hi there everyone, so since I wrote here I was on 9 mg of prednisone a day I have managed to get down to 5mgs a day, which right now seems the lowest I can get to, although I will try again in two weeks.
I attempted to get to 4:5mgs and boy my body went mad, on the second day at night I was so dizzy and had the worst strangest headache I had to go to bed with two Panadol extras, a Palexia, and an Ativan as I was spinning out. The next day I went straight back to 5mgs then my shoulders and left arm especially was feeling like I was sailing all the way back to the worst place in the beginning of this saga.
it’s calmed down again with little flares but I really hope I can get down to 2/2:5mgs, I’ve put on weight 6 kilos and this is awful I can’t seem to loose it so I really want to come off it!
I have developed a shaky head when I’m drinking anything and my left arm has a tremor, wondering if anyone else here has heard of this?
My Rheumatologist says it will be a slow journey and I have to add more exercise to loose the weight, so I’ll do everything I’m told, the fatigue is another factor of course so I battle on!
Thank you for listening xxx