Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,262 members • 37,907 posts

All posts for May 2020

MRI today.. just curious

My GP has requested an MRI scan of my head and cervical spine ( had to look it up as wondered why my cervix was involved 🤭) it’s come through quickly and I am...

My GP has requested an MRI scan of my head and cervical spine ( had to look it u...

Phoenix51

•4 years ago

14 Replies

So ready for answers!

After a trip to the rheumatologist and X-rays I am told that I have degenerative disc disease and bilater apical pleural thickening. Then I was sent to see a...

After a trip to the rheumatologist and X-rays I am told that I have degenerative...

Lanakay

•4 years ago

11 Replies

Meds Allergy, Hayfever, or A. N. OTHER Syndrome????? Confused.com!

Pre PMR not so much as a paracetemol. Now on loads of meds for PMR (pred June '17 15mgs now 6.5mgs), persistent UTI (Nitrofuatoin since May '19), Racing heart...

Pre PMR not so much as a paracetemol. Now on loads of meds for PMR (pred June '1...

Marilyn1959

•4 years ago

23 Replies

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Should i up my prednisone

Finally sold my house and moved 3 days ago but now i hurt all over.Just like i did a year before when i relapsed.Could the stress caused me to relapse...

Finally sold my house and moved 3 days ago but now i hurt all over.Just like i d...

Hunter134

•4 years ago

5 Replies

Dead Slow Tapering Acronym or Abbreviation

What is the 4 letter abbreviation for the dead slow tapering method that begins with DS__ and what words do they stand for? Thank you.

What is the 4 letter abbreviation for the dead slow tapering method that begins ...

skipspmr

•4 years ago

3 Replies

Lockdown and me

I've been in strict lockdown for about six weeks (apart from strolls in the park for 15 minutes when there are very few people around). I decided today I would...

I've been in strict lockdown for about six weeks (apart from strolls in the park...

Constance13

•4 years ago

46 Replies

Swollen stiff and painful Left knee and tight tendons behind both knees.

Hello everyone, I hope all is going as well as you can hope for. I would be grateful if any of you that have experience what I describe here can throw a bit...

Hello everyone, I hope all is going as well as you can hope for. I would be gra...

Roltuba

•4 years ago

21 Replies

I’m a 68 year old Mum of 2 grown up boys have had symptoms for 18 month pmr diagnosed approx a year ago and then Gca in March 2020.

Hi everyone joined this group recently not quite should how it works but sure you will keep me right. I am in the dark with my Gca I have to admit I’m a bit...

Hi everyone joined this group recently not quite should how it works but sure y...

Tamtan2

•4 years ago

16 Replies

When will my stamina come back?

I cam off Prednisolone at the end of January after months of tapering and being on 1mg for weeks. I was scared to death... but it was ok. Strangely I missed...

I cam off Prednisolone at the end of January after months of tapering and being ...

Hidden

•4 years ago

20 Replies

Roses

Hi, I can’t compete with the beautiful gardens some of you have shown - a solace to the spirit - but I love roses and they have been pretty spectacular this...

Hi, I can’t compete with the beautiful gardens some of you have shown - a solace...

Thelmarina

•4 years ago

25 Replies

New member introduction

Hi, I’m a new member here but been on my PMR & GCA journey since November 2018. Started on 60mg & am finally down to 3mg Prednisone. I was told to reduce by...

Hi, I’m a new member here but been on my PMR & GCA journey since November 2018. ...

Lyndaki

•4 years ago

30 Replies

GCA and constant bad taste in the mouth

Does anyone else have a constant, unpleasant and difficult to describe bad taste in the mouth, Highly spiced foods mask it on a temporary but it always...

Does anyone else have a constant, unpleasant and difficult to describe bad tast...

1944Nevermore

•4 years ago

8 Replies

Increase or Taper?

Hello good folks on this priceless information page. I have been on Pred since PMR diagnose in 2014. The 20 mills of pred prescribed at the time were like a...

Hello good folks on this priceless information page. I have been on Pred since P...

Southmead

•4 years ago

9 Replies

Just Started with PMR

Woke up one morning, everything ached and was uncomfortable - PMR. Doctor looked into it, spoke to Rheumotology and increased my methatrexate. If it's bad...

Woke up one morning, everything ached and was uncomfortable - PMR. Doctor looked...

cars0342

•4 years ago

2 Replies

LOVELY EARLY SUMMER DAY!

Part of our garden. Don’t look too closely!

Mary63

•4 years ago

15 Replies

Fish pond and small part of garden

Hubby just cleaned it all out and fixed it up. I helped ad much as I could.

