Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,120 members37,701 posts

All posts for April 2020

CRP getting higher.

CRP is getting higher, although I am feeling quite good. I don’t understand why ...
Chopin002 profile image

I don’t know what to do anymore!

I started this journey sometime before September of 2017. Now I have such pain i...
Lanakay profile image

Hot and cold

I seem to get a cold arm or foot or face randomly even when I feel warm . Is thi...
Blues1 profile image
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Cycling

I am seriously considering buying an electric bike because I can’t walk as far a...
Bubble56 profile image

Activated phenolics

Hi All, Has anyone heard of "activated phenolics" and their effect on PMR suffer...
oatleypark profile image

Sharing my story~

I've been asked to share my story, my journey with GCA starting with my misdiagn...
Grammy80 profile image

Rheumy leaving practice, yet another search

Hello all, Well my third and best rheumy so far is leaving the practice at t...
Mstiles profile image

Feel like I have wasted the week.

On Tuesday my blood pressure rose to almost 200/99. Added extra medicine which t...
singingloud profile image

GCA or not? update

Today I had a telephone appointment for a second opinion with Dr. Sarah Mackie, ...
Marlenec profile image

Tapering prednisolone while Covid 19 is around

Hi. I want to taper down from my 10mg Prednisolone for PMR but I'm wondering if ...
Seraphina56 profile image

Remember this.

https://healthunlocked.com/pmrgcauk/posts/141436964/signs-of-adrenal-response H...
IdasMum profile image

Unintentional self-harm and skin damage when gardening, DIY-ing etc when on steroids for PMR/GCA: Useful tips and tricks

There seems to be quite a lot of gardening going on - those with gardens have a ...
PMRpro profile image
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Prednisone and Covid-19

PMR has been described as our immune system overreacting to some assault to our ...
Whitner profile image

Where Two of us will be at 6pm today

Join me for a glass or two, three, four, in my Sitooterie with Joan (90) the b...
jinasc profile image

Thin skin

I have been on pred now for 4 months and find that my skin is very easily damage...
sampete profile image

Stuck in Morocco

Hi I’m stuck in Morocco, I was due to see my Rheumy at the end of March. I’m do...
PMRHortons profile image

Severe knee pain

Knee pain, so bad i could not walk pain from back of knee to foot, toes tingling...
Scotty7 profile image

Prednisolone query

Does anyone else with PMR and on prednisolone have to take Omeprazole to protect...
Doraflora profile image

Is this normal pain with PMR

New here, having PMR for one year that the truck ran over me. Question, now hav...
greenbayroad profile image

Members' newsletter NewsWire out next week

For those of you who are members of PMRGCAuk I just wanted to let you know that ...

TAPERING PLANS

Dead Slow Nearly Stop PMRpro https://healthunlocked.com/pmrgcauk/posts/131189593...
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EXERCISES suitable for PMR and GCA before during and after lockdown.

Please see a range of exercises and activities you can do... https://healthunloc...
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PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/Files/2015%20PMR%20guidelines.pdf

This a link to the recommendations for the management of PMR which were issued i...
PMRpro profile image
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Sjögren’s syndrome?

Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnos...
Phoenix51 profile image

Advice

Having spent considerable time reading every response to my post,three times in ...
yorkieme profile image

New PMR member

Hi all Just been diagnosed with Polymayalgoa Rhumatic and started on 10mg of Pr...
Ro55ifumi profile image

Positive hospital experience.

I just wanted to write a POSITIVE comment. I live in a rural area where there a...
Bubble56 profile image

Prednisone & sweet smelling breath

Thanks for replies. Blood test last week showed everything OK. Sweet breath is s...
VicSat profile image

Remission from GCA

On Monday I should have been keeping my appointment with the Rheumatologist. One...
prunus profile image

How do I regain muscle strength?

I was diagnosed almost a year ago with PMR. At 9 mg prednisone currently. Was go...
Paperroses profile image