Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,757 members • 39,024 posts

All posts for May 2020

Losing weight after (and during) Prednisolone

I thought you might be interested in looking at an organisation that helps establish healthy ways of eating and of losing weight. It's based in Northern...

I thought you might be interested in looking at an organisation that helps estab...

43tripandskip

•4 years ago

26 Replies

This is my 2nd Off Piste: Sunday.......

This lifts my spirits up when looking out of the window and then opening the door, the perfume and walking along the front path. My neighbour took the photo...

This lifts my spirits up when looking out of the window and then opening the doo...

jinasc

•4 years ago

28 Replies

Arm

Thanks to all who responded - seems I have choice - arthritis frozen shoulder rotator cuff - taking paracetamol before get up ice pack after lunch and freeze...

Thanks to all who responded - seems I have choice - arthritis frozen shoulder ro...

Daffodilia

•4 years ago

8 Replies

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Latest taper

Hi , I have found the preds tapering process has been quite difficult, mainly massive withdrawal pains (I think), all of the way down from 20mg to 10mg each...

Hi , I have found the preds tapering process has been quite difficult, mainly ma...

Leepeelee

•4 years ago

10 Replies

INCREASING PRED!

So after 2 years and 6 months I have been at 2 mg for 3 months or so and went to 1.75/1.5 for a few weeks and it hurt once again so I went to 2 for the last...

So after 2 years and 6 months I have been at 2 mg for 3 months or so and went to...

yogabonnie

•4 years ago

43 Replies

Cataract surgery

Hi to all, Wondering if anyone has had to have cataract surgery. I have RA it seems fairly managed and PMR on2 mg of Pred. On plaquenil as well. Hoping my...

Hi to all, Wondering if anyone has had to have cataract surgery. I have RA it s...

Leilagirl

•4 years ago

26 Replies

Reducing Pred

My GP has me reducing my dose from 15mgs down to 2.5mgs over a six week period and now I have pain in my back around the area of my kidneys. Can this pain be...

My GP has me reducing my dose from 15mgs down to 2.5mgs over a six week period a...

PMRNewcomer

•4 years ago

22 Replies

Help needed: a question for gardeners

I have been waiting for weeks for 'Off-Piste' Day. I don't know the name and all my other contacts cannot recognise it. Spent an age on the net as...

I have been waiting for weeks for 'Off-Piste' Day. I don't know the name and a...

jinasc

•4 years ago

21 Replies

Arm

I have a new pain in right arm/shoulder with restricted movement reaching back - it is constant (not fading during day like PMR aches and pains) and v bad in...

I have a new pain in right arm/shoulder with restricted movement reaching back -...

Daffodilia

•4 years ago

10 Replies

Off piste day Monday 25th May

As its nearly bank holiday we are happy to announce another off piste day on monday for everyone. Feel free to post your photos and chat about all things not...

As its nearly bank holiday we are happy to announce another off piste day on mon...

Yellowbluebell

•4 years ago

8 Replies

PRM/GCA Arthritis

I tapered Prednisone 60mg to zero after 4 yrs for PMR/GCA on 2/13/20. On 3/13/20, I began social isolating alone at 78yrs. My knees ached from arthritis...

I tapered Prednisone 60mg to zero after 4 yrs for PMR/GCA on 2/13/20. On 3/13/20...

Mgeorge

•4 years ago

17 Replies

Not sure what to do!

I last saw my Rheumy in January. She was very concerned because I hadn't done as instructed which was to reduce the pred dose regardless. I seemed to be stuck...

I last saw my Rheumy in January. She was very concerned because I hadn't done as...

spiritofhilary

•4 years ago

20 Replies

Doctor wants me at 10mg by mid June

My Rheumatologist wants me to taper from 13-10mg by mid June. I’m doing the dead slow method now to get to 12.5mg. I was planning on staying at that from May...

My Rheumatologist wants me to taper from 13-10mg by mid June. I’m doing the dead...

singingloud

•4 years ago

9 Replies

Thoughts after recovering from C-19

Thoughts after C-19 Having had a very 'close shave' with C-19, I hope that a few observations would be of general interest. I was very fortunate that my GP...

Thoughts after C-19 Having had a very 'close shave' with C-19, I hope that a fe...

petros31

•4 years ago

22 Replies

Stopping prednisone?

68/m, PMR diagnosed 7 moths ago, started prednisone 20-25 mg 7 mths ago, now at 2.5 mg prednisone for 1 month. Should I stop it or try to taper to 1.25 mg ?...

68/m, PMR diagnosed 7 moths ago, started prednisone 20-25 mg 7 mths ago, now at ...

Pmrconfusion

•4 years ago

13 Replies

Prednisone

Is it ok to take 20 mg of Prednisone and just stop? How long does it take to get hooked?

Is it ok to take 20 mg of Prednisone and just stop? How long does it take to get...

kenb

•4 years ago

9 Replies

Tingling toes.

