Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,490 members • 38,458 posts

All posts for December 2021

Happy Christmas everyone!

Just wanting really to express huge thanks for all the invaluable advice received here since PMR struck - and the sympathy when my wife died in November. (We...

Just wanting really to express huge thanks for all the invaluable advice receive...

Hopingsail

•2 years ago

3 Replies

PMR AND HEART

Has any one experienced left side heart pain which happened whilst sleeping? No other pain except feel very tired. Have been reducing. Was down to 9.5 and had...

Has any one experienced left side heart pain which happened whilst sleeping? No...

Artwatercolour

•2 years ago

3 Replies

I have a wish.....

Though I have been absent for a few days....more? I wish all of you a blessed Merry Christmas and ALL of us a year ahead of progress and health and joy. A...

Though I have been absent for a few days....more? I wish all of you a blessed Me...

Grammy80

•2 years ago

38 Replies

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Weighted vests

What sort of weighted best is best. How heavy should they be please

Suffererc

•2 years ago

8 Replies

Effectiveness of COVID vaccine.

Been on pred for nearly 4 years with PMR - tapered from 30 down to 4mgs now. I have been triple jabbed but am wondering how much protection from Covid do I...

Been on pred for nearly 4 years with PMR - tapered from 30 down to 4mgs now. ...

paulus65

•2 years ago

8 Replies

PMR after vaccination

I had my covid booster jab and then developed PMR - is there a connection

Annie1975

•2 years ago

2 Replies

RHEUMAPS Patient Priority Survey Univ of Aberdeen

This is an image which I received in an email today. I thought some here might find interesting. It was a bit of a fiddle to save it as a picture file. It is...

This is an image which I received in an email today. I thought some here might f...

AyJayBass

•2 years ago

7 Replies

Sotrovimab

Like many others, I am pleased to have been offered the option of "new treatments for covid-19" in the event that I test positive. I agree with one respondent...

Like many others, I am pleased to have been offered the option of "new treatment...

Jontie

•2 years ago

22 Replies

Good things today

In the post arrived my very own PCR Test as referred to within the email I received on Monday about the NHS new treatments, so it doesn’t look as if that was...

In the post arrived my very own PCR Test as referred to within the email I rece...

Billiebobdog

•2 years ago

8 Replies

Tapering & correct Calcium & Vit D levels for some bone thinning.

Hi everyone Sorry here I am again. Went up to 9mg a while ago on advice from you. Now 7mg to 6.5mg very slowly. Legs still so stiff & painful. Walking...

Hi everyone Sorry here I am again. Went up to 9mg a while ago on advice from yo...

2Yellowdaffodilsx

•2 years ago

7 Replies

Christmas carbs

I may be asking the obvious here: I have managed to keep my weight down by eating a lot fewer refined carbs and virtually no refined sugar. But my blood sugar...

I may be asking the obvious here: I have managed to keep my weight down by eatin...

Sharitone

•2 years ago

14 Replies

Seasons Greetings

Christmas comes round every year. When it does it should bring cheer. Recently we've all been tested. Covid reared its head and wrested, All our plans for...

Christmas comes round every year. When it does it should bring cheer. Recentl...

cycli

•2 years ago

11 Replies

Dare I hope?

I joined this wonderful forum just over 2 years ago when I was diagnosed with PMR. After the typical roller coaster ride of very slow tapering and then...

I joined this wonderful forum just over 2 years ago when I was diagnosed with PM...

Dilly-B

•2 years ago

9 Replies

Saw my Endo bloke today ..............

Yeah , seems like a good bloke too ............... A lot of questions from him, He said this could be a challenge........... So, the short story is...

Yeah , seems like a good bloke too ............... A lot of questions from him, ...

billydownunder

•2 years ago

6 Replies

Anti Viral Letters

Has anyone from the other home nations had letters regarding anti viral treatment if they get Covid? I am on the at risk list in Wales but have not heard of...

Has anyone from the other home nations had letters regarding anti viral treatmen...

Hollybee21

•2 years ago

7 Replies

It's all my fault

The NHS is at risk of becoming overwhelmed once again and I think it's all my fault. In the last 5 weeks I have had 2 FTF meetings with Rheumy and Nurse...

The NHS is at risk of becoming overwhelmed once again and I think it's all my fa...

Flivoless

•2 years ago

14 Replies

Where are we heading with GCA?

It might be too close to Christmas for any of you wonderful experts to answer, and really no hurry, but I am wondering what the actual objective is with...

