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Annecath profile image
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Heard a lot about this Keto anyone know anything about this please

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Annecath profile image
Annecath
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71 Replies

Hi annecath, a keto diet is basically a low (or no) carb, high fat diet. Some people cut most carbs out and just eat meat and fat. Other take a more low carb diet, high good fat diet. I try and eat around 40g and 60g of carbs in my diet which isn't very much. I still lose weight on that. Some have to go as low as 20g of carbs a day to lose weight. I am linking you to the diet doctor website. Usually we have taken advantage of the free 7days to get a sense of what it involves.

dietdoctor.com/low-carb/keto

The link below tells you how many carbs are in common everyday foods. It's up to you how you want to incorporate low carbs. I always suggest you spend a week calculating your usual grams of carbs then knock 25% off the following week. Then drop to 50% of overall carb count you were originally on. Then work out how high or low you want to go from there. Ask any questions once you get a sense of it. The lists of carb content are towards the bottom.

ditchthecarbs.com/guide-to-...

I hope you are doing ok. Make sure your Dr is on board with such a restrictive diet. But if you eat "healthily" there should not be an issue.low carb helps keep blood sugar down from pred spikes.

Annecath profile image
Annecath in reply to

Thankyou for your help

Koalajane profile image
Koalajane

I do low carb high fat and have about 30g of carbs a day. It is great for my diabetes (type2) but i don’t think it has helped my PMR as some say it does.

scats profile image
scats in reply toKoalajane

I think part of the reason for low carb is to help those of us without diabetes to avoid getting it. At least that's how I look at it.

PMRpro profile image
PMRproAmbassador in reply toscats

And it helps avoid weight gain. Far less to do with the PMR though I had a surfeit of carbs yesterday and really noticed this morning!!!!

scats profile image
scats in reply toPMRpro

Must have been something about yesterday, me too!

Actually OH has his pre-op on Tuesday and the stress is high and carbs are what I crave when I'm stressed. I think his stress has a direct feed to me! I know that when we're through this period I will be able to reduce pred and carbs and feel better because I've done it before🤞

PMRpro profile image
PMRproAmbassador in reply toscats

xxxxxx - mine was afternoon tea as a birthday treat. It was nice - especially the rhubarb mousse and cream (all 3 as no-one else liked them ...)

scats profile image
scats in reply toPMRpro

Many happy returns!

in reply toPMRpro

Happy rhubarb day ...sounds delish 🤗

PMRpro profile image
PMRproAmbassador in reply to

It was! Tha was 3 servings of fruit/veg I decided!

in reply toPMRpro

I used to love the m and s timperley rhubarb trifle. It's definitely your 3 portions of vegetables for the day.

Yellowbluebell profile image
Yellowbluebell in reply toPMRpro

Rhubarb mousse sound gorgeous.and vaguely healthy if you dont mention the cream!!

in reply toYellowbluebell

Cream is low carb in terms of LCHF ....

Blearyeyed profile image
Blearyeyed in reply toPMRpro

Many happy returns Pro , may your life be full of rhubarb mousse and ice creams with 0 calories XXX

All birthday treats are calorie and guilt free anyway !😋😁

Yellowbluebell profile image
Yellowbluebell in reply toBlearyeyed

You say this but you said that about advent calendars and we know where that led me to

Annecath profile image
Annecath in reply toPMRpro

Sounds good

Telian profile image
Telian in reply toPMRpro

Happy Birthday! You’re just a week after mine - think I have a few years more ‘experience’ than you though! I’m 21 with 50 years experience!

PMRpro profile image
PMRproAmbassador in reply toTelian

It was a late b'day treat - the actual day was the 4th

Telian profile image
Telian in reply toPMRpro

....before me then I’m the 10th..

Rimmy profile image
Rimmy in reply toPMRpro

Belated 'Happy Birthday PMRpro - and happy you treated yourself !!

PMRpro profile image
PMRproAmbassador in reply toRimmy

No - daughter and SIL paid! Even better!!!!!

Yellowbluebell profile image
Yellowbluebell in reply toscats

I didnt even get an invite to the scones and greengage jam the other day!!

scats profile image
scats in reply toYellowbluebell

Too right! Some things you don't share!

Hang on this post was about NOT eating carbs. I do try most of the time.

Yellowbluebell profile image
Yellowbluebell in reply toscats

Thats not nice!! Surely the greengages count as one of your 5 a day.!!

scats profile image
scats in reply toYellowbluebell

I had rather a lot of them, probably two of my five. They were so sweet and juicy they were probably high carb as well.

