR for 4 years never managed to reduce Pred below 12.5ish. At the moment I am still on 12.5 but pain is steadily increasing again but...

Back story aged 58 now PMR for 4 years never managed to reduce Pred below 12.5i...

Pawscat11

•1 year ago

44 Replies

Update on 2 am dose

Nice idea while it lasted. The upside, which is grand, is waking up with no signs of PMR. The downside for me, though of course maybe not for you, is...

Nice idea while it lasted. The upside, which is grand, is waking up with no sig...

Mayadill

•1 year ago

38 Replies

continuing pain and a toothache?

I’ve been posting recently about some new pain and trying to discern what’s causing it. Thank you to all who replied with your experience and suggestions....

I’ve been posting recently about some new pain and trying to discern what’s c...

Mstiles

•1 year ago

11 Replies

temple pain

Today I’ve had intermittent stabbing pain lasting seconds in right temple. Should I just see how it goes? Still on prednisolone 11mg for going into 4,weeks.

Today I’ve had intermittent stabbing pain lasting seconds in right temple. Shoul...

lennysmummy

•1 year ago

19 Replies

Delay taking prednisolone until after blood test carried out?

Every two months I have a variety of blood tests carried out. The most important ones for my rheumatologist seem to be ESR and CRP. I take my steroid dose...

Every two months I have a variety of blood tests carried out. The most importan...

Pr0jection

•1 year ago

5 Replies

Lansoprazole and prednisolone

At a medication review last week, the pharmacist at my local GP surgery mentioned that I should perhaps be taking lansoprazole to protect my stomach so that...

At a medication review last week, the pharmacist at my local GP surgery mentione...

ladygigger

•1 year ago

14 Replies

sick day rules again!

ground hog day! last Saturday temperature and a weeks abx prescribed. No sick day rules to apply. mild temperature crept back in yesterday- GP not...

ground hog day! last Saturday temperature and a weeks abx prescribed. No sick ...

RT18

•1 year ago

16 Replies

Trochanteric Bursitis Diagnosis

Hello everyone - following on from my last post - hip and groin pain and all the most excellent advice and shared experiences, I rocked up at the surgery...

Hello everyone - following on from my last post - hip and groin pain and all the...

LozzaSandstrom

•1 year ago

37 Replies

Query about ESR please.

Hi everyone, can anyone please tell me if an ESR of 32 is classed as raised in a 74 year old Lady. Thank you Jenny x

Hi everyone, can anyone please tell me if an ESR of 32 is classed as raised in a...

Attic

•1 year ago

15 Replies

PMR seems to have returned

Briefly, I had PMR from 2016 - 2019. It didn’t show up on blood test and I was started on 15mg of pred. Within 48 hours I was pain free and quickly reduced...

Briefly, I had PMR from 2016 - 2019. It didn’t show up on blood test and I was...

Urtica

•1 year ago

7 Replies

What foods do you eat to keep to low carbs and no sugar, and still keep regular (if you get my drift!)

I eat prunes daily. I have done so since around 2008. These help enormously to prevent constipation. I have a brain aneurism and have been told to avoid...

I eat prunes daily. I have done so since around 2008. These help enormously to...

Pr0jection

•1 year ago

38 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

Today, another CT Scan to Rule Out Blood Clot on Lung

Cortisol levels

Covid Booster

Ankle Replacement surgery

Breathless

TRURO SUPPORT GROUP MEETING

Change the time I take Pred? Update

diarrhoea

Jbobby

Actemra frequency query

Adcal-D3 Caplets

Prednisolone and osteoarthritis

Splitting Pred dose

Hail to King Charles III

Prednisone and blurry vision

Tapering tiredness

ER Doc further messed up my back?

Two Questions

In limbo

Simvastin and muscle pain

Update on 2 am dose

continuing pain and a toothache?

temple pain

Delay taking prednisolone until after blood test carried out?

Lansoprazole and prednisolone

sick day rules again!

Trochanteric Bursitis Diagnosis

Query about ESR please.

PMR seems to have returned

What foods do you eat to keep to low carbs and no sugar, and still keep regular (if you get my drift!)

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