Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2019

Are bacteria involved?

According to an article in the New Scientist (10/8/19 No 3242) some scientists think Porphyromonas Gingivalis (a bacterium) may be partly to blame for a wide...

According to an article in the New Scientist (10/8/19 No 3242) some scientists t...

Tonylynn

•5 years ago

15 Replies

Is difficulty with walking a symptom of a PMR flair

Hi, after tapering down to 1 (now about a month) I have suddenly started having problems with walking. First I was moving awkwardly and this morning I could...

Hi, after tapering down to 1 (now about a month) I have suddenly started having ...

Robinre

•5 years ago

24 Replies

ESR risen

Just got the result of my latest ESR blood test and it has gone up from 13 to 24. I am going to up my Pred from 4mg to 5mg. When should I get my next blood...

Just got the result of my latest ESR blood test and it has gone up from 13 to 24...

Koalajane

•5 years ago

8 Replies

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So tired!

Thanks to all you wonderful people for keeping me going for these past three years of PMR! Early this year, I started feeling that maybe PMR was loosening its...

Thanks to all you wonderful people for keeping me going for these past three yea...

judyb100

•5 years ago

39 Replies

Thin skin

Any suggestions on how to deal with paper thin skin? Slightest bump rips skin or produces large bruises.

Any suggestions on how to deal with paper thin skin? Slightest bump rips skin or...

Notaddi

•5 years ago

19 Replies

hereditory

i did not know pmr was hereditory i have had pmr for 7 years, back down to 1 mg. but my daughter who lives in brisbane spoke to me and said she had...

i did not know pmr was hereditory i have had pmr for 7 years, back down to 1 ...

pollyg263

•5 years ago

24 Replies

PHYSICAL THERAPY : WHEN IS THE TIME RIGHT?

After almost three years since diagnosis, I knew I was deconditioned and asked for a script for PT. Now I am wondering if it's doing me more harm than good....

After almost three years since diagnosis, I knew I was deconditioned and asked f...

Christophene

•5 years ago

41 Replies

Eyes post cataract surgery.

I visited the hospital yesterday and was surprised at the interest in my steroids that the opthamologist displayed. Can anyone enlighten me on how much...

I visited the hospital yesterday and was surprised at the interest in my steroid...

prunus

•5 years ago

27 Replies

Results from 1st Rheumy appointment

Hi friends, I had my first appointment with the Rheumatologist yesterday and she said that part of my story does not line up with PMR. I think she is wrong...

Hi friends, I had my first appointment with the Rheumatologist yesterday and sh...

BoaterAnnie

•5 years ago

36 Replies

Wrist pain

My wrist pain started few years ago and it gets worse Recently I found sever pain around my thumb and everyday I struggle to twist my hand to open door knob...

My wrist pain started few years ago and it gets worse Recently I found sever pa...

catherinetokyo

•5 years ago

55 Replies

Oh those adrenals!

Once again I have been asking myself what in the world is wrong with me? I have lost interest in my garden, which I love, love, love, and my pets seem to be...

Once again I have been asking myself what in the world is wrong with me? I have ...

bunnymom

•5 years ago

34 Replies

Just a quickie!

Good afternoon everyone. Thank you to those who gave me advice on Turmeric. I started taking Turmeric last Friday and I don't know whether its coincidence or...

Good afternoon everyone. Thank you to those who gave me advice on Turmeric. I st...

Fredddie

•5 years ago

12 Replies

foul taste in mouth and urine odor?

This is driving me crazy.......Is prednisone the culprit? Or is Leflunimide? or the combination? very strong and strange.

This is driving me crazy.......Is prednisone the culprit? Or is Leflunimide? or...

composition

•5 years ago

24 Replies

The Vapours, follow up

I thought I'd start a new thread as my previous has moved on. I had a lovely day yesterday. It was a lovely autumnal day and we did a few jobs around the...

I thought I'd start a new thread as my previous has moved on. I had a lovely day...

IdasMum

•5 years ago

13 Replies

New York Times article.

Getting the Right Care for Painful Autoimmune Conditions https://www.nytimes.com/2019/08/19/well/live/arteritis-autoimmune-conditions.html "She then saw...

Getting the Right Care for Painful Autoimmune Conditions https://www.nytimes.com...

IdasMum

•5 years ago

6 Replies

Are the drugs working?