Yellowbluebell profile image
Yellowbluebell in reply toscats

You wouldn't have eaten as many if you hadnt been greedy and not asked me over.!!

Yellowbluebell profile image
Yellowbluebell in reply toscats

At least I cant be blamed for making you eat carbs on that occasion.

Yellowbluebell profile image
Yellowbluebell in reply toscats

Unless I lead you astray in coffee shops!! Guilty!!

Annecath profile image
Annecath in reply toscats

Well I don't have diabetes do have diverticulitis so many foods I can't eat certain fruits and veg so maybe Keto is not for me thanks for your help

scats profile image
scats in reply toAnnecath

Diabetes is a possible side effect of taking pred long term.

in reply toAnnecath

I am just waiting for test having had 2 month of repeat bad tummy after eat and pain lower left of abdomen. This past week I seem to be a little better but dairy seems to set me off and high fibre. Given that I have diabetes, am veggie and low carbing I may be struggling for good food too. I am hoping my latest stool sample means I have 14weeks rather than just 2 to wait. Low carb doesn't work for everyone either so there may be another approach to good that will help you .

Annecath profile image
Annecath in reply toKoalajane

I have cut sugar cakes and biscuits out ,I have a really sweet tooth so struggling but do allow a little usually maltesers naughty but nice I am never sure about carbs so really need to read up and find out more thanks for your help

in reply toAnnecath

Annecath, the main thing is to find something that works for you and that does not feel restrictive. Better the odd bag of Maltesers if you can mainly eat nutrious foods in between. A good plan you cant follow is no good at all. Night. 🌻

Annecath profile image
Annecath in reply to

Thank you ,you are so right I will keep trying to find a way 😊

Annecath profile image
Annecath in reply to

Always the worst time for cravings

PMRpro profile image
PMRproAmbassador in reply toAnnecath

Have you seen dietdoctor: dietdoctor.com/low-carb

It is probably easier to cut the carbs slowly - by halving and then halving again you will get to a lowish level and get used to it slowly as your taste buds renew. After about 6 weeks at any given level, you will start to find sweet things very sweet - and eventually intolerably sweet.

Sheilamac profile image
Sheilamac in reply toKoalajane

I dont think it helps PMR but it does stop you piling on the weight from the steroids. I wish I'd known about it when I started Prednisolone.

Yellowbluebell profile image
Yellowbluebell

Coming from someone who.ignored the low carb advice and carried on eating my own weight in chocolate, a low carb diet would have prevented me putting on huge amounts of weight over the last 8/9 months.

in reply toYellowbluebell

You will be ready one day.

Yellowbluebell profile image
Yellowbluebell in reply to

I do ok during the day but come night and my insomnia and no carbs is a swear word i start craving Ritz and soft blue cheese!!

in reply toYellowbluebell

Definitely nights are snacky carb time.

Telian profile image
Telian in reply toYellowbluebell

I suffer the ‘night time munchies’ something terrible...

fmkkm profile image
fmkkm

Hi,

My daughter lost 50 pounds on it. After a few months she started loosing hair. The same thing happened to my daughter in law. They both decided it is not sustainable and they were probably missing some valuable nutrients from fruits and vegetables.

I am 3.5 - 4 years in with GCA and prednisone. I never gained weight and in fact am 15 pounds lighter. I have a list:

No sugar, gluten, dairy except organic yogurt, no processed food or drink. I eat loads of fresh vegetables and fruit. I have occasional oatmeal or brown rice.

in reply tofmkkm

We were hunter gatherers not just hunters but don't go on a keto forum and say that!

Yellowbluebell profile image
Yellowbluebell in reply tofmkkm

I am trying it at the moment but I admit I am not very disciplined about it. If I could lose a stone I would be very happy and then just try and maintain without pushing it so I lose hair.xx

Sheilamac profile image
Sheilamac in reply toYellowbluebell

But you can eat berries and vegetables just not the ones that grow underground.

Yellowbluebell profile image
Yellowbluebell in reply toSheilamac

I will have to have a good read of which fruits and veg are good as I am sure the fruit isnt helping.x

in reply toYellowbluebell

ditchthecarbs.com/guide-to-...

