Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,294 members • 38,018 posts

All posts for January 2021

Do you take extra pred in the day ?

I do, I'm not managing this well, I used to be and still want to be active. I can manage on about 10mg a day if I am sedentary, but if I am busy from work, or...

I do, I'm not managing this well, I used to be and still want to be active. I ca...

MidlandTriumph

•3 years ago

4 Replies

Should I take Prednisone

I am 56 yrs old and have only just been diagnosed with PMR in the last couple of months . My bloods show inflammation but at present my GP says it’s not to...

I am 56 yrs old and have only just been diagnosed with PMR in the last couple o...

Mutzy

•3 years ago

14 Replies

Hot flushes

Hi all hope yr all well and staying safe. I'm about 2 wks on 12.5 and last few days have been getting hot flushes most of the day on and off just in face and...

Hi all hope yr all well and staying safe. I'm about 2 wks on 12.5 and last few d...

Hidden

•3 years ago

18 Replies

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My Vaccine Worries

Your thoughts, advice and perhaps your sympathy, would be greatly appreciated please. I'm sure my invitation to have the vaccine is imminent and I'm worried....

Your thoughts, advice and perhaps your sympathy, would be greatly appreciated pl...

joyce69

•3 years ago

41 Replies

This may sound crazy.....

....but it works for me. All in all, I feel pretty darn good but with the virus and all, I was having trouble carving out some time to even work at things I...

....but it works for me. All in all, I feel pretty darn good but with the virus...

Grammy80

•3 years ago

43 Replies

Fatigue

I have noticed quite a few postings on Fatigue which does not surprise me with all that has and is still going on. When diagnosed with GCA, I found the...

I have noticed quite a few postings on Fatigue which does not surprise me with a...

jinasc

•3 years ago

3 Replies

Low dose pred effects?

Hi everyone! I haven't posted for a while but now have a question! I have been tapering pred and now am at 7.5. I have to stay at this level as I am having a...

Hi everyone! I haven't posted for a while but now have a question! I have been t...

Cinka

•3 years ago

15 Replies

Fatigue

Just lately there seem to be more postings on fatigue. I am not surprised as the past months have made it difficult for us in so many ways. I was referred to...

Just lately there seem to be more postings on fatigue. I am not surprised as th...

jinasc

•3 years ago

8 Replies

Hi, I’m new here, and having trouble weaning off prednisone

Hello! I’ve been on prednisone for almost 2 years for an indefinite diagnosis: the symptoms are very like Polymyalgia rheumatica, which I had several years...

Hello! I’ve been on prednisone for almost 2 years for an indefinite diagnosis: t...

Harpgirl

•3 years ago

16 Replies

Something good for pain between shoulders

PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera...

PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back bel...

Daffodilia

•3 years ago

2 Replies

Update on GCA ‘flare’

I posted about 2 weeks ago to ask if it was usual to experience GCA symptoms while on treatment. Received good advice as usual and spoke to my GP who arranged...

I posted about 2 weeks ago to ask if it was usual to experience GCA symptoms whi...

Plantmad

•3 years ago

13 Replies

Beware of vaccination scams!

Please be very aware that there are several scams on email and text pretending to be from an official source inviting people to come for a vaccination. We've...

Please be very aware that there are several scams on email and text pretending t...

Fran_Benson

Partner•3 years ago

19 Replies

Balance &/or strength issues

Morning all. I was reading a thread earlier about balance and strength issues. I’m sure loads of us have been affected with one or other of these, even if we...

Morning all. I was reading a thread earlier about balance and strength issues. I...

Nerak12

•3 years ago

8 Replies

Latest phone appointment with Rheumy Nurse

I had a phone call from my Rheumy Nurse two days ago, when she asked me how I was doing and I said I was now tapering to 9 mg, after a week long flare just...

I had a phone call from my Rheumy Nurse two days ago, when she asked me how I wa...

Theziggy

•3 years ago

6 Replies

Topical treatment for swelling of vocal folds

Hi all, We all know about the inflammation and swelling we have with pmr and how steroid medication helps this ( amongst other symptoms). Anybody figured out a...

Hi all, We all know about the inflammation and swelling we have with pmr and how...

Kaaswinkel

•3 years ago

2 Replies

Lansoprazole and Prednisolone

Can you tell me if I should take Lansoprazole before Pred or after Pred? Instructions on the box doesn’t say but one of you advisers said I should do so, to...

Can you tell me if I should take Lansoprazole before Pred or after Pred? Instr...

Silver-Babe

•3 years ago

6 Replies

COVID Vaccine

Hi all. Just thought I’d give people hope. I’m 63 and live in Hertfordshire. PMR is fortunately my only current health problem. Been on pred 3 years & started...