Morning everyone, thank god the weather seems to be changing and we are in for some sunshine again! and we have bank holiday to look forward too. My latest...

Morning everyone, thank god the weather seems to be changing and we are in for s...

Anne-NRAS

•5 years ago

17 Replies

Travel/health insurance post PMR diagnosis going UK to Canada

My first post, treated for PMR since Jan.2019, preds currently at 12 mg a day. Am about to travel from the UK to my native Canada to attend to my elderly...

My first post, treated for PMR since Jan.2019, preds currently at 12 mg a day. A...

writered

•5 years ago

10 Replies

Thank you

Thank you to all the people who replied to my post regarding my blurred eyes. I am sorry it has taken me so long to reply, but I have not been 100 percent....

Thank you to all the people who replied to my post regarding my blurred eyes. I ...

Blackcat1M

•5 years ago

9 Replies

Cold weather and pmr

Is pmr worse when the weather is cold? Background two yrs and four months pmr . Manage mostly on 0,5 mg pred. But with the cold weather more pain. Anybody...

Is pmr worse when the weather is cold? Background two yrs and four months pmr ....

Kaaswinkel

•5 years ago

20 Replies

Very bad taste in my mouth

Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of...

Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experien...

Mstiles

•5 years ago

25 Replies

Very bad taste in my mouth

Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experience, but for 3-4 weeks it’s been a lot worse. I’ve recently had a lot of...

Hello everyone, I’ve had acid reflux off and on since this PMR/GCA experien...

Mstiles

•5 years ago

1 Reply

Pain again on 9mg Prednisonone

I have never definitively been diagnosed with PMR , merely responded to Pred last year to upper arm pain. Having tapered right down with no problems after a...

I have never definitively been diagnosed with PMR , merely responded to Pred las...

Breconblue

•5 years ago

48 Replies

headache

i am off prednisone for a month but am having pain at the back of my head.it is intermittent.

i am off prednisone for a month but am having pain at the back of my head.it is...

piping9

•5 years ago

4 Replies

Touched by kindness

Overwhelmed by the kindness of all of you who have posted good luck messages after my announcement of finally getting off pred. I posted this to encourage...

Overwhelmed by the kindness of all of you who have posted good luck messages aft...

PenelopeVita-Finzi

•5 years ago

3 Replies

Am I a lucky one?

2 years of pmr and 22 months on pred, starting on 15 and now down to one mg. Only pmr type symptoms left are a stiffish neck and, occasionally, some very tired...

2 years of pmr and 22 months on pred, starting on 15 and now down to one mg. Onl...

Studland

•5 years ago

7 Replies

Gout

Has any of you developed gout with your pmr?

Shelly62

•5 years ago

11 Replies

Keto

Heard a lot about this Keto anyone know anything about this please

Annecath

•5 years ago

71 Replies

Vertigo

In the process of reducing Prednisone from 13.5 to 13 using the DSNS method. Have been experiencing significant bouts of vertigo and dizziness the last few...

In the process of reducing Prednisone from 13.5 to 13 using the DSNS method. Hav...

rocketman42

•5 years ago

13 Replies

Reducing to zero.

Hi everyone, I have started my second attempt at getting down to zero Pred. I am doing the dead slow and stop method and went without any Pred on Friday. I had...

Hi everyone, I have started my second attempt at getting down to zero Pred. I am...

Attic

•5 years ago

20 Replies

BP problems

During my almost two and a half year journey, I've had many side effects from the Pred but my BP has never been a cause for concern. I take a tablet called...

During my almost two and a half year journey, I've had many side effects from th...

Janann25

•5 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

Are bacteria involved?

Is difficulty with walking a symptom of a PMR flair

ESR risen

So tired!

Thin skin

hereditory

PHYSICAL THERAPY : WHEN IS THE TIME RIGHT?

Eyes post cataract surgery.

Results from 1st Rheumy appointment

Wrist pain

Oh those adrenals!

Just a quickie!

foul taste in mouth and urine odor?

The Vapours, follow up

New York Times article.

Are the drugs working?

Travel/health insurance post PMR diagnosis going UK to Canada

Thank you

Cold weather and pmr

Very bad taste in my mouth

Very bad taste in my mouth

Pain again on 9mg Prednisonone

headache

Touched by kindness

Am I a lucky one?

Gout

Keto

Vertigo

Reducing to zero.

BP problems

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