Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,053 posts

All posts for April 2020

Constructive ways to improve mood and distract oneself in lockdown

I’m finding knitting an aardvark has done wonders for my mental state: I have to concentrate, because I have to count the stitches, etc, and I have a great...

I’m finding knitting an aardvark has done wonders for my mental state: I have to...

Mindful3

•4 years ago

9 Replies

Stopping emails

How do I stop all these posts coming in? I was scammed yesterday with 64 hacks. This morning I have 16 posts from everywhere. Want to stay on forum but cannot...

How do I stop all these posts coming in? I was scammed yesterday with 64 hacks. ...

Robinsnest72

•4 years ago

15 Replies

Alendronic ac and Dexa Scan

I am now 2 years since starting Prednisolone and am down to a comfortable dose of 5mg daily. Since starting Prednisolone I have been on Alendronic ac, never...

I am now 2 years since starting Prednisolone and am down to a comfortable dose o...

HamishPMR

•4 years ago

1 Reply

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Posting photos

I’d like to post a photo but can’t find any instructions and haven’t a clue what to do. Could someone point me in the right direction, please?

I’d like to post a photo but can’t find any instructions and haven’t a clue what...

Mindful3

•4 years ago

5 Replies

Confused.com

I am new to this terrible illness,(if I have it,yet to be confirmed due to other complications.) but on thing O do know is that I am fast learning to respect...

I am new to this terrible illness,(if I have it,yet to be confirmed due to other...

yorkieme

•4 years ago

40 Replies

Immune System Recovery after steroids

Hi everybody I was wondering if anybody could help or advise me. I had Polymyalgia from December 2016 to April 2018 and was on steroids (Preds) during that...

Hi everybody I was wondering if anybody could help or advise me. I had Polymyal...

Mariemcdo

•4 years ago

13 Replies

Looking for answers.

Hope everyone is well at this time. I am trying to get some answers for all the pain in my back and when I walk my legs feel like posts. It does not help I...

Hope everyone is well at this time. I am trying to get some answers for all the ...

Robinsnest72

•4 years ago

1 Reply

Do I need to get a diagnosis

I am still at home debating what to do! My husband is extremely vulnerable so we are in lockdown for at least 12 weeks. I have stayed in with him. I had PMR...

I am still at home debating what to do! My husband is extremely vulnerable so we...

Booge_15

•4 years ago

5 Replies

Shielding

I am 65 and on 7.5 mg of prednisolone and on amlodopine for high blood pressure. I have not received a letter about bing high risk but according to the...

I am 65 and on 7.5 mg of prednisolone and on amlodopine for high blood pressure....

Tuppence55

•4 years ago

21 Replies

What to do when the pain is just to much, PMR or something else

Hi All , Had in brackets probably PMR for 5 years now on 3.5mg pred, had an horrendous night last night awake since 3am. Posted a week or so about chest pain...

Hi All , Had in brackets probably PMR for 5 years now on 3.5mg pred, had an hor...

Gaz227

•4 years ago

22 Replies

Stanford’s Antibodies Study Wraps Up, suggests Covid-19 Is 50x More Prevalent though accurate antibody tests are still the subject of debate

You may find this interesting. Stanford University had done a sample test study to find out how many people had been infected/exposed to Covid19 virus by...

You may find this interesting. Stanford University had done a sample test study ...

nickm001

•4 years ago

12 Replies

New Rhuematologist

Well it has been a month since I posted. I have had ear aches and stayed on 20 mgs of prednisone. Had my appt with new rheumatologist and the first thing she...

Well it has been a month since I posted. I have had ear aches and stayed on 20 m...

Hidden

•4 years ago

8 Replies

Tapering

Hello All, I'm curious on tapering Pred dosages. My pills are 5 Mill, I can break them in half which gets me down to 2.5 daily. How do you all know what is 1...

Hello All, I'm curious on tapering Pred dosages. My pills are 5 Mill, I can bre...

Southmead

•4 years ago

17 Replies

furlough

i have PMR can i ask my employer to furlough me?

aj147

•4 years ago

3 Replies

Tapering

Hi good people PMR since May 2018 so just under 2 years Pain v well controlled initially for first 6 weeks then not so great rumbling inflammation ongoing...

Hi good people PMR since May 2018 so just under 2 years Pain v well controlled ...

bakingD

•4 years ago

12 Replies

Resilience

Good morning everyone, I’ve had this article for a while. I pulled it up yesterday and reread it and found it applies so much now in dealing with chronic...

Good morning everyone, I’ve had this article for a while. I pulled it up yesterd...

fmkkm

•4 years ago

16 Replies

Shielding letter???

Today I received a letter from gp dated 13th April advising me to stay in for 12 weeks to protect myself from covid, I am currently on 10mg pred and aiming to...

Today I received a letter from gp dated 13th April advising me to stay in for 12...

Lola5670

•4 years ago

33 Replies

Troublesome crops of warts

Apparently warts in adults are a sign of a dysfunctional immune system, according to the Mayo clinic. Over time I have developed clusters of small warts on my...

Apparently warts in adults are a sign of a dysfunctional immune system, accordin...

SheffieldJane

•4 years ago

46 Replies

Receiving emails for a different Health Unlocked Community.

Over the last few days I have been receiving posts from the Well Being Community for Social Isolation.I would be very grateful if someone could correct this...

Over the last few days I have been receiving posts from the Well Being Community...

El50

•4 years ago

14 Replies

Proton pump inhibitor

I'm on 20mg Prednisone for PMR. My rheumatologist in his notes recommended I get an over the counter proton pump inhibitor if I develop acid reflux. I do have...

I'm on 20mg Prednisone for PMR. My rheumatologist in his notes recommended I get...

Macadoo

•4 years ago

1 Reply

Prednisone & sweet smelling breath

Ever since I started on 60mg daily for GCA I'm conscious of a sweet smell with my brearth. I've been tapering for 6 months and am now on 8mg daily. I will...

Ever since I started on 60mg daily for GCA I'm conscious of a sweet smell with m...

VicSat

•4 years ago

7 Replies

Since reducing my pred dry areas of skin, quite sensitive????

Since reducing my pred from 12.5mg to 10mg I have noticed that I seem to have developed quite a few areas of very dry sensitive skin area on my back, almost...

Since reducing my pred from 12.5mg to 10mg I have noticed that I seem to have de...

Lola5670

•4 years ago

14 Replies

PMR flare. Should I up my Prednisone?

I had sudden-onset PMR a year ago, and I've got down to 10mg Pred. since, other than needing 12mg for 5 days for a blip in Feb. I've been able to keep teaching...

I had sudden-onset PMR a year ago, and I've got down to 10mg Pred. since, other ...

HelenDaisy

•4 years ago

4 Replies

Living in our bubbles - and learning to flourish

I found this in the paper this morning - and thought how relevant it is to us at all stages of our PMR/GCA and even more so at present....

I found this in the paper this morning - and thought how relevant it is to us at...

PMRpro

Ambassador•4 years ago

25 Replies

Staying productive and positive.

Hi I have been trying to make each day count and stay positive although feel rough a lot of the time but can't do much for anyone else at the moment so have...

Hi I have been trying to make each day count and stay positive although feel rou...

Sorop

•4 years ago

20 Replies

Tapering advice

Hi, just looking for some further advise on tapering preds?? I started on 20mg preds in January this year with advise from my GP to taper. After several flares...

Hi, just looking for some further advise on tapering preds?? I started on 20mg p...

Leepeelee

•4 years ago

7 Replies

Time to give up methotrexate?

I have been taking methotrexate since December 2017 because my GCA flared twice when I was trying to reduce pred below 25 mg per day. My first MTX dose was 10...

I have been taking methotrexate since December 2017 because my GCA flared twice ...

Marijo1951

•4 years ago

7 Replies

Could this be only prednisone withdrawal?

Prednisone withdrawal or return of symptoms?? I’ve been on prednisone since Dec 10: 60/50/40/30/20/15/10/5 and off 4/6 when my rheumy doesn’t think it’s GCA...

Prednisone withdrawal or return of symptoms?? I’ve been on prednisone since Dec ...

kathybirch

•4 years ago

11 Replies

Help offset Prednisone Side Effects

Is anyone who is taking Prednisone also taking Bactrim to prevent infection and Fosamax to help prevent bone loss? If yes, has taking those meds helped?

Is anyone who is taking Prednisone also taking Bactrim to prevent infection and ...

Macadoo

•4 years ago

21 Replies

Is there evidence that vit D protects you from Covid-10? At the moment - NO!

In view of a post this morning, which has now been deleted, claiming vit D will protect from Covid-19 I am posting the reply I had written so anyone who has...

In view of a post this morning, which has now been deleted, claiming vit D will ...

PMRpro

Ambassador•4 years ago

50 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2020

Constructive ways to improve mood and distract oneself in lockdown

Stopping emails

Alendronic ac and Dexa Scan

Posting photos

Confused.com

Immune System Recovery after steroids

Looking for answers.

Do I need to get a diagnosis

Shielding

What to do when the pain is just to much, PMR or something else

Stanford’s Antibodies Study Wraps Up, suggests Covid-19 Is 50x More Prevalent though accurate antibody tests are still the subject of debate

New Rhuematologist

Tapering

furlough

Tapering

Resilience

Shielding letter???

Troublesome crops of warts

Receiving emails for a different Health Unlocked Community.

Proton pump inhibitor

Prednisone & sweet smelling breath

Since reducing my pred dry areas of skin, quite sensitive????

PMR flare. Should I up my Prednisone?

Living in our bubbles - and learning to flourish

Staying productive and positive.

Tapering advice

Time to give up methotrexate?

Could this be only prednisone withdrawal?

Help offset Prednisone Side Effects

Is there evidence that vit D protects you from Covid-10? At the moment - NO!

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