Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for April 2020

ALL THE COVID CHATS MARCH AND APRIL 2020 - as it has quietened, you can get the chats all in one place in date order.

On the weeks leading up to the lockdown there were daily covid19 chats. There are some links to articles that followed the unfolding research as well as all...

On the weeks leading up to the lockdown there were daily covid19 chats. There ar...

Hidden

•5 years ago

Help with good breathing

Doctor shares a good breathing exercise to keep body oxygenated, whether ill or not....

Doctor shares a good breathing exercise to keep body oxygenated, whether ill or ...

SheffieldJane

•5 years ago

27 Replies

Anyone on Extremely Vulnerable list been given a slot by Ocado?

Anyone on the Extremely Vulnerable list heard from Ocado? They say they are emailing those of their customers who are on the government's list, I have been...

Anyone on the Extremely Vulnerable list heard from Ocado? They say they are emai...

Cally55

•5 years ago

89 Replies

Want to take advantage of all our features? Just log in!

Caused by statins

Has anyone seen a response by going off statin.

Surfer74

•5 years ago

10 Replies

Parker wants his own Forum

Yorkshire Man has had to revert back to Parker. In these strange and difficult times Parker has returned as gofer and general dogsbody. Or so he seems to...

Yorkshire Man has had to revert back to Parker. In these strange and difficult t...

Estellemac

•5 years ago

43 Replies

Some links to helpful exercise, activities and information regarding physical & mental health with chronic illness & in the current climate.

I got this in an email to ilkley@pmrgcauk.org.uk. Its from Active Leeds and medippibr. I hope you all find it useful. Dear all, We have been passed the...

I got this in an email to ilkley@pmrgcauk.org.uk. Its from Active Leeds and medi...

Estellemac

•5 years ago

7 Replies

COVID-19 Global Rheumatology Alliance Survey

The COVID-19 Global Rheumatology Alliance is calling on people 18+ with rheumatic diseases, and parents of children with rheumatic diseases to participate in a...

The COVID-19 Global Rheumatology Alliance is calling on people 18+ with rheumati...

PMRpro

Ambassador•5 years ago

22 Replies

Puffy face and weight gain.

Diagnosed with PMG in Nov last year since then have been on Prednisilone and have gained nearly 2 stones, and now have a puffy face and red cheeks. Presently...

Diagnosed with PMG in Nov last year since then have been on Prednisilone and hav...

BPlady

•5 years ago

29 Replies

Stomach acid meds , which one plus chest pain goes on and on

Hi All , I was on 2.5mg of Pred , stomach was coping ok, had a flare up and increased to 4.5mg didn’t stop the rib and sternum pain but made it bearable, I...

Hi All , I was on 2.5mg of Pred , stomach was coping ok, had a flare up and incr...

Gaz227

•5 years ago

21 Replies

Coeliac absorption

I have had coeliac disease for many years and adhere to a strict (but probably not 100%) gluten free diet. My villi are still not in a ‘perfect’ operating...

I have had coeliac disease for many years and adhere to a strict (but probably n...

Whatgrange

•5 years ago

18 Replies

Korkycat123

I'm on 7mg a day of prednisolone a day is it best to split them 5mgs in the morning 2 at night I've had a few flare ups last month is this is the cause.

I'm on 7mg a day of prednisolone a day is it best to split them 5mgs in the morn...

Korkycat123

•5 years ago

19 Replies

Amount of prednislone and tapering

Hi I joined in jan with suspected pmr but am still awaiting my rheumatologist appointment in a couple of weeks. I have just filled out my profile which sorry...

Hi I joined in jan with suspected pmr but am still awaiting my rheumatologist ap...

TMenz

•5 years ago

18 Replies

GCA diagnosis, newbie here

Hello everyone I usually lurk on the Lupus site as I have UCTD. @PMRpro suggested I post here to get some guidance and advice as I have been recently diagnosed...

Hello everyone I usually lurk on the Lupus site as I have UCTD. @PMRpro suggeste...

Horsewhisper

•5 years ago

22 Replies

Problem getting Prednisolone medication

My prednisolone prescription has been removed from my Patient Access App. I don’t have enough to get through a week.

My prednisolone prescription has been removed from my Patient Access App. I don’...

cool4bob

•5 years ago

32 Replies

Taking wrong tablet

I realised this morning I had only taken 2 of my 4mg pred yesterday evening (I wasn't trying to reduce Pro - honestly)! What has shocked me is the amount of...

I realised this morning I had only taken 2 of my 4mg pred yesterday evening (I w...

Constance13

•5 years ago

7 Replies

More encouraging news for Sunday 5th of April - open for other cheering items

While we have decided to try phasing out the daily Covid chat themed thread I shall still post items I come across that will help us get through our currently...

While we have decided to try phasing out the daily Covid chat themed thread I sh...

PMRpro

Ambassador•5 years ago

22 Replies

missing dose of prednisone

Has anyone actually felt better after missing a dose of preednisone? I was quite perplexed and not been willing to go it alone until I connect with the R.. I...

