Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,482 members • 38,446 posts

All posts for August 2019

Adrenals again!

I am down to 6mg for 2 weeks now. Absolutely done in and very down in spirit!! No pain so want to try 5.5/6mg alternate days. Just wondering if I should hang...

I am down to 6mg for 2 weeks now. Absolutely done in and very down in spirit!! ...

SuziCutie

•5 years ago

22 Replies

Adrenal deficiency, muscle or joint pain

I am reading a lot about adrenal problems as I am down at 3,75 mg and have some issues with my body such as pain in my left hip and lower back on the right...

I am reading a lot about adrenal problems as I am down at 3,75 mg and have some ...

Pirnilla

•5 years ago

21 Replies

Blood tests

I am seeing GP for results of 1st blood test after ? whether PMR. Receptionist told me they are back and marked as “normal” (full blood count, liver,kidney...

I am seeing GP for results of 1st blood test after ? whether PMR. Receptionist ...

HJC321

•5 years ago

41 Replies

Want to take advantage of all our features? Just log in!

Extra cover for dental extraction

Hi. This is my first post and I need some advice. I’ve had PMR for just over three years and am currently taking 2.5mg pred. I also currently have raging tooth...

Hi. This is my first post and I need some advice. I’ve had PMR for just over thr...

Orpheus82

•5 years ago

25 Replies

meds for itching

does any one know of a medicine or anyway to stop the itching? I almost have my skin scratched off. It is awful. Benadryl does not help. Is this part of...

does any one know of a medicine or anyway to stop the itching? I almost have my ...

stonecreek

•5 years ago

17 Replies

phone message from gp re pred

hi everyone, I spoke to receptionist about my ? flare or bit of both after having my mum stay for 10 days. she left a message for my gp and I got a call the...

hi everyone, I spoke to receptionist about my ? flare or bit of both after havin...

dillydally1

•5 years ago

11 Replies

Signs of adrenal response?

Hello toute le monde. I am on my way down from 8mg to 7mg. Now down to 3x7 per week. I took 7 Thurs and again this morning. 3 times this morning I have had...

Hello toute le monde. I am on my way down from 8mg to 7mg. Now down to 3x7 per...

IdasMum

•5 years ago

106 Replies

Has anyone ever got rid of oral thrush?

I’ve had oral thrush for 8 weeks now. My GP prescribed a course of Nystatin which didn’t make any difference. I then bought a couple of tubes of Daktarin,...

I’ve had oral thrush for 8 weeks now. My GP prescribed a course of Nystatin whic...

Floridafan

•5 years ago

25 Replies

Thank you

I took my last steroid yesterday almost 5 years after the first. Those years of steroids for GCA would have been much less easy to bear without this forum...

I took my last steroid yesterday almost 5 years after the first. Those years o...

PenelopeVita-Finzi

•5 years ago

18 Replies

Feeling more like me!

Over the last two weeks I’ve noticed something has changed. It may be short lived but I am enjoying it. I’m down to 6.5mg slowly tapering to 6. The awful...

Over the last two weeks I’ve noticed something has changed. It may be short live...

Rosina1871

•5 years ago

26 Replies

Cutting Gastro coated Pred.

I am on 12.5mg and have been told to reduce to 10mg. I think this is too much so I want to reduce by 1.5mg. I have 1mg enteric coated pred. My question - I...

I am on 12.5mg and have been told to reduce to 10mg. I think this is too much s...

Omanain

•5 years ago

13 Replies

Do I know my own body?!?!

Please may I sound board? As mentioned previously, I responded beautifully to steroid treatment in the first few weeks. I was taking my entire dose with...

Please may I sound board? As mentioned previously, I responded beautifully to st...

Hidden

•5 years ago

52 Replies

high CRP blood test

i have been off prednisone for a month. now my c reactine protein is 11.should i go back on prednisone

i have been off prednisone for a month. now my c reactine protein is 11.sh...

piping9

•5 years ago

5 Replies

Advice about surgery

Hello, I'm scheduled to have a fixation surgery on my bog toe in October to treat Hallux rigidus. I'm worried about the delayed healing and increased risk of...

Hello, I'm scheduled to have a fixation surgery on my bog toe in October to tre...

Libra-girl

•5 years ago

19 Replies

Newly diagnosed with Polymyalgia Rheumatica and more recently GCA

Hi everyone, I’m new here and have been reading lots of posts as I am in lots of pain and feeling pretty low. I have had Fibromyalgia since 2001 and have now...

Hi everyone, I’m new here and have been reading lots of posts as I am in lots of...

KrisAnne51

•5 years ago

12 Replies

Kate Gilbert book

Hi all just wondering if you all thought kate Gilbert s book was worthwhile. I live in Chennai and my 80 year old mother has a mild case of pmr..it is...

Hi all just wondering if you all thought kate Gilbert s book was worthwhile. I ...

Sudswathi1

•5 years ago

16 Replies

19 and a half days in.....

