I thought I'd start a new thread as my previous has moved on.
I had a lovely day yesterday. It was a lovely autumnal day and we did a few jobs around the garden.
I'd had 2 episodes over night and then a clear day until 7pm. (Guessing my extra 1mg from the day before had lost potency). Had 2 'turns' in the evening, have had 2/3 overnight and one this morning at I made the tea. It's been an hour and the slightly on edge/trembly feeling has passed.
All very unpleasant and for me at least understandable. I am managing each episode much better now....just waiting for it to go away and ignoring as far as I am able the negative/scary/tearfulness that comes along with the adrenaline.
The episodes are sometimes triggered by the news....anxiety around Brexit (sorry to mention that here)...and I have never been an anxious person. I am pretty sure these symptoms will pass as my body gets used to the adrenaline again and is able to distinguish between mild and real scare.
I am very reluctant to go back to anything higher (although I have added .5mgs to my doses of 7mg and will stay there for a week or so). My reason for this decision is that I am here, it's where I need to be and I'd rather not increase my dose, suppress my adrenal glands and then come back to this at another time.
Thanks for all you support, as always
Written by
IdasMum
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As for the B-word: I'm just listening to the Beeb about the effect on agriculture in general. Peter Lilly as a former trade minister making himself look totally stupid. It is what it is - and hell mend them ... Switch the news off - we do at least have the choice, thee and me.
I've got 5 large boxes of tinned tomatoes, chick peas, kidney beans, tuna, sardines, apricots etc and even things that I would never normally think of eating like tinned stewed steak in gravy and chicken in white wine sauce, all stashed away in cupboards and under my bed. My freezer is bursting with fish, veg, berries and several large hunks of cheddar cheese. I think this hoarding is a kind of displacement activity to take my mind off what I'm dreading. I've never felt so strongly the truth of the old cliché: 'You have to laugh or you'd cry...' It might seem off topic, but I'm convinced the referendum result kick-started my GCA/PMR journey and the current situation isn't helping me to shake it off.
Just wish I could find a way to store all these peaches, nectarines and avocados which will cost an arm and a leg after ****** Brexit. I've started on the tinned tomatoes, chickpeas, pasta and olive oil but am running out of space and I think I've got enough pred for a year; naughty I know but that's what scares me most.
It's crazy. I'm seriously considering another online grocery order. You'd think I was feeding an army. It's the first time in my life I've bought food on my credit card. I envy you having enough pred for a year. Imagine if we run out or it's rationed...
If you have got from 40mg to 7mg since May it is likely you will have few problems with adrenal function returning. That is a very fast taper - but that's fine when it works and does reduce the adrenal spectre greatly.
So if it wasn't GCA - what does he think it MIGHT have been? Mind you - the GCA cause can start but then just abort and disappear. It happened to me but it did leave PMR behind!
He has good reasons for saying not GCA - and anyone, even a GP, should have thought "post sepsis" long before GCA. And actually - you would probably have been fine reducing faster. But better a few weeks extra than suffer for any reason on the way down!!
I might be tempted to see my doctor in your shoes. Just in case there is something else at work here. My own journey through diagnosed Adrenal deficiency wasn’t so dramatic. Daytime sleeping, full of energy and enthusiasm in the early hours a bit jumpy in traffic. Nothing as defined as “ funny turns” they sound a bit like panic attacks or low blood sugar. It’s no use working in the dark with your dose. It took me a year to get down from 7 mgs ( by far the hardest 0.5 drop). However, it was the return of PMR pain and flu like feelings that halted me.
I've had a horrible day. Took another 1mg at 17h00 and will look at my med regime for next few days. I would much rather wait until my own doctor is back, he speaks English and so far easier consultation.
They are a little like panic attacks but no heart pounding or breathlessness.
I can cope with the physical feelings now but am hating the effect on my thought processes. We are both psychotherapists, so talking it through and making sense of it is working.
I'll go back to 8mg x 7 and speak to my doc when he's back.
My last 'turn' was at 17h last night. I'd just taken another 1mg to make 8.5mg yesterday.
I couldn't put my finger on how I was feeling but have subsequently realised it's anxiety. A feeling quite alien to me.
Someone and my younger sister suggested acupuncture and I may well follow this up next week. I Googled and found something suggested increasing Mg intake can help. I took an extra one last night. I also found an interesting YouTube from York Cardiology, "Why Magnesium is so good for you". I will share the link in another post as I am unable to see how here or maybe not??????
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