Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,305 members • 38,042 posts

All posts for May 2020

Help on clarification, please.

Very pleased to have found this site and also read Kate Gilbert’s excellent book in record time. But I’m confused! Many people with PMR say that they are...

Very pleased to have found this site and also read Kate Gilbert’s excellent book...

ChinaWuntoo

•4 years ago

10 Replies

Availability of 1mg pred

I've requested 1mg Prednisolone tablets from my GP a couple of times, as I'm tapering (currently 2.5mg/day from 5mg as per Prof. Dasgupta instructions). I have...

I've requested 1mg Prednisolone tablets from my GP a couple of times, as I'm tap...

Parami

•4 years ago

30 Replies

Returning to higher dose after long taper schedule for flareup

What dose to go back to when PMR flares at low dose? Several members responded to "risk factors" stating they flared when tapered down to very low dose pred....

What dose to go back to when PMR flares at low dose? Several members responded ...

AdoptMeow

•4 years ago

4 Replies

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Bakers cysy

Hi. Has anyone had a bakers cyst possibly caused by PMR

Scotty7

•4 years ago

19 Replies

Itching blisters on my legs

One month before my PMR onset I got these itching, aching blisters on the back of my ties. Looks like herpes but they do not go away without hydrocortisone....

One month before my PMR onset I got these itching, aching blisters on the back o...

Pirnilla

•4 years ago

4 Replies

Confused re shielding

I have read had the letter from NHS with the chart about levels of shielding, I'm uncertain which category I come under. I've had PMR for 4 years, I have been...

I have read had the letter from NHS with the chart about levels of shielding, I'...

Jancorb

•4 years ago

60 Replies

Update

Just been told my last post is being deleted. My bad.... it is good that it is because two dear friends here are all worried about me so that post did not go...

Just been told my last post is being deleted. My bad.... it is good that it is ...

Hidden

•4 years ago

20 Replies

Help with neuropthy

Hello it's me again. One of the worst things about GCA is the vast number of add ons sent to annoy. Along with glaucoma, diabetes and of course fatigue is...

Hello it's me again. One of the worst things about GCA is the vast number of add...

Cobnut

•4 years ago

29 Replies

Am i in a relapse?

Iam under alot of stress from selling house and i have more pain now.Have to pack and its been difficult.Was on 7mg of prednisone then upped it to 10 last week...

Iam under alot of stress from selling house and i have more pain now.Have to pac...

Hunter134

•4 years ago

12 Replies

Tired and weak

For the last two months I have felt very tired and weak. I’m tired getting up in the morning and I can’t wait to hit the bed at 8:00pm. Listening to all the...

For the last two months I have felt very tired and weak. I’m tired getting up in...

Blackcatlover

•4 years ago

24 Replies

More advice please

I am presently on 30mg/day Pred' this is day eight after moving up from 20mg on G.P.advice. Although the symptoms returned due to me dropping too...

I am presently on 30mg/day Pred' this is day eight after moving up from 20mg on ...

yorkieme

•4 years ago

15 Replies

Helping to stay sane in lockdown

Hello, Since being in lockdown, we’ve really come to appreciate many of our national institutions a lot more ( in addition to the real heroes of course - NHS,...

Hello, Since being in lockdown, we’ve really come to appreciate many of our nati...

Suzita76

•4 years ago

3 Replies

Jogging

Hi Over the last 6 1/2 years I have been in so much pain in my shoulders neck and hips more so if I try any hard exercise, however the last 18 months I have...

Hi Over the last 6 1/2 years I have been in so much pain in my shoulders neck a...

carolBF

•4 years ago

20 Replies

Hair loss

Has anyone else have had hair loss on predisone?

greenbayroad

•4 years ago

16 Replies

Can this be GCA happening to me after 1 1/2 yrs. of PMR?

getting concerned re Giant Cell A. Have had PMR 2 years and am down to 9 mg. prednisone, all going fairly well, then about 1 month ago my vision began to...

getting concerned re Giant Cell A. Have had PMR 2 years and am down to 9 mg. p...

composition

•4 years ago

17 Replies

Recent GCA diagnosis and now constant left sided chest pain

Hello everyone, I posted here about my GCA diagnosis about a month ago and received some very helpful advice and guidance. I’m wondering if anyone else has...

Hello everyone, I posted here about my GCA diagnosis about a month ago and recei...

Horsewhisper

•4 years ago

11 Replies

Fatigue

Diagnosed in October with GCA started on 40 gradually went down to 20 rebounded horrible but what really concerns me is the chronic fatigue and exhaustion but...

