Are the drugs working?: Morning everyone, thank god... - PMRGCAuk

PMRGCAuk

21,219 members40,230 posts

Are the drugs working?

17 Replies

Morning everyone, thank god the weather seems to be changing and we are in for some sunshine again! and we have bank holiday to look forward too. My latest purchase is a compact caravan, my wanderlust adventures start on Saturday and I am off with the dog and my friend and her dog to Yeovil. Never towed a caravan or set one up once parked - plenty of potential for hysterics and drama!

I also wanted to update on the Leflunomide - I'm not noticing any miraculous changes yet and wondering if its still too soon !? I'm not going to reduce my pred (5mg a day) until the Leflu has kicked in. This morning for example I didn't take all my pills until about 9.30 when I got into work and I am definitely noticing it.

It's been 2 years and still so frustrating!!

Read more about...
17 Replies
PMRpro profile image
PMRproAmbassador

Everyone is different and leflunomide DOESN'T work for everyone - even though the pilot study was claimed to have been a success for all the patients.

Have fun camping - been our preferred holidays for 45+ years! But we now have a camper van - nothing to tow, nothing to set up. Hope you get good weather - I'm just cringing at the forecast for Weds in the north and what might come in Scotland afterwards ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi, have fun.

Dorset weather looks good for next 10days - Yeovil only just over border - and looks ok there as well!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

It wil deteriorate the middle/end of next week ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

As they say down here in deepest darkest Darzet - “where you be looking to?” - forecasts I’ve looked at say okay until end of month!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

I'm saying that as we are heading for Charmouth area middle of next week. Never mind the forecast - it always goes south when we arrive ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

Thought that maybe was what you were implying!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

It hasn't been too bad thus far - just a tad draughty on the North Yorkshire moors - but the forecast for the NE and Scotland isn't too bright for the next few days!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

Ahh well - ‘tis August!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Thought monsoon season was in July ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

... waited for you obviously!

piglette profile image
piglette in reply toDorsetLady

Supposed to be really looking good by the end of the week. Hurray.

PMRpro profile image
PMRproAmbassador in reply topiglette

In the south. I will be in the north ...

piglette profile image
piglette in reply toPMRpro

Sky gave the impression it would be everywhere except Ireland.

PMRpro profile image
PMRproAmbassador in reply topiglette

I'll let you know if it gets to Edinburgh!!!!

Memories of a family holiday in South Wales when the family friends caravan rolled and hit the front of our car. Bloke and my dad having a "put the brake on next time" conversation through gritted teeth. Then dad releasing our caravan which shot off down the hill with my 12yr old bro spreadeagled on the back running backwards....it went 30yds down the field and tipped on top on my brother in a ditch. My dad had hung on to the towbar bit with no joy. There were about 8 of us chasing after them.....screaming and laughing. Dad was not pleased...and bro was a bit nettled. Good first day....good memory. Thanks.🤣🤣🤣

cranberryt profile image
cranberryt

Enjoy your holiday and don’t overdo it!

SheffieldJane profile image
SheffieldJane

You sound like you are in a happy place! Enjoy your holiday!

Not what you're looking for?

You may also like...

Survived the weekend

I'm welcoming Wednesday.. its almost the end of the week! you know that feeling when you have had a...

Adrenals are working!

I had a ACTH Stimulation Test this morning and just got the results back from my Endo. She said...
pmac22 profile image

GCA, tapering and blood tests.

I see Ann 1 asked a similar question and I am wondering about further tapering. I went down from...
Pippah45 profile image

Working with PMR&GCA

Hi I am currently signed off having had a flare, my bloods reflect this although thankfully, not up...
lesley2015 profile image

Alendronic Acid and...

Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind...

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.