Telian profile image
Telian in reply tofmkkm

Well done you - you’ve found your ideal. That’s what we all hope for - how difficult was it? Suppose once you see the pounds disappearing it’s a very good incentive!

cranberryt profile image
cranberryt

I do a more balanced low carb, high protein, moderate healthy fats approach. It is shown to lower inflammation as well. 5x a day I have 100 calories balanced as 2-3g of fat, 10g protein, 10g carbs. Then 1x day I have a meal of 5-7 oz of lean protein, 2 servings of healthy fat (avocado, olive oil, nuts, etc), 3 servings of low carb vegetables. This stabilizes blood sugar levels, reduces inflammation and controls hunger and results in 1-2 piunds lost per week. Once to my goal weight I will add in complex carbs slowly until I hit my maintenance calorie level. Some people find that keto raises their cholesterol due to the high fat so this plan keeps the fats in check and works better for me.

Gabrieljj profile image
Gabrieljj

My rheumatologist mentioned that several of his patients had experienced a considerable lessening of their pain and stiffness by eating a very low carb diet because it can often be the body’s inability to process glucose that causes inflammation. I decided to try keto (20g net carbs - that is total carbs minus fibre: you need your fibre!) and within 8 days my PMR pain became no more than occasional background noise. A year on now and I’m still following this way of eating because I feel so well on it, all my blood results were greatly improved- including the inflammation of my liver which had looked like NAFLD. I’ve dropped 15kg as well, a fantastic benefit, making exercise easier and more enjoyable, so that has fed into the loop too. I’ve been very disciplined about what I eat, careful to maintain nutrients and electrolytes in balance, tracked everything using MyFitnessPal and am now being a little more relaxed about the carb intake, but still avoiding all sugars and foods that break down quickly to sugar. Fingers crossed, but it seems to have dealt with the PMR. I’ve been lucky to have been supported by my medical team throughout and I’ve really enjoyed learning new recipes and baking again using safe sugar substitutes. I’ve been lucky, so far, and I dare say it won’t work for everyone, since every body reacts differently, but keto for me has been like a magic wand, and it’s been great to see the medical literature supporting the safety and efficacy of a very low carb diet growing in strength and acceptance. People can be very negative and ignorant about this way of eating, but I know a lot of fellow sufferers for whom it’s been a godsend. As long as you have the support of your doctors, I’d say give it a go.

Magnoli-a1 profile image
Magnoli-a1 in reply toGabrieljj

I am also receiving huge benefits from following a Keto diet. I was diagnosed with PMR in January of this year and initially put on 15 mg of Prednisone. I was unable to complete my first taper a few weeks later as I immediately started to have those terrible pains again. I was successful in tapering to 12,5mg in early May. My OH and I went on a 5-day road trip at the end of May whereupon I flared again. My neck and shoulders were SO sore. I felt the pain creeping into my head. I should also say that I had gained 14 lbs during those 5 months. I was getting desperate. I have always had a healthy fear of getting diabetes. I truly hate that disease. My brother died at an early age from diabetes complications and my other brother and sister have it as well.

So..in mid June, I started on a anti-inflammatory/Keto diet. I restrict my carbs daily to 20, and am achieving good results. I really didn't think I would lose weight because Weight loss was always so hard to do but lo and behold, I have lost 10 lbs! I started tapering down from 10mg on Aug 1 and am at 7.5mg currently and still with no pain. I am very happy with this diet as it keeps me sated and so I will continue on this for some time. I remain quite strict. I follow the Diet Doctor guidelines. I urge fellow PMR sufferers to give it an honest try because for the benefits have been huge

fmkkm profile image
fmkkm in reply toGabrieljj

Hi Gabriel,

Diet has so much influence on how we feel. There is a lot of information now on autoimmune protocol diets (AIP). My diet is taken from some of the information I have gotten from those diets but a diet that works for me. My big take away is high carb/sugar/processed food is very inflammatory. I occasionally stray off course and do see a big difference!

Annecath profile image
Annecath in reply toGabrieljj

Thankyou

Cross-stitcher profile image
Cross-stitcher

My problem with all these suggested diet changes and multiple small meals/snacks, is how to square this with my OH without changing HIS diet (or having to prepare two separate meals each time). If I was only cooking for myself, I would happily be mainly veggie (with some fish), but he is a typical meat-and-potatoes or pizza-pasta man and despite this is a whip-thin, strong and healthy 75-year-old who enjoys several glasses of red wine several times a week!

Magnoli-a1 profile image
Magnoli-a1 in reply toCross-stitcher

You describe my OH to a T, but a few years younger. I dont make breakfasts or lunch very often. We have evolved to both getting our own. But I make supper daily. I have always cooked from scratch and so now, I cook basically the same meals but I dont eat the carb portion. Works for me.

