Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for May 2020

Advice if possible please

Last night I went to bed 99% free of pain in my shoulders,arms wrists and hands and so much so that I didn't bother taking Codeine which I usually do,this...

Last night I went to bed 99% free of pain in my shoulders,arms wrists and hands ...

yorkieme

•4 years ago

15 Replies

Just been diagnosed with GCA - some help please

I have had PMR since November 2018 and had been on 5mg Pred for three weeks when the telltale pains in shoulder and neck returned. Was deciding whether to...

I have had PMR since November 2018 and had been on 5mg Pred for three weeks when...

fairy100

•4 years ago

26 Replies

PMR creeping back on 1 mg

My rheumatologist advised me to reduce to 1 mg from 2 mg for my PMR because of the Covid pandemic. Six weeks in to the new dose, I am Experiencing more pain...

My rheumatologist advised me to reduce to 1 mg from 2 mg for my PMR because of t...

Bobbikins

•4 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Rollators!

Without going into the oft heard problems of tapering too much - you would think I should know them, but still manage to overshoot and do silly things!!! - I’m...

Without going into the oft heard problems of tapering too much - you would think...

Whatgrange

•4 years ago

6 Replies

Doing gardening and noticed leg bleeding

It bled from knee down my leg in 2 rows and into my shoe and sock. It was quite a bit of blood. Didnt feel a thing. Neighbor noticed it. I went in the house to...

It bled from knee down my leg in 2 rows and into my shoe and sock. It was quite ...

Paperroses

•4 years ago

5 Replies

Methotrexate & Covid

I am sure this came up when we were discussing Covid in the early days. I have been talking to a lady today who has PMR & Fibro & is wondering if Methotrexate...

I am sure this came up when we were discussing Covid in the early days. I have ...

Pollyanna16

•4 years ago

18 Replies

Does anyone take Prednisolone in the evening?

I am new here. Doctor changed me from evening to mornings. I now wake in pain.

Dambusters

•4 years ago

26 Replies

A Rough Guide to PMR GCA uk history : so far May 2020 - by a FOUNDING member.

Where the Vikings crossed from the North Sea into the Atlantic. Not specifically aimed at anyone in particular I just want you all to know that progress is...

Where the Vikings crossed from the North Sea into the Atlantic. Not specifical...

jinasc

•4 years ago

97 Replies

Massage Therapy

Has anyone received PMR symptom relief from a licensed massage therapist?

Macadoo

•4 years ago

18 Replies

Tapering UK style.....slowly~!

I've been trying to taper my prednisolone and take an injection of Actemra each week. Right now 8 mg seems to be my sweet spot and my rheumy here in the...

I've been trying to taper my prednisolone and take an injection of Actemra each ...

Grammy80

•4 years ago

17 Replies

Pill Box that Tells You when it was Last Opened

I thought this was a good idea

piglette

•4 years ago

4 Replies

Moderators and contributors

Just checking in to let everyone know that I am keeping up to speed with this valuable source of information and advice,in particular with those who have...

Just checking in to let everyone know that I am keeping up to speed with this va...

yorkieme

•4 years ago

5 Replies

'SHRAPNEL'

Years ago when small coins where introduced, we called it 'shrapnel' ie 1p, 2p and 5p. A lady who is a pensioner joined a PMR GCA support group, she did...

Years ago when small coins where introduced, we called it 'shrapnel' ie 1p, 2...

jinasc

•4 years ago

38 Replies

Pred dose mistake

Hi, I am currently on 10mg of preds per day, I take 5mg in the morning and 5mg in the evening. I've been using up a couple of boxes of 2.5mg tablets as that's...

Hi, I am currently on 10mg of preds per day, I take 5mg in the morning and 5mg ...

Leepeelee

•4 years ago

4 Replies

Amitriptyline

Hi everyone I haven’t written for a while. But continue to read with interest. I had been at 1 mg of pred but in the last few weeks things have been slowly...

Hi everyone I haven’t written for a while. But continue to read with interest. ...

JulieR2

•4 years ago

27 Replies

Pred and prediabetic

I must start off by apologising for deleting the 'wine post' recently, lots of you were having fun with it and I was overcome with emails. I panicked and...

I must start off by apologising for deleting the 'wine post' recently, lots of y...

Gunflash

•4 years ago

13 Replies

Just had 2 Extractions 2 and a half hours ago, still bleeding!!

I had my 2 teeth pulled at 9:30 this morning. Been putting pressure ever since tea bags and gauze. Still bleeding. Not use to it bleeding this long after an...

I had my 2 teeth pulled at 9:30 this morning. Been putting pressure ever since ...

Hidden

•4 years ago

27 Replies

Tapering pred

After more than 4 years on prednisolone for PMR, I am currently on 5mg daily. If I try to reduce, I get pain in chest and back muscles which eventually get so...