Diagnosed in October with GCA started on 40 gradually went down to 20 rebounded ...

sara44

•4 years ago

16 Replies

Tapering struggles

I’m new here. On steroids for 2 yrs now. Struggling with getting down past 5mg. Any tips?

I’m new here. On steroids for 2 yrs now. Struggling with getting down past 5mg. ...

Alazarin

•4 years ago

6 Replies

Using Zoom for PMRGCAug meetings

I recently received an invitation to join in a regional meeting for PMRGCAuk in London using Zoom. I replied to the email saying I was interested, mistakenly...

I recently received an invitation to join in a regional meeting for PMRGCAuk in ...

43tripandskip

•4 years ago

6 Replies

NHS Letter format

Hi everyone, just wondering if the letter they received have mentioned explicitly whether they are in shielding... The one I received had a scoring grid and...

Hi everyone, just wondering if the letter they received have mentioned explicitl...

Paramount97

•4 years ago

26 Replies

Stomach still upset on gastro resistant prednisolone

I posted a week or so ago that I was getting a really upset stomach churning away but not burning like acid. I got the gastro resistant pred as I have...

I posted a week or so ago that I was getting a really upset stomach churning awa...

Gaz227

•4 years ago

44 Replies

Another big thank you for help received

Just wanted to post this in order to acknowledge the time and effort given by jinask,and Tto express my gratitude. I know you guys do this day in day out but a...

Just wanted to post this in order to acknowledge the time and effort given by ji...

yorkieme

•4 years ago

18 Replies

risk factors.

Hi. I have had PMR for 5 years and been on prednisolone for the same amount of time. I am now on 2 mg but unable to get below. I am 59 so got it fairly young...

Hi. I have had PMR for 5 years and been on prednisolone for the same amount of t...

Jennykk

•4 years ago

28 Replies

Tocilizumab

I have GCA and was fortunate to have one year of Tocilizumab as per NICE guidelines. I was wondering if anyone would like to share their experience? Thank you

I have GCA and was fortunate to have one year of Tocilizumab as per NICE guideli...

DAW28

•4 years ago

35 Replies

Shingles vax

I am nearly at 4 years with pmr and have been on various doses of prednisone and still cant go below 5mg without gout like symptoms. I became ill with 2 months...

I am nearly at 4 years with pmr and have been on various doses of prednisone and...

Babbaganoush

•4 years ago

18 Replies

So sad

Continuing to take 2 steps forward one step back- think this is common for many of us. The GCA, osteoporosis, gastrointestinal problems and now extremely...

Continuing to take 2 steps forward one step back- think this is common for many ...

Spanky2019

•4 years ago

19 Replies

PLEASE CHECK WHEN POSTS were CREATED before you reply. Some are several years old and you may not get a reply......

Hi all, healthunlocked have made some changes to the structure of the site recently. For some reason we now get older messages popping up more often, sometimes...

Hi all, healthunlocked have made some changes to the structure of the site recen...

Hidden

•4 years ago

21 Replies

Can GCA flare be triggered by a fall?

Good morning. I have been on Pred since my GCA diagnosis in January. I have been tapering down and last Saturday I reduced from 12.5mg to 10mg. Unfortunately...

Good morning. I have been on Pred since my GCA diagnosis in January. I have been...

Phoenix51

•4 years ago

7 Replies

I have a question, GCA type😎🤔😏

....and a little bit of 😔 I'm on 6 mg of Medrol per day, I was still having some intermittent jaw and temple discomfort so my rheumatologist sent me for...

....and a little bit of 😔 I'm on 6 mg of Medrol per day, I was still having som...

Grammy80

•4 years ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

Help on clarification, please.

Availability of 1mg pred

Returning to higher dose after long taper schedule for flareup

Bakers cysy

Itching blisters on my legs

Confused re shielding

Update

Help with neuropthy

Am i in a relapse?

Tired and weak

More advice please

Helping to stay sane in lockdown

Jogging

Hair loss

Can this be GCA happening to me after 1 1/2 yrs. of PMR?

Recent GCA diagnosis and now constant left sided chest pain

Fatigue

Tapering struggles

Using Zoom for PMRGCAug meetings

NHS Letter format

Stomach still upset on gastro resistant prednisolone

Another big thank you for help received

risk factors.

Tocilizumab

Shingles vax

So sad

PLEASE CHECK WHEN POSTS were CREATED before you reply. Some are several years old and you may not get a reply......

Can GCA flare be triggered by a fall?

I have a question, GCA type😎🤔😏

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