Hello everyone, I hope you are are feeling as well as you can be. I had a hospital appointment yesterday as having slowly tapered in 2.5 mg drops from 30 mg to 25 mg over a period of 6 weeks, became more symptomatic again. (Night sweats, temporal headache, increased fatigue and malaise.) A scan of the temporal artery didn’t show any inflammation which is probably due to the Pred and he said I was in a flare. I need to get on top of the inflammation to prevent any further potential damage and eye involvement so he put me back up to 30 mg Pred and prescribed Methotrexate as well. We discussed other symptoms related to my UCTD diagnosis which have re-appeared in this flare at the lower dose such as nighttime choking episodes, difficulty swallowing and internal tremor and he said the MTX may help with these also. I also mentioned about the chest pain and he saw the results of last week’s echocardiogram had just been posted to my notes before my Rheumy appointment! Very timely. He said that I have some fluid around the heart and that this could all be part of an inflammatory response in this flare or something else, so to arrange a follow up call with the Cardio doc to get some answers.
A couple of questions - can anyone suggest the best way or suggest a workable regime to take MTX with Pred? What are the best ways to minimise the side effects of MTX? (Changes to diet, lifestyle, time of day to take it etc.)
Also to chuck into the mix, I currently have low Vit D, Calcium and Potassium along with raised PTH, so trying to stabilise these things too through diet and prescription supplements.) I have a blood test next week to review these levels along with Hba1c (been a bit naughty with pred-mania-induced lockdown baking and ice cream making!) Now on a low sugar, low carb eating plan.
Thanks for your input, I find this site along with Lupus UK invaluable for help and support 🙂