After more than 4 years on prednisolone for PMR, I am currently on 5mg daily. I...

dolphin39

•4 years ago

19 Replies

Update after weaning off prednisone

Hello all- I’m 70, had PMR at 60 following shingles live virus vaccine; it lasted for 12 months, resolved, no problems at all until nearly 10 years later when...

Hello all- I’m 70, had PMR at 60 following shingles live virus vaccine; it laste...

Joblow

•4 years ago

10 Replies

Things to do in Lockdown

I have created a webpage on things that hopefully might help make lockdown and PMR/GCA more bearable. http://cookham.com/cvc/thingstodo.htm

I have created a webpage on things that hopefully might help make lockdown and P...

piglette

•4 years ago

15 Replies

To WHOM it might concern

Dear health unlocked, Thank you for send me the hypertension and BHF invite to complete the questionnaire/ read the text . I have read it all twice now , yet...

Dear health unlocked, Thank you for send me the hypertension and BHF invite to ...

Graememidsussex

•4 years ago

3 Replies

Dee Dee Wild - what a recovered PMR patient is doing in lockdown! No excuses?

She was on Sky News this morning: https://news.sky.com/video/dee-dee-wilde-dances-her-way-through-self-isolation-11967284 and this is the link to her website...

She was on Sky News this morning: https://news.sky.com/video/dee-dee-wilde-dance...

PMRpro

Ambassador•4 years ago

9 Replies

Please can you guide me.

After being very poorly with suspected Coronavirus at the beginning of March my Dr advised me to increase dosage from 5mg to 10mg. Last month I was down to...

After being very poorly with suspected Coronavirus at the beginning of March my ...

Fredddie

•4 years ago

23 Replies

Tapering down

Hi everyone, Since late January I was put on 20mg of preds due to servere pain in my shoulders and neck,arms and legs,saw Rheumi at hospital and was told I had...

Hi everyone, Since late January I was put on 20mg of preds due to servere pain i...

Canarylady

•4 years ago

32 Replies

Skin rashes on Pred

Hi. Do you think I need to worry about these patches of petechia I keep getting on my forearms? I guess it’s due to the Pred. It goes in a week and doesn’t...

Hi. Do you think I need to worry about these patches of petechia I keep getting ...

Seraphina56

•4 years ago

13 Replies

Uck!!!

Does anyone else have that horrible taste sensation when you cant quite swallow over your prednisolone, the drink has gone down leaving the tablet on your...

Does anyone else have that horrible taste sensation when you cant quite swallow ...

Singr

•4 years ago

19 Replies

A garden of rocks...in progress still....

Here are some rock critters I painted to amuse the children that look at it~! I think that grey cat looks like he is headed to a Halloween Party, but the more...

Here are some rock critters I painted to amuse the children that look at it~! I ...

Grammy80

•4 years ago

7 Replies

PMR followed virus (not The Virus)

Dear All I just wondered if my recent experience was similar to anyone else's? Mid March I began the symptoms of a trivial infection, the sort you assume will...

Dear All I just wondered if my recent experience was similar to anyone else's? ...

Mayadill

•4 years ago

28 Replies

Ibandronate Sodium

Has anyone been prescribed Ibandronate sodium for the prevention of osteoporosis while on Prednisone?

Has anyone been prescribed Ibandronate sodium for the prevention of osteoporosis...

Dubuquer

•4 years ago

10 Replies

Recent bloods

Hi all. Another round of blood tests. Just dropped to 6mg prednisolone. Taken one year on and off upping and downing doses. HBAC1 5.1 Cholesterol 3.8 Esr 2...

Hi all. Another round of blood tests. Just dropped to 6mg prednisolone. Taken o...

Ladymax123

•4 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

Advice if possible please

Just been diagnosed with GCA - some help please

PMR creeping back on 1 mg

Rollators!

Doing gardening and noticed leg bleeding

Methotrexate & Covid

Does anyone take Prednisolone in the evening?

A Rough Guide to PMR GCA uk history : so far May 2020 - by a FOUNDING member.

Massage Therapy

Tapering UK style.....slowly~!

Pill Box that Tells You when it was Last Opened

Moderators and contributors

'SHRAPNEL'

Pred dose mistake

Amitriptyline

Pred and prediabetic

Just had 2 Extractions 2 and a half hours ago, still bleeding!!

Tapering pred

Update after weaning off prednisone

Things to do in Lockdown

To WHOM it might concern

Dee Dee Wild - what a recovered PMR patient is doing in lockdown! No excuses?

Please can you guide me.

Tapering down

Skin rashes on Pred

Uck!!!

A garden of rocks...in progress still....

PMR followed virus (not The Virus)

Ibandronate Sodium

Recent bloods

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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