Where Two of us will be at 6pm today : Join me for... - PMRGCAuk

PMRGCAuk
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Where Two of us will be at 6pm today

jinasc
jinasc
โ€ข104 Replies

Join me for a glass or two, three, four, in my Sitooterie with Joan (90) the back garden.

It is my 82nd today, so I am breaking rules, which I have done all my life.

Before PMRpro says it "No change there then".๐Ÿท๐Ÿฅ‚๐Ÿฅƒ๐Ÿธ๐Ÿท๐Ÿฅ›

104 Replies
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Hidden
HiddenModerator

It would be very cheering to raise a glass to your birthday!!

Had to change the gist then....

Enjoy๐Ÿฅƒ๐Ÿฅ‚๐Ÿพ๐Ÿท๐Ÿธ๐Ÿนโ˜•๐Ÿบ๐Ÿป

Many Happy Returns xx

Very Happy Birthday. Hope you and Joan are as well as can be and that north east wind has abated. x

Yellowbluebell
YellowbluebellAmbassador

Just off to get the wine and a large glass to toast.you with. Keep safexx

It will be a pleasure to join you, I will be in my garden too. Enjoy your day.xx

Fantastic - enjoy! ๐Ÿ’ฅ๐Ÿ’ฅ๐Ÿพ๐Ÿฅƒ๐Ÿฅƒ๐Ÿธ๐Ÿพ

I will drink to you. Congratulations!

Happy Birthday! Enjoy! ๐ŸŽ‰ ๐Ÿฅ‚๐Ÿท๐Ÿ‘๐Ÿป

Since that will be 8 am for me, it will have to be coffee and Bailey's!!

jinasc
jinasc
in reply to nuigini

๐Ÿซ๐Ÿซ๐Ÿต

Had one at 10am in the garden.............but chocolate with the Baileys...............lush xxx

nuigini
nuigini
in reply to jinasc

You're my kinda gal!!

PMRpro
PMRproAmbassador
in reply to nuigini

Prosecco is the breakfast option ... ;)

nuigini
nuigini
in reply to PMRpro

I would love to toast with Prosecco. However, my wine cupboard is bare. The sale of liquor was banned in Panama in mid-March!!!

PMRpro
PMRproAmbassador
in reply to nuigini

Mercifully the Italians realised that would not be a good idea!!! Currently life without a G&T in the late afternoon would be a bit miserable! Getting through an awful lot of t-bags at present though.

nuigini
nuigini
in reply to PMRpro

I've been avoiding the high carb cocktails for some time. I love G&T but the sugar content of tonic scares me and diet tonic ruins the drink for me.

I'm now dipping into the hard liquor in the afternoon but without high calorie mixes i.e. gin or vodka martini, bourbon or other whiskey on the rocks with a splash of water, tequila with lime and soda, Compari and soda or a Nigroni.... Lots of options for as long as there's something left in the liquor cabinet.

PMRpro
PMRproAmbassador
in reply to nuigini

Don't like full-fat tonic - has to be the expensive stuff or diet and we have finally found a reliable supply. Do like Aperol or Campari spritz.

Suet3942
Suet3942
in reply to PMRpro

Are you still in lock down pro?

PMRpro
PMRproAmbassador
in reply to Suet3942

Oh yes!!! No change here really although certain shops are open again and small businesses (5 or fewer staff) are back. And road repairs - since there is next to no traffic!

Hidden
HiddenModerator
in reply to nuigini

I don't drink but ๐Ÿ˜ฑ

PMRCanada
PMRCanada
in reply to nuigini

Oh no!!

I found a bottle of my favourite Prosecco at the back shelf of the fridge while spring cleaning. Score! ๐Ÿพ๐Ÿฅ‚ Iโ€™m saving it for when my first twin grandsons are born (sheโ€™s past 33 weeks now ๐Ÿคž).

Canada designated both liquor stores and (online) Cannabis stores essential services. Bless them!! (of course they do make $ from taxes when these items are purchased)

Any chance you can purchase alcohol from a hotel thatโ€™s likely not busy these days? Or online somehow? Hope your stash lasts as long as the restrictions. I feel for you...yet another ripple effect from this pandemic.

nuigini
nuigini
in reply to PMRCanada

Best wishes on the twins!!

No to purchasing hotels or anywhere. Fines can be up to as much as $10,000 US if someone is caught buying or selling alcohol.

PMRCanada
PMRCanada
in reply to nuigini

Thank you.

Yikes (re the fines)!!

Of note, my daughter and her partner had a trip to Panama booked for the end of March. That didnโ€™t happen, but they do hope to get there someday.