Good morning all, After my positive morning yesterday with deciding to take my total 40mg at 6 am and not split as usual (20MG 6AM 20MG 6PM) due to insomnia...

Good morning all, After my positive morning yesterday with deciding to take my t...

Fredddie

•5 years ago

18 Replies

PMR or arthritis or both?

Im at 2mg pred after getting to 1.5 for a few weeks when I was getting a bit of discomfort in one hip, a bit on left arm and my thumbs and palms. My recent x...

Im at 2mg pred after getting to 1.5 for a few weeks when I was getting a bit of ...

Casia

•5 years ago

8 Replies

Time Heals All

Thank you all for the advice on re-tapering from 15.mg. The first time I reduced from 15.0 to 9.0 (several months ago) it was a piece of cake! ...but after...

Thank you all for the advice on re-tapering from 15.mg. The first time I reduced...

Hidden

•5 years ago

13 Replies

Feel like crying...

Was sort of diagnosed with PMR in March. Rheumy wasn't convinced due to my age. Went for an appointment a couple weeks ago because I was having a flare: tight...

Was sort of diagnosed with PMR in March. Rheumy wasn't convinced due to my age. ...

yellowdog519

•5 years ago

61 Replies

Should I continue to taper?

I was diagnosed in June of 2018 and put on 30mg of prednisone. I have now tapered to 6mg though it took many months to get below 8mg tapering 1/2mg at a time....

I was diagnosed in June of 2018 and put on 30mg of prednisone. I have now tapere...

Reader7

•5 years ago

14 Replies

Raising awareness and support for PMRGCAuk ... climbing an Ultimate Mountain

I'm still in remission with Polymyalgia Rheumatica, and as the PMRGCA North East coordinator I'm raising awareness and support for PMRGCAuk by climbing one of...

I'm still in remission with Polymyalgia Rheumatica, and as the PMRGCA North East...

Skinnyjonny

•5 years ago

12 Replies

Stiffness in scalp and Physio

Diagnosed with PMR IN January. Now on 15 mgs .the stiffness originally was lower body but now primarily upper body..mainly into my head and behind ear...very...

Diagnosed with PMR IN January. Now on 15 mgs .the stiffness originally was lower...

Darcy2000

•5 years ago

15 Replies

Acupuncture or Ultrasound Therapy Perhaps

Hello again! I am considering trying either acupuncture or ultrasound therapy for PMR to see if it will help, alongside pred. Has anyone tried either of these...

Hello again! I am considering trying either acupuncture or ultrasound therapy fo...

Songbird69

•5 years ago

23 Replies

First Flare

I am experiencing my first flare. I was diagnosed with positive biopsy in May and was on 60 mg for five weeks. Been tapering 2.5 mg per week. This Monday's...

I am experiencing my first flare. I was diagnosed with positive biopsy in May an...

knoone

•5 years ago

6 Replies

Priobotic Yogurts

Hi Can anyone recommend a good Priobotic Yogurt Please. Thank you.

Fredddie

•5 years ago

19 Replies

Is Seeing a Rheumy Worth it?

Hi Everyone, My daughter, who is a health professional, very much wants me to see a Rheumy. My feeling is that as I have good support from my 2 regular GP's...

Hi Everyone, My daughter, who is a health professional, very much wants me to s...

Louisa1840

•5 years ago

29 Replies

Hip problems from Pred?

You know when problems occur, other than Pmr pain, I mean, you always ask yourself if it comes from me being on cortisone for a longer time. Since April I have...

You know when problems occur, other than Pmr pain, I mean, you always ask yourse...

Pirnilla

•5 years ago

7 Replies

19 Days in........

Good morning everyone. Since being on 40mg for the last week from previous guideline of 15 then to 20 in the first 12 days with no effect I am feeling so much...

Good morning everyone. Since being on 40mg for the last week from previous guide...

Fredddie

•5 years ago

11 Replies

Test Rat

Diagnosed in April with PMR at 52. Got a second opinion yesterday and the new doctor seems very very thorough. Took several blood tests, xrays, of chest and...

Diagnosed in April with PMR at 52. Got a second opinion yesterday and the new do...

Hidden

•5 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

Adrenals again!

Adrenal deficiency, muscle or joint pain

Blood tests

Extra cover for dental extraction

meds for itching

phone message from gp re pred

Signs of adrenal response?

Has anyone ever got rid of oral thrush?

Thank you

Feeling more like me!

Cutting Gastro coated Pred.

Do I know my own body?!?!

high CRP blood test

Advice about surgery

Newly diagnosed with Polymyalgia Rheumatica and more recently GCA

Kate Gilbert book

19 and a half days in.....

PMR or arthritis or both?

Time Heals All

Feel like crying...

Should I continue to taper?

Raising awareness and support for PMRGCAuk ... climbing an Ultimate Mountain

Stiffness in scalp and Physio

Acupuncture or Ultrasound Therapy Perhaps

First Flare

Priobotic Yogurts

Is Seeing a Rheumy Worth it?

Hip problems from Pred?

19 Days in........

Test Rat

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive