Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician with increased blurred vision and he referred me to an eye consultant. I have had dry eye for quite some time now and it causes blurred vision. Whilst reading around the glaucoma information on line I came across Sjögren’s syndrome and when I looked it up many of my symptoms matched up. I had put many of the symptoms down to side effects of the Pred but I’m now wondering if instead it might be this?
My symptoms are
Dry mouth, constantly thirsty ( GP tested for diabetes result was negative )
Blurred vision, has got worse presumed it was Pred
Increased occular pressure
Glaucoma
Dry skin
cognitive impairment ( lose train of thought/forget everything!)
Strange taste in mouth / aftertaste
Numbness in toes and fingers - diagnosed with Raynayds but not majorly affected
Fatigue ( when not on steroids)
Dry lips ( not cracked or sore)
Tremor/leg and arm weakness - put this down to essential tremor diagnosed some time ago - could still be this
Night sweats, sometimes in the day too
My age and gender
Many the above can also be attributed to Pred side effects and also hormones - I’m 51 and female- so I appreciate it would be difficult to get a clear picture.
Any thoughts from anyone or have any of you been diagnosed with SS as well as GCA?
Thank you