Hi everyone, first post. I've been taking 15 mg of Pred since diagnosis of PMR since last October. I have recently, one month, started to taper down to 10mg....

Hi everyone, first post. I've been taking 15 mg of Pred since diagnosis of PMR s...

gard3n1ng5

•4 years ago

13 Replies

Ulcers

I have developed ulcers and severe gastritis. I do not know if it is from the Covid situation, or the prednisone PMR/GCA, but I have had gastritis for a long...

I have developed ulcers and severe gastritis. I do not know if it is from the C...

phebamom

•4 years ago

16 Replies

Hair Loss due to PMR

I have been taking collagen & iron in an attempt to slow down the hair falling out, but doesn't seem to be helping; I've been doing this for about 3 months...

I have been taking collagen & iron in an attempt to slow down the hair falling o...

remission

•4 years ago

13 Replies

Splitting pred dose

After reading a lot of you seem to be doing a lot better by splitting your dose to breakfast and bedtime, I’m going to give this a try. I’m in a lot of pain,...

After reading a lot of you seem to be doing a lot better by splitting your dose ...

Hollieby

•4 years ago

10 Replies

First taper

Just done my first taper after 3 weeks from 15 to 12.5. Is there any usual point you start to feel any reaction? 1 day or 1 week? Feeling slightly nervous as I...

Just done my first taper after 3 weeks from 15 to 12.5. Is there any usual point...

Gunflash

•4 years ago

18 Replies

Flare

I had tapered to 6 mg. taken since December. Then pain increased and Dr suggested I go to 10. Instant relief but not 100%. She wants me to stay on 10 mg...

I had tapered to 6 mg. taken since December. Then pain increased and Dr sugges...

Suffererc

•4 years ago

7 Replies

Polymyalgia Recovery

Hello. Does anyone have info on PMR recovery. I tapered off Prednisolone a year ago, after 2 Years with PMR, and am fairly symptom free. I do still get...

Hello. Does anyone have info on PMR recovery. I tapered off Prednisolone a year...

Downbytheriverside

•4 years ago

9 Replies

GCA symptoms return, update on chest pain, Methotrexate added to Pred

Hello everyone, I hope you are are feeling as well as you can be. I had a hospital appointment yesterday as having slowly tapered in 2.5 mg drops from 30 mg to...

Hello everyone, I hope you are are feeling as well as you can be. I had a hospit...

Horsewhisper

•4 years ago

28 Replies

I am so grateful to you people

Thank you to all of you for responding to my request for advice,this whole thing is such a learning curve it really does take time and the kind of help/advice...

Thank you to all of you for responding to my request for advice,this whole thing...

yorkieme

•4 years ago

13 Replies

Unsure what to do

I’ve had a return of arm and butt pain. I’ve been using the DSNS method of tapering and have over many months gone from 7mg of Prednisone to 4mg just this...

I’ve had a return of arm and butt pain. I’ve been using the DSNS method of taper...

Blackcatlover

•4 years ago

32 Replies

Calendar blanks for tapering, if needed.

This may be old news to many but just in case~~ https://print-a-calendar.com/may-2020 You can advance and print whatever months you want. This is a link where...

This may be old news to many but just in case~~ https://print-a-calendar.com/may...

Grammy80

•4 years ago

28 Replies

Exciting times thanks to Covid: Go to the Hay on Wye literary festival without the police saying no!

http://www.hayfestival.com/home More things to do while in lockdown: The famous Hay on Wye festival clashed with the Covid Lockdown on the day they were to...

http://www.hayfestival.com/home More things to do while in lockdown: The famous ...

PMRpro

Ambassador•4 years ago

3 Replies

Regular blood tests are essential

I am presently on a real downer. About a month ago I was told I had lymphoma. Throughout my journey I have had at least one blood test each month. My last one...

I am presently on a real downer. About a month ago I was told I had lymphoma. Th...

shazstep

•4 years ago

6 Replies

Blood shot eyes

I have PMR. Anyone experience blood shot eyes and now some yellow as well? I’m on 9 prednisone weaning down 1 each month

I have PMR. Anyone experience blood shot eyes and now some yellow as well? I’m...

Artwatercolour

•4 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

Losing weight after (and during) Prednisolone

This is my 2nd Off Piste: Sunday.......

Arm

Latest taper

INCREASING PRED!

Cataract surgery

Reducing Pred

Help needed: a question for gardeners

Arm

Off piste day Monday 25th May

PRM/GCA Arthritis

Not sure what to do!

Doctor wants me at 10mg by mid June

Thoughts after recovering from C-19

Stopping prednisone?

Prednisone

Tingling toes.

Ulcers

Hair Loss due to PMR

Splitting pred dose

First taper

Flare

Polymyalgia Recovery

GCA symptoms return, update on chest pain, Methotrexate added to Pred

I am so grateful to you people

Unsure what to do

Calendar blanks for tapering, if needed.

Exciting times thanks to Covid: Go to the Hay on Wye literary festival without the police saying no!

Regular blood tests are essential

Blood shot eyes

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