Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2020

Taper or drop Prednisone after initial dosage?

Wonder if anyone else has had similar experience... I have PMR symptoms and also jaw pain ( but no other GCA symptoms). My blood work is negative. GP...

Wonder if anyone else has had similar experience... I have PMR symptoms and also...

•4 years ago

K2 or K1....help please?

Hello everyone, I hope you are all keeping safe given the present corona virus worldwide pandemic. Please remind me, is it vitamin K1 or K2 that is best for us...

Hello everyone, I hope you are all keeping safe given the present corona virus w...

•4 years ago

No TV Day

Yesterday we had a no tv day. OH was a little perturbed. But we did it. Slept the best last night I have in a month.

Yesterday we had a no tv day. OH was a little perturbed. But we did it. Slept...

•4 years ago

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Solution to bad taste in mouth

The vitamins that I take give me a bad taste in my mouth but I have found that peppermint chewing gum clears it completely! Wonderful! Stops me eating...

The vitamins that I take give me a bad taste in my mouth but I have found that p...

•4 years ago

Need advice on some Prednisolone side effects

Hi all, have developed a number of side effects with my prednisolone and was wondering if any body else has had any. Firstly weight gain, but this is mostly...

Hi all, have developed a number of side effects with my prednisolone and was won...

•4 years ago

I have had biopsy special

Have esr of 19 and crp .6. Biopsy negative , Doppler ultrasound negative. Started all this end of December. Keep getting told no gca . Still get some temple...

Have esr of 19 and crp .6. Biopsy negative , Doppler ultrasound negative. Start...

•4 years ago

WANT TO HEAR SOME GOOD NEWS?

over the last 12 months I have tried 3 times to reduce from 6.5 to 6mg with no luck. I may have just done it! Tapered over one month, and I am now two weeks...

over the last 12 months I have tried 3 times to reduce from 6.5 to 6mg with no l...

•4 years ago

Pain med?

Today was first day on prednisone. I'm in lots of pain...can anyone recommend what they've taken to reduce pain while waiting for prednisone to kick in? 2...

Today was first day on prednisone. I'm in lots of pain...can anyone recommend wh...

•4 years ago

Is the prescription of steroids for PMR really 'unsafe' ? - as was described to me by the consultant rheumatologist

I'm new here. After seeing GP and consultants - orthopaedic and rheumatologist - I have not been diagnosed with PMR, in spite of seeming to have every...

I'm new here. After seeing GP and consultants - orthopaedic and rheumatologist -...

•4 years ago

First day on Prednisone for PMR

I'm new to Healthunlocked and PMR. Just took GP recommended prednisone 50mg first dose today. Unable to get appt with Rheumatologist until June due to Covid 19...

I'm new to Healthunlocked and PMR. Just took GP recommended prednisone 50mg firs...

•4 years ago

High Risk?

Is everyone with PMR classed as high risk, as my husband has had no letter?

Is everyone with PMR classed as high risk, as my husband has had no letter?

•4 years ago

Week 11

Down to 12 1/2 mg from 40 mg. My appointment with the rhumatology is May 07 if the covid 19 slows down, they are shut down now because of it. The plan was to...

Down to 12 1/2 mg from 40 mg. My appointment with the rhumatology is May 07 if ...

•4 years ago

Covid 19 Chat: Thursday 2nd April

On the day that Wimbledon and the Edinburgh Festival were victims of Covid 19, let's look on the brighter side with another set of good news: It is early days...

On the day that Wimbledon and the Edinburgh Festival were victims of Covid 19, l...

Ambassador•4 years ago

Less is more.

Remember when I'd lament that kids/gkids were not coming to see us as much since moving here. We moved to a very rural home from Minnesota last year( U.S.)....

Remember when I'd lament that kids/gkids were not coming to see us as much since...

•4 years ago

Yo-yo

Hello again, I am back , ah well it was nice while it lasted. 3 years and I thought I had cracked it. I was on 2 mg of Pred, really nothing and although a bit...

Hello again, I am back , ah well it was nice while it lasted. 3 years and I tho...

•4 years ago

A story of our times

Let me tell you a story Its about prescriptions delivery Boots itself. last Thursday I needed a prescription 5days later a doctors lovely...

Let me tell you a story Its about prescriptions delivery Boots itself. l...

•4 years ago

Government food parcels

I received my letter telling me I was high risk so I should self isolate for 12 weeks. I had nobody to do my shopping so I registered online and, this week,...

I received my letter telling me I was high risk so I should self isolate for 12 ...

•4 years ago

Steroids and eyes

Hi everyone. Well, I've spoken privately with a couple of ladies from the forum to get their advice. However, throwing it out there more broadly to everyone...

Hi everyone. Well, I've spoken privately with a couple of ladies from the forum...

•4 years ago

taper from 10 to 9

yesterday my rheumatologist told me to go to 9 mg., for one month and see what happens. I know from this site, slow, slow, slow is the caution. My cortisol...

yesterday my rheumatologist told me to go to 9 mg., for one month and see what h...

•4 years ago

Start of month 3

Today marks the start of month #3 without Prednisone. It has been a positive time. I have been feeling well. I do feel weakened, I am still walking “funny”....

Today marks the start of month #3 without Prednisone. It has been a positive ti...

•4 years ago

Message from PMRGCAuk Admin

Dear Members, I hope that you are keeping well and safe. In these extraordinarily testing times we all need to be kinder to eachother and to understand that...

Dear Members, I hope that you are keeping well and safe. In these extraordinar...

•4 years ago

Final post

I joined PMRGCAuk 6 years ago. Most of what I know about PMR has been gleaned from this site. I am Canadian, and I have enjoyed reading the various posts and...

I joined PMRGCAuk 6 years ago. Most of what I know about PMR has been gleaned fr...

•4 years ago

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