PMRpro
PMRproAmbassador
in reply to PMRCanada

All our hotels, bars, restaurants are firmly CLOSED! Not expected to return until mid-May at the earliest. But since face masks will be compulsory - how can one drink and eat? Aperol spritz will be OK, through the usual straw, but pizza? And beer and wine?

Drinks markets are closed - presumably because their main business is said hotels, bars and restaurants. But our supermarkets have amazing inventories and will sell us alcohol - but not new clothes ...

Constance13
Constance13
in reply to PMRpro

Face masks must be worn in shops, buses and trains from Monday here.

No notice at all when restaurants and hotels will open (it has been intimated it will be mid-May to mid-June).

PMRCanada
PMRCanada
in reply to PMRpro

Well as long as the liquor supply chain remains open, folks will care less what they are wearing! ๐Ÿ˜‚๐Ÿ˜‚๐Ÿคฃ

I can only imagine what โ€œreturn to normalโ€ plans look like where you live. Each region/country are grappling with said plans...like a global experiment really. Somehow it feels like life will be forever changed. We will recall life before the pandemic....and life after it.

PMRpro
PMRproAmbassador
in reply to PMRCanada

I think that is probably true. But for many of our generation I suspect it may be less of an imposition than for our offspring. Mine, like me, are very disinterested in materialism, but they do also work in healthcare.

Meggsy
Meggsy
in reply to PMRCanada

Liquor stores also remain open as an essential service in Australia. Still trying to work that one out but remain grateful. ๐ŸŒป

PMRCanada
PMRCanada
in reply to Meggsy

I believe keeping liquor stores open reduces the risks of fatality due to sudden withdrawals for persons struggling with substance abuse (in this case alcoholism).

In Canada, at first, Cannabis stores remained open as well. Later they were ordered closed, but the provincial online cannabis store is still operational (although deliveries take some time due to the demand in online orders).

Hidden
HiddenModerator
in reply to PMRCanada

I agree. It's potentially fatal to remove alcohol for alcoholics without close medical supervision.

Bridge31
Bridge31
in reply to nuigini

Why ?

Yep, when weโ€™re Spain (should have been there now but the consolation is fab weather in Lancashire at the moment) we often have a cava with brunch ๐Ÿพ๐Ÿฅ‚๐Ÿ˜Š(and occasionally in the uk too but shhhh... donโ€™t tell anyone ๐Ÿ˜‚)

Two of my mates are stuck in their house in Spain (they went over two weeks before the 'lurgy came'. This week they should have been cruising and in UK for his 70th in May. He rang yesterday, they have had a couple of weeks with steady rain...........so the rain in Spain does not just mainly fall on the plain'.

PMRpro
PMRproAmbassador
in reply to jinasc

Better there than on a cruise though!

jinasc
jinasc
in reply to PMRpro

That is exactly what I told him and he said 'I had not thought of that' and went off a happy bunny. Today he sent an email, the cruise company have offered him a 25% upgrade when he rebooks. Jammy he is...............

Just sent you a photo of a person drinking a glass last night.

PMRpro
PMRproAmbassador
in reply to jinasc

I'd rather have 125% refund! You won't catch me on a cruise in the near future - if at all! Nor a plane. They are worrying about getting hotel hot water systems cleaned here - legionnaires disease.

Yep cruising is a definite no no for me at the moment. We should have been in Spain for nearly 3 months from end of March to late June but thatโ€™s obviously gone - (unless a miracle cure is found and we can have the later part) - and we still have flights booked to Seattle for a month from mid August to mid September to do an Alaskan cruise and a Yellowstone trip ... canโ€™t see that happening either ๐Ÿคช but weโ€™re hoping BA will cancel the flights before we have to๐Ÿคž... Itโ€™s all a real step change to the way we run our lives now isnโ€™t it ... but hey ho.... in the great scheme of things we in the west are still by far the most fortunate people on the planet and if this is giving us a little taste of some of the constraints of the vast majority of the global population them maybe somehow we might (and the planet might) benefit somehow? Gosh, this is a bit deep for a Sunday morning isnโ€™t it - Iโ€™m off out to do more gardening๐Ÿ˜Š...

Yes the weather in Spain has been awful recently, certainly in the Murcia region which is where we go and hereby have lots of friends locked down down there ... now Iโ€™ve got over my initial tantrum, I think we were lucky to be just a couple of days too late to leave the uk - and Iโ€™d forgotten how lovely spring in The UK can be ...

