Fatigue

[jinasc]

I have noticed quite a few postings on Fatigue which does not surprise me with all that has and is still going on.

When diagnosed with GCA, I found the hardest part was learning to listen to my body and try to deal with fatigue. Like most newcomers, I thought I could do what I liked on the 'good' days and then realised that the next few days were 'payback bigtime'.

All those long years ago PMRpro recommended I read this and I just thought it might help some of you.

"The Spoon Theory' by Christine Miserandino @ butyoudontlooksick.com helped me to understand and how to manage fatigue a bit better than I was doing.

I had GCA for 5 years and in remission this is my 12th year.

BTW I do have a copy of a fatigued male, but can only post one.

[Coffeebeans]

This is a great theory, thankyou.

My trouble is I have no idea how many spoons I have on any given day or week. The goalposts change so often!

[AliDeJ]

Do get your ferritin levels checked. Not just haemoglobin-that can be within normal range but your iron store can still be depleted . I feel so much better now that I am taking iron supplements.

[Spanky2019]

Yes, it's still constant battle between what my mind wants to do and what my body can do. Pmrpro has had to straighten me out many times the past two years. Never really knew what fatigue felt l ok e until GCA dx & tapering prednisone dose. I've also found I'm very much effected by stress and the big whacks life dishes out. Staying present at least for me is better The complete isolation in this rural area we live was a bane, but with the pandemic and need for distancing it's become a blessing. Though I was building houses and on top of roofs two years ago; with difficult mobility, fatigue and weakness I'm more able to accept doing nothing. Best wishes to you and hope you find ways to cope with the fatigue.