Paperroses

•4 years ago

7 Replies

3 Monday and last Off Piste - till next time

Thank you to whoever thought of "Off Piste" Maybe the next time one comes around the rose should be in full bloom, it has two open now but they are not in the...

Thank you to whoever thought of "Off Piste" Maybe the next time one comes around...

jinasc

•4 years ago

32 Replies

Visual disturbances

Every time I reduce to 10mg, or 9.5mg, every week or so I get visual disturbances which are akin to thos in migraine, but do not have any headache. The visual...

Every time I reduce to 10mg, or 9.5mg, every week or so I get visual disturbance...

Jocelyn344

•4 years ago

15 Replies

Headaches

Hi. Had PMR for over 3 years, at present im on 11mg pred. Last couple of weeks having terrible headaches everday, left side temple worst but can vary from...

Hi. Had PMR for over 3 years, at present im on 11mg pred. Last couple of weeks h...

SRIXON

•4 years ago

4 Replies

"MY" garden. 😂😂😂

The building in the background is where I live - first floor, dark windows. Photo on right - Maritime Hotel.

The building in the background is where I live - first floor, dark windows. Phot...

Constance13

•4 years ago

1 Reply

Ouch!!

Humidity 85% today!! Dizzy, off balance, tired. Apart from that OK!?! Have a good Spring Holiday everyone. C 😎😎

Humidity 85% today!! Dizzy, off balance, tired. Apart from that OK!?! Have a go...

Constance13

•4 years ago

8 Replies

Thanking miss-philosopher!

Earlier today miss-philosopher tried to post the link to "a feelgood song from childhood in London" - The Hollies and The air that I breathe. She seems to...

Earlier today miss-philosopher tried to post the link to "a feelgood song from c...

PMRpro

Ambassador•4 years ago

23 Replies

My bit of heaven!

We have had lots of time to spend on it this year! Have a good day everyone 🌈🌈😄😄

We have had lots of time to spend on it this year! Have a good day everyone 🌈�...

York54

•4 years ago

18 Replies

Saved posts

Probably a really silly question but sometimes I seem to be able to save posts and others not .. also where do the saved posts go?! How do I find the ones that...

Probably a really silly question but sometimes I seem to be able to save posts a...

Phoenix51

•4 years ago

3 Replies

Update on diverticulitis and prednisone taper

I can’t find my posts so not sure what I shared so sorry for any repeats. Short version. Had cat scan showed active diverticulitis put me on IV and gave me...

I can’t find my posts so not sure what I shared so sorry for any repeats. Short...

Hidden

•4 years ago

4 Replies

Boring question about steroid doses again!

Hi, everyone! I'm yet another asking about doses I'm afraid. I recently started to taper from 5mgs to 41/2. I had one 41/2 one week and then 2 the next week....

Hi, everyone! I'm yet another asking about doses I'm afraid. I recently started...

grannyouch

•4 years ago

9 Replies

Breakfast again

A real breakfast

piglette

•4 years ago

7 Replies

Breakfast

Hope everyone is looking after themselves.

piglette

•4 years ago

7 Replies

Reply option missing

My reply option has just gone missing. I replied to a post about 5 mins ago and now I can't do so. Help

My reply option has just gone missing. I replied to a post about 5 mins ago and...

maria40

•4 years ago

20 Replies

Corticosteroid use above 10mg/day may be risk factor for COVID-19 hospitalisation in rheumatic disease patients

Perhaps not the sort of finding we want to hear - but if you needed a reason to be conscientious about social distancing and hand washing these are preliminary...

Perhaps not the sort of finding we want to hear - but if you needed a reason to ...

PMRpro

Ambassador•4 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2020

MRI today.. just curious

So ready for answers!

Meds Allergy, Hayfever, or A. N. OTHER Syndrome????? Confused.com!

Should i up my prednisone

Dead Slow Tapering Acronym or Abbreviation

Lockdown and me

Swollen stiff and painful Left knee and tight tendons behind both knees.

I’m a 68 year old Mum of 2 grown up boys have had symptoms for 18 month pmr diagnosed approx a year ago and then Gca in March 2020.

When will my stamina come back?

Roses

New member introduction

GCA and constant bad taste in the mouth

Increase or Taper?

Just Started with PMR

LOVELY EARLY SUMMER DAY!

Fish pond and small part of garden

3 Monday and last Off Piste - till next time

Visual disturbances

Headaches

"MY" garden. 😂😂😂

Ouch!!

Thanking miss-philosopher!

My bit of heaven!

Saved posts

Update on diverticulitis and prednisone taper

Boring question about steroid doses again!

Breakfast again

Breakfast

Reply option missing

Corticosteroid use above 10mg/day may be risk factor for COVID-19 hospitalisation in rheumatic disease patients

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