Ipadmom
Ipadmom
in reply to nuigini

Oh, I had forgotten how good Baileyโ€™s is. Havenโ€™t had it for years. ๐Ÿ˜

Happy Birthday

I have broke the rules as well went out for a walk yesterday twice

In shielding group so should not be out at all .

I am getting to stiff even doing excesses at home I did go out at 7.00am not a sole around and at 9.OO pm again saw no one feel so much better for it .

Enjoy your day

Constance13
Constance13
in reply to Rose54

Go for it!๐Ÿ’ฅ Can't really see it can do you any harm if you don't meet anyone, don't touch anything, keep your hands off your face, don't touch your hair (can't think of any others).๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ BUT - don't forget to wash your hands, put all your clothes in the washing machine, etc etc. You might be able to relax then and ask yourself "was it worth it"?????

Rose54
Rose54
in reply to Constance13

Wear Scarf over nose and throat ,head band to keep hair of face and sunglasses carry hand gel on me as well .

PMRpro
PMRproAmbassador
in reply to Rose54

I have to say - re the touching your face, I have found wearing a mask like the sort we used playing cowboys and injuns in the 1950s (when we hadn't heard of PC-ness) makes a great difference. It stops my hair tickling my face!

Constance13
Constance13
in reply to PMRpro

Mine irritates me more at home! Tried all sorts of things to keep it tidy and off my face. It's so fly-away!

Rose54
Rose54
in reply to PMRpro

Scarf as face mask .hair band to keep hair out of eyes and sunglasses

I found like you I was having to brush hair out of the way .

Dont care what I look like

Suet3942
Suet3942
in reply to Rose54

Canโ€™t see the problem if we stay clear of others.

Rose54
Rose54
in reply to Suet3942

I do agree but you never can be to careful

and I for one am not willing to take any chances .

Hidden
HiddenModerator
in reply to Suet3942

I am basically isolating so don't trust others to keep clear of me....or their bodily "releases" to do so. I have to go (again) for bloods to be taken at a drive through. I live in a built up area where people can disappear into houses and round corners coughing, sneezing, breathing in the street which is less than 10m wide and each path around a metre. I suspect if there are asymptomatic people wondering around, and I believe there are, then the viral load is practically unknowable anywhere, including in a place like my street.

There is no way I risk it and even when I went into the street to get in the car for the blood test, I did watch the street for a good while before I went out. I may be over careful but high risk means high risk to me and there are things some research shows like:

Our results indicate that aerosol and fomite transmission of SARS-CoV-2 is plausible, since the virus can remain viable and infectious in aerosols for hours and on surfaces up to days (1)

And things that are as yet unknown:

Another crucial unknown is the infectious dose: the number of SARS-CoV-2 particles necessary to cause an infection, says Lloyd-Smith. โ€œIf youโ€™re breathing aerosolized virus, we donโ€™t know what the infectious dose is that gives a significant chance of being infected,โ€ he says. An experiment to get at that number โ€” deliberately exposing people and measuring the infection rate at different doses โ€” would be unethical given the diseaseโ€™s severity. (2)

1.

nejm.org/doi/full/10.1056/N...

2.

nature.com/articles/d41586-...

Good for you,and a very happy drink sozzled day. Sometimes rules can be quite boring.

Oh Happy Biryhday!!!!๐Ÿค—

A very Happy Birthday! Itโ€™s a gorgeous day so have a lovely time with your friend!

Lots of virtual hugs xxxxx

Have a lovely birthday and a merry evening, cheers!

I'll be there - I'll bring a bottle! Hope you are both doing well.

DorsetLady
DorsetLadyPMRGCAuk volunteer

Dear Hel,

Have a great day,

Freyja xx

Many happy returns! Enjoy your drink in the sunshine.

Happy birthday. I will be joining you

That sounds fun, many many happies!

Wishing you a truly special day to celebrate YOU!! These days we are getting creative and growing our appreciation for such celebrations. If I make it to age 82....Iโ€™ll be drinking in the garden too. Cheers!

PMRpro
PMRproAmbassador

Hi jinasc! It is 7.05pm here in deepest northern Italy - 6.05pm at yours. I have a glass of white wine in my hand and am raising it to the lady without whom very little of PMRGCAuk would be active.

We owe you a great deal - many many happy returns!

xxxxxxxxxxxxxxxxxxxxx

jinasc
jinasc
in reply to PMRpro

Thank you, but just remember:

a) I am not a lady

b) without you I would not have achieved so much, others contributed as much as they could. It is just I have a first class honours degree in being awkward and have a mouth the size of Tynemouth.