It might be too close to Christmas for any of you wonderful experts to answer, ...

Happyexplorer

•2 years ago

11 Replies

Rheumatologist tel consultation

Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversation with him, although he’s quite pleased with my progress re GCA he now wants...

Hi everyone, I spoke to my rheumatologist yesterday and had a very odd conversat...

2013mayo

•2 years ago

15 Replies

Shingles vaccine

Just a quick follow up to say I have now had my first jab of Shingrix. Which according to the nurse and nhs website is now available to us. ( from Sept 21)...

Just a quick follow up to say I have now had my first jab of Shingrix. Which acc...

Alazarin

•2 years ago

3 Replies

Tapering prednisone and memory

Hi, I have GCA. Down to 5 mg from 60 mg. I have been having serious problems with short term memory. A few months ago I had the same problem at 4.5 mg....

Hi, I have GCA. Down to 5 mg from 60 mg. I have been having serious problems wi...

USAGCA

•2 years ago

8 Replies

1 yr today

Hi all, this time last yr, I was diagnosed and have been on pred 1 yr today started on 15mg now down to 5mg. It been a yr of ups and downs, (more downs than...

Hi all, this time last yr, I was diagnosed and have been on pred 1 yr today sta...

Hidden

•2 years ago

24 Replies

Covid antibodies test

A friend of mine, who like us is immunocompromised from pred use, has just had an antibodies test to see just how effective her vaccinations have been. She has...

A friend of mine, who like us is immunocompromised from pred use, has just had a...

scats

•2 years ago

14 Replies

Introducing my brief journey in life and experience with PMR

Hi Everyone, I am a new member and it’s a great to be part of the community .I am 61years old and from the Far East.This is my brief journey in life and...

Hi Everyone, I am a new member and it’s a great to be part of the community .I ...

Hidden

•2 years ago

3 Replies

Nhs email re PCR test etc.

A friend believes her email is a scam.. I know we get scams for all sorts but surely this isn't one. Wishing you all a happy Christmas/holiday season. Marlene...

A friend believes her email is a scam.. I know we get scams for all sorts but s...

Marlenec

•2 years ago

28 Replies

Tapering

In my experience (pmr for 4 years since age 56!) you are spot on trying slow half meg reductions at a time as the medic suggestion was too fast for me. I am...

In my experience (pmr for 4 years since age 56!) you are spot on trying slow hal...

Enemyofthestate

•2 years ago

Be the first to reply

Old posts

Sorry how good I see my old posts

Uglow

•2 years ago

1 Reply

Tummy upset

Hello lovely people. How likely is it that Prednisolone is causing the diarrhoea now that I am on 7 a day and didn't have any problem in the beginning on 60...

Hello lovely people. How likely is it that Prednisolone is causing the diarrhoe...

Pippah45

•2 years ago

18 Replies

NHS email

Hi all, has anyone else had an email from NHS ? They are sending me a home PCR test and if I should get covid I am eligible for the new medication which, when...

Hi all, has anyone else had an email from NHS ? They are sending me a home PCR ...

jules1955

•2 years ago

12 Replies

Hungover dizzy tiredness!

The hardest thing for me to deal with has been the feeling hungover dizzy head feeling and tiredness. If I could control this I’d cope better. Hate that I...

The hardest thing for me to deal with has been the feeling hungover dizzy head f...

Uglow

•2 years ago

27 Replies

Sudden onset pmr

I wonder how many of us sudden onset pmr folks see a direct connect between Covid Vax and onset? My pain came in day 14 after 2nd Moderna last feb I’m...

I wonder how many of us sudden onset pmr folks see a direct connect between Covi...

Microbe1943

•2 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2021

Happy Christmas everyone!

PMR AND HEART

I have a wish.....

Weighted vests

Effectiveness of COVID vaccine.

PMR after vaccination

RHEUMAPS Patient Priority Survey Univ of Aberdeen

Sotrovimab

Good things today

Tapering & correct Calcium & Vit D levels for some bone thinning.

Christmas carbs

Seasons Greetings

Dare I hope?

Saw my Endo bloke today ..............

Anti Viral Letters

It's all my fault

Where are we heading with GCA?

Rheumatologist tel consultation

Shingles vaccine

Tapering prednisone and memory

1 yr today

Covid antibodies test

Introducing my brief journey in life and experience with PMR

Nhs email re PCR test etc.

Tapering

Old posts

Tummy upset

NHS email

Hungover dizzy tiredness!

Sudden onset pmr

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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