Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2019

No....

Hi again everyone. When I was diagnosed with GCA and PMR in March I was put on 80mg of Pred which worked a treat and I lost weight! I have been reducing...

Hi again everyone. When I was diagnosed with GCA and PMR in March I was put on...

discoballs

•5 years ago

11 Replies

Symptoms of a GCA Flare?

I Having been diagnosed with GCA. 2 1/2 years ago I am now down to 2 mg of Prednisone and have been having pain in my arms and wrists...with weakness and...

I Having been diagnosed with GCA. 2 1/2 years ago I am now down to 2 mg of Predn...

Stella3

•5 years ago

18 Replies

Steroid weight gain

Hi all, I have been suffering with very painful muscle ache for some time now, every time I went to the doctors i was told it was the menopause and basically...

Hi all, I have been suffering with very painful muscle ache for some time now, e...

Poppylop

•5 years ago

30 Replies

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Reducing steroids, and osteoporosis

Hi, this is my first ever post on the site. I was diagnosed with PMR in April 2018 after being very unwell for about 5 months. I started on 20mg...

Hi, this is my first ever post on the site. I was diagnosed with PMR in April 2...

Margot27

•5 years ago

14 Replies

1 week later.

Just a quick follow up. I am now feeling almost normal. No episodes for several days. Woke on a couple of mornings feeling anxious (so unlike me) which on...

Just a quick follow up. I am now feeling almost normal. No episodes for severa...

IdasMum

•5 years ago

12 Replies

PMR the Chimera (as in Greek Mythology)

Hi Everyone I have had PMR since Oct 2015 and started taking Pred in March 2016. Instant (4 hours) relief. I could walk faster than my family (I am always...

Hi Everyone I have had PMR since Oct 2015 and started taking Pred in March 2016....

whitefishbay

•5 years ago

17 Replies

Slight panic. Help and Advice please

Hi everyone I took my first tablet yesterday evening 5mg and another 5 this morning My BP which is normally fine has shot up to 178/109 and my heart rate 98.

Hi everyone I took my first tablet yesterday evening 5mg and another 5 this mor...

Bridge31

•5 years ago

29 Replies

DRUGS - my bete noir

https://www.telegraph.co.uk/news/2019/08/21/two-million-britons-taking-seven-different-prescription-drugs/ Nuff said. I declined all the extras proffered by...

https://www.telegraph.co.uk/news/2019/08/21/two-million-britons-taking-seven-dif...

sennetta

•5 years ago

30 Replies

Advice/opinions please

I have been on 6mg of pred for ages now plus 200mg Hydroxychloroquine, going along quite nicely and have had a great summer, feeling pain free and energised. A...

I have been on 6mg of pred for ages now plus 200mg Hydroxychloroquine, going alo...

York54

•5 years ago

12 Replies

Gel/cream for arthritis

I seem to remember a while ago someone recommending a gel for arthritic joints and I now can’t find it anywhere. Can someone please remind me the brand? I just...

I seem to remember a while ago someone recommending a gel for arthritic joints a...

Lochy

•5 years ago

20 Replies

Treatment of patients by rheumatologist

Saw a registrar this week at Hemel hospital. She was the only rheumatologist there- no consultant and five patients in front of us so we waited 1 hour 15...

Saw a registrar this week at Hemel hospital. She was the only rheumatologist the...

Linlang

•5 years ago

26 Replies

synacthen test, what does this mean?

I wonder if anyone can explain a bit about the result of my synacthen test I had the other day, so when I see the doctor about it I understand the situation...

I wonder if anyone can explain a bit about the result of my synacthen test I had...

Tiredcat

•5 years ago

22 Replies

Still going......

Hi all. I thought I'd let you know how things are going over in pred-free land Following a whirlwind reduction from 40mg to zero in 9 days, I find myself...

Hi all. I thought I'd let you know how things are going over in pred-free land F...

Linda3009

•5 years ago

7 Replies

Tapering with gca okay

Saw ophthalmologist on 8/15. Says "eyes are better, but not there yet. " Will do another visual field test in one month. Showed me test results on computer...

Saw ophthalmologist on 8/15. Says "eyes are better, but not there yet. " Will do...

Spanky2019

•5 years ago

18 Replies

Splitting the dose

Rheumy told me to split the 50 pred into 2. Any tips? With food? Bedtime? (doubt that's a great idea?). Just done second half with carrot and cream...

Rheumy told me to split the 50 pred into 2. Any tips? With food? Bedtime? (...

Pippah45

•5 years ago

10 Replies

PRED ALTERNATE DAILY DOSAGE

I am currently on 5mg then 4mg on alternate days however I read about pill cutters on this forum so I bought one today. My intention was to split a 5 tab into...

I am currently on 5mg then 4mg on alternate days however I read about pill cutte...

Radancer

•5 years ago

10 Replies

One day at a time

Meg1933 here. Last year from Sept to Dec I felt so ill, and on the 8th Dec I was told I had GCA, I had never heard of it , but unfortanetly I lost the sight...