I raised a glass to absent friends and thought about all who have PMR and GCA and the others that have different auto immune illnesses. It is so sad when our bodies turn on us and we are all asking the question 'why me' when the answer is 'why not me'.

I look at people and as I did as a kid, I still wonder........the human race is a wonderful, mysterious and complex. I can sit alone in a cafe or a park or anywhere and just look at people. We are a fascinating bunch - warts and all.

My neighbours came over and sat spread out in the garden, which was hilarious and we toasted you all at 6pm.

Thank you all for your wonderful thoughts. Stay well and stay safe and remember there is a light at the end of every tunnel, we just damn well do not know how long the tunnel is - but you are never alone if you reach out..........

I hope Mother Earth forgives us for the mess we are making of our planet.

Night night and sleep well. xxxxx

Hidden
HiddenModerator
in reply to jinasc

๐Ÿท๐Ÿ˜˜

Perkey
Perkey
in reply to jinasc

Very happy birthday. I will join you in a glass seems red wine now suits me best and then only one I canโ€™t believe it after a lifetime of enjoying all but at 86 must accept my limitations and stiff legs. ๐Ÿ˜‡๐Ÿท๐ŸŒบ

jinasc
jinasc
in reply to Perkey

Good for you, you have the balance and sense to know your limitations, although your head still thinks you are 21.

My Cousin, who lives with me is 91 on 11 Sept and she has gone off all alcohol, which leaves more for me.๐Ÿฅƒ That glass has Brandy in it.

Not jinasc today - Brandy Queen and bless those medieval monks who developed it as a medicine. ๐Ÿ˜Š

Stay safe

Perkey
Perkey
in reply to jinasc

Here here I enjoy a nice. Brandy too but not as well as I have to make the decision. Xxx

Joined you in a nice glass of rose. Happy Birthday

Hidden
HiddenModerator

I had a bowl of chilli and a Pepsi Max! CheersXx

A very happy rest of your birthday!

Thank you very much for your advice to contact Dr. Mackie. (re GCA or not update). Today I had a telephone appointment with her for her second opinion and she said that I do have GCA. I'm not unhappy about this, just relieved that I am now with Sarah Mackie.

Stay safe.

Best wishes

Marlene

jinasc
jinasc
in reply to Marlenec

You are now in safe hands.

Marlenec
Marlenec
in reply to jinasc

Yes I do feel safe now. Thank you.

Hope you have a fabulous day. XX

You've been bad for 82 years. Why change now?

Happy Birthday!

Many Happy Returns and thank you for your help when I first joined the forum ๐Ÿฆ‹

Wishing you a very happy birthday!! ๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐Ÿ˜‚๐Ÿฅ‚๐Ÿฅ‚๐Ÿฅ‚๐Ÿฅ‚

We joined you and sent a picture from our garden- but we didnt know it was your birthday. Belated birthday greetings!

jinasc
jinasc
in reply to Domstad

No picture yet..............bet you are using old email address..........will send you another photo today.

Stay safe Mr instigator of the tapering plans. ๐Ÿ‘๐Ÿ‘

Dear jinasc, your Sitooterie looks amazing! I hope you had a lovely time in the garden celebrating your birthday in this beautiful weather. So good for the soul! Chin Chin! ๐Ÿฅ‚๐ŸธThank you for your swift support when I recently first joined the forum and to all the lovely ladies who have provided marvellous advice. Have a super weekend! ๐Ÿ˜ƒ

Happy Birthday to you! Will dig out the Pimms (left over from last summer, found it tโ€™other day) and raise a glass to you! S x

Happy birthday (belatedly)! It was a lovely day to spend outdoors. Enjoy the rest of the weekend. x

A very happy birthday xxx

That's my kind of birthday๐ŸŒท๐Ÿท

just going to get a scotch..haven't had any for ..a long time , over 6 months!.. this calls for a celebration! Also I am off my first trial of methotrexate for three weeks now (supposed to get tested again as my liver enzymes went up ..but have postponed going out and I'm feeling a bit better)...besides I've a hypothesis that neat single malt scotch will kill corona virus in the mouth and if I gargle maybe there too? It seems when one does a DNA test to lower the microbiome one should swish moth etc with pure vodka or scotch about an hour before as it kills most of the microbiome...so , well it will beat bleach (don't try bleach anyone)!

PMRpro
PMRproAmbassador
in reply to Jan_Noack

Meme on FB suggesting Dettol over ice - I reckon it will taste like Leapfrog or another peaty whisky ...

jinasc
jinasc
in reply to PMRpro

Do they ever read LABELS? I should have learned by now, that no-one even reads the paper accompanied by all prescribed medicines.