Marijo1951 profile image
Marijo1951

My problems with the keto diet are (1) that it flies in the face of the perceived need for us all to cut meat and dairy consumption in order to reduce carbon emissions (2) that it seems to encourage us to eat lots of processed meats which goes against current medical advice to keep these to a minimum. I have cut out added sugar and white carbs, but still eat small portions of wholegrain carbs plus quite a lot of beans, lentils and chick peas.

Gabrieljj profile image
Gabrieljj in reply toMarijo1951

That’s all old and wrong information. Current medical science is clear on the fact that it’s inflammation that creates plaques in the arteries and brain. Low fat diets are actively bad for you. Good quality fats are good for you. Some people are lactose intolerant and can’t eat dairy: for everyone else grass-fed meat and dairy is nourishing and healthy in moderation, alongside plenty of green veg.

in reply toGabrieljj

I think it was "processed meats" which were mentioned. These most often contain salts, sugars and fillers not found in non processed meats. All the yummy things that you suggest cause inflammation. As a vegetarian of 30yrs full keto isn't my thing.

Not everyone has the social, cultural, medical, personal or economic wherewithal to follow such restrictive diets. People do the best they can in the lives they have to live. I do low carb high good fat and have lost 21kgs but understand I haven't been perfect, nor do I expect everyone to be able to do it until they are in a place where it's achievable. 🌻😋

Gabrieljj profile image
Gabrieljj in reply to

It’s excess glucose that causes inflammation.

in reply toGabrieljj

Oh no. I didn't realise that after 20 years of diabetes when for the first 15yrs a high carb diet was pushed by drs and specialists. You catch more flies with honey than vinegar...ironic. 🤗

Marijo1951 profile image
Marijo1951 in reply toGabrieljj

'In moderation' is okay as far as I'm concerned and I would never follow a low-fat diet. There's still the ecological question which is after all the most pressing problem. Here we're not talking about 'old and wrong information' - the UN report on climate change and the need to reduce meat and dairy consumption only came out last week.

Gabrieljj profile image
Gabrieljj in reply toMarijo1951

That’s true: I meant old and incorrect medical advice. I live in a rural area of the UK where we have only small-scale family farms where the animal waste enables the farmers to grow vegetable crops and everything is organic and ecologically aware.

Marijo1951 profile image
Marijo1951 in reply toGabrieljj

Hence those yummy-looking tomatoes?

Jim-CJ profile image
Jim-CJ

Hi Annecath,

My wife has been on KETO for three months and doing well. May want to look at this link.

dietdoctor.com/low-carb/keto

Good Luck,

Jim & CJ

Noosat profile image
Noosat

No, I gave up many. many years ago looking at "fad" diets. Best to stay on well rounded food intake of lots of vegetables, fruit, some protein, some carbs (not processed) healthy fat (olive oil), no or little sugar and watch the calorie intake

Gabrieljj profile image
Gabrieljj in reply toNoosat

Clearly not a fad if specialist rheumy doctors, neurologists and oncologists are prescribing it with proven effect.

in reply toGabrieljj

A lot of fad diets start in those circles. I know low carb has helped with weight and blood glucose spikes but not for PMR pain.

Specialist rheumys have had a lot of negative impact by reducing pred too fast or insisting on AA or a dmard with explaining the potential impact. The WHO has dismissed the claims that saturated fats are as bad as previously thought. If someone rejects an idea, it's not a personal insult....everyone has their own way of negotiating chronic illnesses.

Noosat profile image
Noosat in reply toGabrieljj

Read what Poopadoop says. I do not know the keto diet, however, perhaps it is recommended because the patient's existing diet is so terrible, most anything is better. Some doctors may find it it easier to just recommend something like this, rather than take time to go over diet with patient My GP, same for about twenty years, says that he cannot improve on my regular diet. When I got PMR, the only change was to completely cut out processed sugar. Now if I want something sweet, not often, is a piece of organic fruit, sometimes with a little yogurt or a glass of Almond "milk" with, maybe, a little organic stevia added

Marijo1951 profile image
Marijo1951 in reply toNoosat

That sounds like good sense to me and sums up what I'm trying to do.

Rimmy profile image
Rimmy

I feel MUCH better eating quite a low carb diet but have only recently lost a little more weight when reducing Pred below 12mg. I was weeks at one point with all the signs of being 'in' Ketosis but NOT losing much more weight- then very rapidly below the 12mg level it started to melt - including my face. We are all a little different but there is no doubt less carbs supports much less inflammation and is bascially 'good' for you. The only catch I think is compensating with too much fat- sticking to good fats and oils in reasonable quantities (a-la-Mediterranean diets) is more 'ideal'.

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