Latest phone appointment with Rheumy Nurse - PMRGCAuk

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Latest phone appointment with Rheumy Nurse

Theziggy profile image
6 Replies

I had a phone call from my Rheumy Nurse two days ago, when she asked me how I was doing and I said I was now tapering to 9 mg, after a week long flare just before Christmas. After a bit more conversation and questions she said that she was going to put me on leflunomide. Phone call ends.

She phoned me back about half and hour later to say she had spoken to the Rheumy and that he had said not to add leflunomide and to extend my tapering to a 2 monthly taper per mg.

A good result I think.

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Theziggy profile image
Theziggy
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6 Replies
MrsNails profile image
MrsNails

Hi Ziggy

That’s very positive, no need to add in additional meds this time if not absolutely necessary.

The two monthly taper per 1mg sounds good but if you struggle you could drop 0.5mg per month same result but easier on the body!

Keep Safe & Well

MrsN

Theziggy profile image
Theziggy in reply to MrsNails

Great idea Angela, plus I get to use the pill cutter I bought months ago and have never used!

Highlandtiger profile image
Highlandtiger in reply to Theziggy

It’s amazing what counts as excitement in our lives these days isn’t it! 😂

PMRpro profile image
PMRproAmbassador

Excellent - glad your rheumy is more sensible than the nurse!! Just as well she had to ask ...

SheffieldJane profile image
SheffieldJane

Whew! Narrow squeak.

Theziggy profile image
Theziggy

This is the same Rheumy that I had to convince him that he had misdiagnosed me with PMR and that I actually had Palindromic Rheumatism. He was very impressed with my argument and shook my hand (pre Covid days)

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