Had a lovely time with Graeme and Claire 8 yards apart in the back garden and we drank to absent friends at 6pm and talked about the 'bash'. Yes they both remember you and your OH. xxxxx

Sounds like you had a loverly celebration. Happy birthday!๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰

Love it.x

Happy Birthday! Hope you enjoy your day xxx

Happy Birthday jinasc. Hereโ€™s to many more!

We did the same for my SIL yesterday who sadly passed a few weeks ago - would have been 52 - so continue to do as you want when you want - within reason that is as life is too short. Cheers ๐Ÿฅ‚๐Ÿท๐Ÿธ

Hope you had a lovely day.

jinasc
jinasc
in reply to Telian

I did and tonight I will raise a glass to your SIL.

Telian
Telian
in reply to jinasc

Thatโ€™s very kind of you.- Cheers to Tracey! X

Haha - my friends on the West coast talk about their 'sitooterie' and I thought they'd made it up themselves. I'm assuming now that it's a regular Scottish term. Love it though.

Happy Birthday to you .

PMRpro
PMRproAmbassador
in reply to MrsChips

It is - just google it!!! My friend in Newcastle calls it an Executive Shed ...

Would love to ! May have to get a bottle of champagne to celebrate. :)

Many Happy Returns jinask! I will raise a glass to you this evening and wishing you and Joan a wonderful 'cocktail hour' or two :) xx

Happy Birthday. Enjoy the day ๐Ÿฆ‹๐Ÿฆ‹

Sorry I missed it, Iโ€™d have loved to have โ€˜metโ€™ some of you. I hope the birthday was a good one and that you all had a great time on zoom ๐Ÿ˜ƒ๐Ÿ‘

Happy birthday. Hope you have a lovely day. ๐Ÿท๐Ÿท cheers!!

A bit late coming to the party ( literally) but hope you had a great day!! Belated happy birthday!

Sorry Iโ€™m a day late, only just reading this, but hope you had a lovely birthday ๐Ÿฅ‚๐Ÿพ cheers x

Cheers! and best wishes๐Ÿฅƒ๐Ÿฅ‚๐Ÿธ๐Ÿน๐Ÿท Oh, I hope it was a grand celebration!

Iโ€™m a bit late but I do hope you had an enjoyable and relaxing day. I will have a tipple tonight in your honour - Marea ๐Ÿ’•๐Ÿฅ‚๐ŸŒป

jinasc,

Many many thanks for your time and effort spent in sending me the booklet and DVD.I received it today,Friday,and have as yet spent literally no more than 30 minutes reading the booklet. If I had read this way back in December when it all started then I may well still have made some of my mistakes but with a much clearer understanding.

I have spent so much time researching PMR/GCA/Steroids/PMR representing as RA etc,etc,and the real puzzle being that I haven't been able to find a description anywhere of the absolute and mind numbing pain of those early weeks.

Yet here in your booklet I can see a clearer example of what my experience was.

I cannot explain enough just how much this booklet helps,why on earth are they not given out at doctors surgeries etc,I haven't even watched the DVD but I will over the week end.

Once again a big thank you,I have decided to join PMRGCA as they appear to be the clear leaders,in my case,in providing support and and when needed a kick up the backside.

Well done you and all those like you.

Kind regards,

Yorkie

That is a post I did not expect to see. I am happy to see that you are going to join the Charity, it is run by Volunteers and 2 part time employees. Without them, we would all still be struggling. The age range would still be late 60's onwards, and not down to 50. There would be no fast track, which is not yet in every major hospital

I only have a tiny few spares, but when someone is really in need in my eyes I make the offer.

There are local, actual support groups and I would urge all to join them.nothing like a face to face. If anyone one is interested, PMRGCAuk North East Support Group have a few copies available. There is a small charge.

The booklet is slightly out of date, but 99% of it still applies, progress has been made since both the DVD and Booklet were produced..

I am so pleased that with a bit of luck and a fair wind, you will have gained some knowledge and that is power and also, perhaps, gently educate some medics you may come across.

In the meantime, we are here so ask away however idiotic the question might appear to you - they very rarely are.

Have a most glorious birthday love the flowers I would love to see your backyard I am a flower person and have a great birthday thanks for sharing and a wonderful remission

Although I missed your birthday a few weeks ago, I just wanted to say hello and Happy Belated Birthday! ๐ŸŒน

Thank you for your kind wishes. I did have a lovely time in spite of the 'lurgy'.

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