Hi all. Just thought I’d give people hope. I’m 63 and live in Hertfordshire. PMR...

Nerak12

•3 years ago

11 Replies

Having the vaccine - real life stories

I thought people might like to read thse:...

PMRpro

Ambassador•3 years ago

17 Replies

Do I need to take Lansoprazole & Fosavance

Can anyone help me please 🙏 I have been prescribed to take once a week ; Fosavance 70mg calcium tablet 1x 15mg lansoprazole in the morning before I take my...

Can anyone help me please 🙏 I have been prescribed to take once a week ; Fosava...

Maggie1313

•3 years ago

32 Replies

Covid vaccine

Hi everyone, Thank goodness for all of your help. I know if all else fails to come here to ask a question. Well I hope I’m allowed to ask this, I was...

Hi everyone, Thank goodness for all of your help. I know if all else fails to co...

Whatawonderfullife

•3 years ago

11 Replies

12 week 800 plan ends

Since there is a post on here regarding Low Carbs I thought I'd check in. We completed the 12 week plan, I have lost 14kg and am 1 kg from my initial target....

Since there is a post on here regarding Low Carbs I thought I'd check in. We co...

IdasMum

•3 years ago

52 Replies

Piriformis pain

Good afternoon all. I have a query re occasional piriformis pain in my right buttock. I have had this on & off since being diagnosed with PMR & GCA in Nov...

Good afternoon all. I have a query re occasional piriformis pain in my right but...

Lyndaki

•3 years ago

32 Replies

Ears

Hi.i am still having problems with my ears,and getting very upset and worried,dont know what to do.i dont like being a pain by keep ringing drs.or writing on...

Hi.i am still having problems with my ears,and getting very upset and worried,do...

Flosy

•3 years ago

7 Replies

Blood tests?

Can you tell me how often I should be having blood tests, and should I be able to just phone my GP practice to ask for them if I feel I have a flare? I have...

Can you tell me how often I should be having blood tests, and should I be able t...

Margot27

•3 years ago

18 Replies

Graves eye disease and GCA?

Has anyone been diagnosed with thyroid eye disease in addition to GCA? I had RAI for Graves in 1993- Dx with suspected GCA after dx of PMR 2019.No biopsy.

Has anyone been diagnosed with thyroid eye disease in addition to GCA? I had R...

giraffegal

•3 years ago

2 Replies

Covid and recent diagnosis/treatment of GCA

Hello I have just joined....I have just been diagnosed with PMR in August 2020. Managed to go back to work and reduce steroids down to 14mgNow on prednislone...

Hello I have just joined....I have just been diagnosed with PMR in August 2020. ...

Indigo27

•3 years ago

12 Replies

Up-to-date information about vaccines, reactions and allergies.

Brought to my notice this morning - well written, factual and non-sensationalist:...

Brought to my notice this morning - well written, factual and non-sensationalist...

PMRpro

Ambassador•3 years ago

24 Replies

PMR and Covid vaccine

I had PMR diagnosed 18 years ago and was treated with prednisolone for just over 4 years with good results. As it is a known over reactive immune system, I am...

I had PMR diagnosed 18 years ago and was treated with prednisolone for just over...

XLSCSinger

•3 years ago

19 Replies

Anti-inflammatory diet

I am relatively new to this site and think it is great! I read a couple of posts every day with great interest. I was diagnosed with PMR in August 2020 after...

I am relatively new to this site and think it is great! I read a couple of post...

LMali

•3 years ago

8 Replies

Help! Red Flush On Shins/Numbness In Toes? Tapering Fatigue ???

Hello All. Enjoy getting my daily email, very informative. I'm tapering, now at 5mg. Having some pain and stiffness in fingers, light pain in shoulder that...

Hello All. Enjoy getting my daily email, very informative. I'm tapering, now a...

SARose

•3 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2021

Do you take extra pred in the day ?

Should I take Prednisone

Hot flushes

My Vaccine Worries

This may sound crazy.....

Fatigue

Low dose pred effects?

Fatigue

Hi, I’m new here, and having trouble weaning off prednisone

Something good for pain between shoulders

Update on GCA ‘flare’

Beware of vaccination scams!

Balance &/or strength issues

Latest phone appointment with Rheumy Nurse

Topical treatment for swelling of vocal folds

Lansoprazole and Prednisolone

COVID Vaccine

Having the vaccine - real life stories

Do I need to take Lansoprazole & Fosavance

Covid vaccine

12 week 800 plan ends

Piriformis pain

Ears

Blood tests?

Graves eye disease and GCA?

Covid and recent diagnosis/treatment of GCA

Up-to-date information about vaccines, reactions and allergies.

PMR and Covid vaccine

Anti-inflammatory diet

Help! Red Flush On Shins/Numbness In Toes? Tapering Fatigue ???

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