GCA or not? update

[Marlenec]

Today I had a telephone appointment for a second opinion with Dr. Sarah Mackie, and I do have GCA, contrary to the previous consultant's opinion. I expected GCA so I am mentally prepared and so relieved that I am now with Dr. Mackie.

Thank you everyone for your advice and guidance.

Keep safe and sane!

xx

[Hidden]

I have liked but hope you know what I mean. 🌻

[Marlenec in reply to Hidden]

Yes thank you.

[PMRpro Ambassador]

Excellent - if you know what I mean!!!!

[Marlenec in reply to PMRpro]

Yes I certainly do!

Thank you.

[SnazzyD]

Result! Sorry, though, but good.

[Marlenec in reply to SnazzyD]

Yes relieved it's sorted. Thank you.

[Hidden]

How long do you think you've had it Marlenec ? Will be interesting to see what mg she starts you on and the duration on each mg. I have it too and was getting on okay'ish but now increased mg slightly as symptoms weren't going. Symptoms no where near as bad as some on the forum, mine are niggly ones. Still slight tender head on both sides, certain area only, and jaw still hurt when I eat. No headache but am getting blurry vision soon after taking prednisone in the mornings, mouth ulcers, bruised skin, weight gain, fuller face and feeling a bit down some days, but manage to drag myself out of that as don't want to go down the road to depression. A part from that I'm good ha ha. Do hope you manage to get yours under control. My rheumy prescribed 40 mg for 2 weeks (think I should have stayed on that mg for 4 weeks) then 30 mg for 2 weeks - then drop down to 20 mg and stay on that for 2 - 4 weeks until I get to 10 mg, then drop by 1 -2 mg every month. Currently I've decided to stay on 25 mg for the foreseeable until the tender head has gone and I can eat without pain in my right tooth area and right temple.

The very best of luck

Anne

[PMRpro Ambassador in reply to Hidden]

If your GCA symptoms have returned or then worsen - stop reducing until the symptoms are under control.

[Marlenec in reply to Hidden]

Hi Anne

If you have time read my previous posts on "GCA or not " as that's the start of it and interesting replies.

I'm now on 17mg Prednisolone. Get back to me if any queries.

Thank you

Marlene

[Hidden in reply to Marlenec]

Morning Marlenec, I can't find your post to be able to read back

[Hidden in reply to Hidden]

healthunlocked.com/user/Mar...

😁😉

[Rugger]

At least you know what you're dealing with now and you're in good hands! We are so fortunate to have Dr Mackie in our 'neck of the woods'!

Take care Marlene. See you when things improve - with GCA and the pandemic.

[SheffieldJane]

You are in safe, sane hands Marlene and she’s lovely with it.

[Marlenec in reply to SheffieldJane]

You're right she was lovely- a breath of fresh air!

[SheffieldJane in reply to Marlenec]

I feel happy for you. She restores the faith.

[Jackoh]

Good news as you’re now on the right track

[Marlenec in reply to Jackoh]

Yes, so true! Thank you.