DEXA results: I am waiting for a DEXA scan... - PMRGCAuk

PMRGCAuk

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DEXA results

JanetRosslyn profile image
25 Replies

I am waiting for a DEXA scan appointment. Meanwhile I'm looking at my last results from 2019 and I'm not sure if they're good or bad or borderline. Can anyone clarify for me please?I've been on pred nearly 7 years and have declined bisphosphonates in the past so I'm a bit nervous about what my next scan will show.

2019 results:

lumbar spine-0.9

Left neck femur -0.8

Left total hip -0.7

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JanetRosslyn profile image
JanetRosslyn
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25 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Your last one looks good.

The difference between your measurement and that of a young healthy adult is known as a T score,

The difference between your measurement and that of someone of the same age is known as a Z score.

The World Health Organization (WHO) classifies T scores as follows:

• above -1 SD is normal

• between -1 and -2.5 SD is defined as mildly reduced bone mineral density (BMD) compared with peak bone mass (PBM)

• at or below -2.5 SD is defined as osteoporosis

JanetRosslyn profile image
JanetRosslyn in reply toDorsetLady

Thank you so much. Keeping my fingers crossed that the next one will be okay 🤞

powerwalk profile image
powerwalk in reply toDorsetLady

Thanks DL, Im due really for a Dexa scan. I just cant face it!! My last one was ok, osteopania, but i think one of the markers lumbar region cud be pushed into osteoporosis!!! Need to get the courage up. I do worry constantly about the bones cos i just cant bear having to go on meds for it!!!

PMRpro profile image
PMRproAmbassador in reply topowerwalk

Saying osteopenia is meaningless - it ranges from almost normal to almost osteoporosis and it is a very wide band!

powerwalk profile image
powerwalk in reply toPMRpro

Just checked -2.1 the lowest score. Lumbar. So probably have not a lot of wiggle room if im reading that right?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topowerwalk

not a lot of wriggle room, but osteopenia doesn’t always develop into osteoporosis. It’s not inevitable.

powerwalk profile image
powerwalk in reply toDorsetLady

Fingers crossed!! Tks.

PMRpro profile image
PMRproAmbassador in reply topowerwalk

And spines are often lower than the other readings - what were they?

powerwalk profile image
powerwalk in reply toPMRpro

Oh its really weird, they just put the highest score in that report but im sure ive seen the others just cant find anything. Though a safer margin definitely from that one. Tks pro.

powerwalk profile image
powerwalk

Hopefully nothing for you to worry about. Good luck.

PMRpro profile image
PMRproAmbassador

They are all normal

piglette profile image
piglette

That looks pretty impressive. I would not be worried.

JanetRosslyn profile image
JanetRosslyn

Thank you everyone! I can relax a bit now. Much appreciated x

Sophiestree profile image
Sophiestree

I would say you have excellent bones and am envious. Are you having your second scan at the same place, that is important for comparison. You certainly don't need any medication for bones with those scores.

JanetRosslyn profile image
JanetRosslyn in reply toSophiestree

I had my first and second at the same place and my consultant has requested my third at the same place too.

Maybe my bones were/are strong because I used to do a lot of running (20 to 50 miles a way depending on what races were coming up). Not run since 2016 though.

TrevConway profile image
TrevConway

I’ve been on Pred for about 5-years. During the first year after I was diagnosed with PMR I was still suffering with back pain, but I’d hurt my back in the gym the previous year, which stopped me going immediately. I paid privately to have an MRI scan and I had suffered a spine thoracic compression fracture and the damage was irreversible. This prompted a Dexa scan being organised by my Rheumy. The scan showed a T-score of -3.8 for my spine and -3.4 for my pelvis and hips There was concern, so I agreed to take MTX to help reduce my Pred. It helped and I’ve been on less than 5mg daily for a couple of years. I was taken off Alendronic Acid after the first Dexa scan and given annual in fusions of Zoledronic Acid. My T-scores in September last year had improved to -2.3 pelvis and -2.6 spine. I try to be sensible when it comes to lifting heavy weights, but I still race cars, ride a motorbike and fly an aeroplane. 😊 I hoped this reassures you.

JanetRosslyn profile image
JanetRosslyn in reply toTrevConway

Wow! Thanks, that is reassuring :-)

suenewberry profile image
suenewberry

I have found that supplements have really helped me build my bones back up. Not just calcium and Vit D.

JanetRosslyn profile image
JanetRosslyn in reply tosuenewberry

I've taken Adcal, additional Vit D (on doctor's advice following a low Vit D reading once) and Vit K2 (following advice on this forum and with Consultant's approval).

yogabonnie profile image
yogabonnie

I would kill your your scores!!! keep exercising. keep eating right. keep on enjoying life! Lift light weights if you can. do heel drops. !! They are not bad scores AT ALL!

HeronNS profile image
HeronNS

Those scores are excellent!

 powerwalk My result was -2 but I instituted a fairly strict (but not difficult or unpleasant) natural regimen and a year later my score was -1.6. For over half the intervening year my pred dose was still over or at 5 mg. This was 2015-16. Haven't had a scan since, was due one but ..... covid, and it hardly seems worth braving the medical care system at the moment to have another.

powerwalk profile image
powerwalk in reply toHeronNS

Yes Heron ive read with intense interest your bone posts which i found very interesting and encouraging. I do my very best, take the right supplements, i do walk, though i am limited with the fibro and ME for weights, etc. Hope for the best, as they say. Thank you.

HeronNS profile image
HeronNS in reply topowerwalk

I don't really do weights. I have an exercise to strengthen thigh muscles (for my wonky knees) and I do carry a backpack which sometimes has heavy weight in it when I'm walking home from shopping, but I've really let the weighted vest thing slide. Weight lifting is not in my schedule! I walk a fair amount, and I do a number of physio exrcises for targeted areas of concern, but nothing specifically for bone building. I let being active generally, and taking my Vitamin K2 supplement, do the work for me!

powerwalk profile image
powerwalk in reply toHeronNS

Fingers crossed as they say xx. We can only do our best. Fulltime job😀

HeronNS profile image
HeronNS in reply topowerwalk

Guess it does give us something to do! :D

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