Has anyone actually felt better after missing a dose of preednisone? I was quit...

georgedog

•5 years ago

18 Replies

Problems with seeing avatars and usernames on smartphones and tablets

Hi, I just wondered if anyone else has issues seeing avatars and usernames in the notifications or the forum. Some names have disappeared and "hidden" as name....

Hi, I just wondered if anyone else has issues seeing avatars and usernames in th...

Hidden

•5 years ago

1 Reply

Maybe a bit of clarification: what a rheumatologist said (today!)

A couple of days ago I wrote to Prof Sarah Mackie from Leeds who says: " ... it must be particularly challenging for a board like HU with global reach. Plus,...

A couple of days ago I wrote to Prof Sarah Mackie from Leeds who says: " ... it ...

PMRpro

Ambassador•5 years ago

52 Replies

Virus on surfaces

Thanks to everyone who replied to this. I feel I'm becoming OCD about this and it's taking ages to get things actually into the flat. They stay at the bottom...

Thanks to everyone who replied to this. I feel I'm becoming OCD about this and ...

maria40

•5 years ago

5 Replies

How long can virus live on surfaces?

I keep hearing conflicting views on this . I had been adhering to 24hrs for paper, up to 48 for plastic and metal and cleaning anything that came into my home...

I keep hearing conflicting views on this . I had been adhering to 24hrs for pape...

maria40

•5 years ago

11 Replies

9 month update

Hello everyone. Was feeling ok at Christmas when I was on 7mg. Since then as I’ve tapered down things are getting worse even though I’m doing it in 0.5mg...

Hello everyone. Was feeling ok at Christmas when I was on 7mg. Since then as I’v...

Fozzes

•5 years ago

23 Replies

Covid chat Saturday 4th April share GOOD and POSITIVE things

We are including more good news links today but you are welcome to discuss your covid queries on here as well....

We are including more good news links today but you are welcome to discuss your ...

Yellowbluebell

•5 years ago

58 Replies

You might like this.

I was invited to this page this morning. "From My Window" I've enjoyed browsing all the photos being uploaded. Hope those of you who use FB might want to join...

I was invited to this page this morning. "From My Window" I've enjoyed browsing ...

IdasMum

•5 years ago

4 Replies

British Society for Rheumatology has put information on their website for rheumies/drs but for patients too...

Thanks to Swiftandbold1 for pointing out that the BSR keeps adding to the information on their website....

Thanks to Swiftandbold1 for pointing out that the BSR keeps adding to the inform...

Hidden

•5 years ago

3 Replies

Shielding

I’ve just realised that the original recommendations by BSR recommended to me by my rheumy have gone from self isolation to shielding. The original was...

I’ve just realised that the original recommendations by BSR recommended to me b...

Swiftandbold1

•5 years ago

6 Replies

Is it to soon?

I was diagnosed in Dec with GCA after Lost the sight (temporary) in my right eye. Was in hospital on intravenous predizone for 4 days then home home on 60ml....

I was diagnosed in Dec with GCA after Lost the sight (temporary) in my right eye...

Krezan

•5 years ago

4 Replies

How do we know when it's time to renew membership?

I've lost my records and can't remember renewal dates. I see that the fee is still only £15, shouldn't it be higher? You do so much to help us all I don't know...

I've lost my records and can't remember renewal dates. I see that the fee is sti...

43tripandskip

•5 years ago

22 Replies

New to PMR

I have recently been told by GP that I have PMR. Trying to get appointment with rheumatologist but they are booked months ahead. I started with 25mg prednisone...

I have recently been told by GP that I have PMR. Trying to get appointment with ...

Artwatercolour

•5 years ago

34 Replies

Pmr

Do many people with pmr have sore forearms and hand pain. Sore fingers and palms of hands?

Do many people with pmr have sore forearms and hand pain. Sore fingers and palms...

Libertylane

•5 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2020

ALL THE COVID CHATS MARCH AND APRIL 2020 - as it has quietened, you can get the chats all in one place in date order.

Help with good breathing

Anyone on Extremely Vulnerable list been given a slot by Ocado?

Caused by statins

Parker wants his own Forum

Some links to helpful exercise, activities and information regarding physical & mental health with chronic illness & in the current climate.

COVID-19 Global Rheumatology Alliance Survey

Puffy face and weight gain.

Stomach acid meds , which one plus chest pain goes on and on

Coeliac absorption

Korkycat123

Amount of prednislone and tapering

GCA diagnosis, newbie here

Problem getting Prednisolone medication

Taking wrong tablet

More encouraging news for Sunday 5th of April - open for other cheering items

missing dose of prednisone

Problems with seeing avatars and usernames on smartphones and tablets

Maybe a bit of clarification: what a rheumatologist said (today!)

Virus on surfaces

How long can virus live on surfaces?

9 month update

Covid chat Saturday 4th April share GOOD and POSITIVE things

You might like this.

British Society for Rheumatology has put information on their website for rheumies/drs but for patients too...

Shielding

Is it to soon?

How do we know when it's time to renew membership?

New to PMR

Pmr

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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