Meg1933 here. Last year from Sept to Dec I felt so ill, and on the 8th Dec I wa...

Meg1933

•5 years ago

2 Replies

One day at a time!

One day at a time! Meg1933 here. Last year from Sept to Dec I felt so ill, and on the 8th Dec I was told I had GCA, I had never heard of it , but unfortanetly...

One day at a time! Meg1933 here. Last year from Sept to Dec I felt so ill, and o...

Meg1933

•5 years ago

12 Replies

Tapering off Presnosone with GCA.

Hello Ladies need your help again as l an trying to taper down on my pred medicine. I do not have PMR at the moment thank God. I have been down to 20mg for a...

Hello Ladies need your help again as l an trying to taper down on my pred medici...

Ryliefew123dogcat

•5 years ago

10 Replies

Thanks to everyone who responded to my 1 mg Pred post.

There does seem to be a problem with supply. I will try some of your suggestions. Thanks

There does seem to be a problem with supply. I will try some of your suggestion...

Omanain

•5 years ago

5 Replies

Splitting Dose

I have just read Mrs Nails post about dose splitting. I was at the Reumy yesterday. He could not have cared less about how I was feeling only that my blood...

I have just read Mrs Nails post about dose splitting. I was at the Reumy yesterd...

Robinsnest72

•5 years ago

30 Replies

ARM PAIN

Hi. I have slowly been reducing my pred, was at 15mg 3 months ago as of today on 11mg. Last 2 weeks I get what can only be described as sharp pains just below...

Hi. I have slowly been reducing my pred, was at 15mg 3 months ago as of today on...

SRIXON

•5 years ago

22 Replies

Just thinking 🤔

Hi, Diagnosed GCA January, 2016. I’m almost to 3.5 and lately I’ve had this thought that when I get down to around 2 mg I would just stay there. I think for...

Hi, Diagnosed GCA January, 2016. I’m almost to 3.5 and lately I’ve had this thou...

fmkkm

•5 years ago

42 Replies

Bruising fingers

Hi all! Just had my appt. yesterday with my PCP to see what’s going on. She feels it could be PMR. Had bloods done yesterday so should know more when they get...

Hi all! Just had my appt. yesterday with my PCP to see what’s going on. She feel...

Champie

•5 years ago

9 Replies

Fatigue, moodyness, pain in joints, 3,75 mg

I can’t stand it. I am at 3,75 mg now and I have no PMR pain what so ever BUT I seem to have a lot of other concerns maybe due to adrenal problems? As you may...

I can’t stand it. I am at 3,75 mg now and I have no PMR pain what so ever BUT I ...

Pirnilla

•5 years ago

8 Replies

Polymyalgia -help

Have just been diagnosed, worried about taking the prednisolone at 20mg daily. Has anybody split the dose into twice daily ,or have I to take it one go. Hope I...

Have just been diagnosed, worried about taking the prednisolone at 20mg daily. H...

Lancashirelass07

•5 years ago

41 Replies

Gastric troubles

Hi, I’ve been on Pred since June 2017, currently on 10mgs. I’ve had three very violent gastric attacks this year, two landing me in hospital for overnight...

Hi, I’ve been on Pred since June 2017, currently on 10mgs. I’ve had three very v...

Thelmarina

•5 years ago

16 Replies

CBD oil as a steroid sparer

Is this great news or what?! http://sterobiotechs.com/stero-cbd-solution/ "Our preliminary results in a phase II trial in GVHD show that CBD administration...

Is this great news or what?! http://sterobiotechs.com/stero-cbd-solution/ "Our p...

gtate1914

•5 years ago

13 Replies

I mg gastro-resistant Pred

Last week my GP gave me a prescription for 1mg gastro-resistant Pred. Today after many visits to the local Boots to collect the Pred I was finally informed...

Last week my GP gave me a prescription for 1mg gastro-resistant Pred. Today afte...

Omanain

•5 years ago

31 Replies

Osteoporosis

Hi, just diagnosed osteoporosis, GP wants me on medication. What are your experiences with alendonic acid. Regards Babs x

Hi, just diagnosed osteoporosis, GP wants me on medication. What are your exper...

babssara

•5 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

No....

Symptoms of a GCA Flare?

Steroid weight gain

Reducing steroids, and osteoporosis

1 week later.

PMR the Chimera (as in Greek Mythology)

Slight panic. Help and Advice please

DRUGS - my bete noir

Advice/opinions please

Gel/cream for arthritis

Treatment of patients by rheumatologist

synacthen test, what does this mean?

Still going......

Tapering with gca okay

Splitting the dose

PRED ALTERNATE DAILY DOSAGE

One day at a time

One day at a time!

Tapering off Presnosone with GCA.

Thanks to everyone who responded to my 1 mg Pred post.

Splitting Dose

ARM PAIN

Just thinking 🤔

Bruising fingers

Fatigue, moodyness, pain in joints, 3,75 mg

Polymyalgia -help

Gastric troubles

CBD oil as a steroid sparer

I mg gastro-resistant Pred

Osteoporosis

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