Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,087 members • 39,892 posts

All posts for May 2019

Prednisone dosing

I Was just perscribed 10mg of prednisone 4 pills one time a day. Its almost to much to take it all at once. I was just wondering how or if you could split up...

I Was just perscribed 10mg of prednisone 4 pills one time a day. Its almost to m...

Thesassyginger37

•5 years ago

12 Replies

The power of 0.5 mg prednisone

OK, OK... I hit the wall you guys have been talking about. I’d stopped my methotrexate a few weeks ago, and was tapering my prednisone. I went from 7mg/day to...

OK, OK... I hit the wall you guys have been talking about. I’d stopped my methot...

Joblow

•5 years ago

29 Replies

GCA and being a mayoress!

Husband - who is always selfish - wants to go to Germany for an official engagement by train - 11 hours instead of flying 1 1/2 hours to show he is a climate...

Husband - who is always selfish - wants to go to Germany for an official engagem...

christine2715

•5 years ago

48 Replies

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Sore hip

I’ve developed a really painful right buttock , hip and lower back. Haven’t done anything out the ordinary. Feeling right cheesed off and have a headache now!...

I’ve developed a really painful right buttock , hip and lower back. Haven’t done...

Cyclegirl54

•5 years ago

23 Replies

Turning up again...how much?

I have tapered totally pain free from 25 in sept -18 to 5 mg now in April. Trying to go slowly 5/5/3.75/5/5/3,75 pain was returning in one side of the neck and...

I have tapered totally pain free from 25 in sept -18 to 5 mg now in April. Tryin...

Pirnilla

•5 years ago

44 Replies

Itchy scalp

A question ids an itchy scalp a side affect of preds

_multistrada

•5 years ago

30 Replies

What’s my diagnosis?

Hi, this is my first post, and would welcome any comments that might help me understand what is going on. Like many, I have doubts about my “diagnosis” and...

Hi, this is my first post, and would welcome any comments that might help me und...

Broomser

•5 years ago

18 Replies

R/A PMR to Vasculitis: Positive update 11months into (Rituximab intrusion) treatment.

Hi All, long time no post sorry!! Quick update on my farther who turns 70 next week and he is in a position to enjoy it, in the best way he knows how to PARTY...

Hi All, long time no post sorry!! Quick update on my farther who turns 70 next ...

Sonofjimmy

•5 years ago

15 Replies

Cramp in feet

Hi has anyone suffered very bad cramp while asleep,it wakes me up every night,quite a few times,its very uncomfortable,any help greatly appreciated,I'm...

Hi has anyone suffered very bad cramp while asleep,it wakes me up every night,qu...

geordiegirl1947

•5 years ago

22 Replies

At sea with trying to taper

Unfortunately I have an atypical presentation and my diagnosis is still in doubt. After many months of misery a rheumatologist agreed to try me on 15 mg of...

Unfortunately I have an atypical presentation and my diagnosis is still in doubt...

spearce

•5 years ago

7 Replies

PMR now?

Can't remember if I posted on RA community or on PMR community, so I hope you all will overlook my confused state. My last Dr. appt., April 2019 and 6 months...

Can't remember if I posted on RA community or on PMR community, so I hope you al...

Nanna71

•5 years ago

13 Replies

Does Saw Palmetto help?

One of its listed benefits is reduction of inflammation. It also helps with blood sugar levels, supposedly. I’ve only ever heard of it as a prostate aid or...

One of its listed benefits is reduction of inflammation. It also helps with blo...

OutdoorsyGal

•5 years ago

12 Replies

Vasculitis Awareness Month - Living with an autoimmune disorder

https://healthunlocked.com/vasculitis-uk/posts/140706205/vasculitis-awareness-month-video-living-with-an-autoimmune-disorder.?uid=eaba7d6c-c725-415f-81b4-a26e00

https://healthunlocked.com/vasculitis-uk/posts/140706205/vasculitis-awareness-mo...

PMRpro

Ambassador•5 years ago

9 Replies

Mitochondrial damage and osteoporosis

This was posted on the Bone Health forum. As inflammation is mentioned I thought it relevant to Us Lot as MB57 would say:...

This was posted on the Bone Health forum. As inflammation is mentioned I though...

HeronNS

•5 years ago

36 Replies

Eye screening replies

Hi Folks Lots of replies and I have read them all. It is good to get everyone's input. These conditions seam to be complicated to diagnose.

Hi Folks Lots of replies and I have read them all. It is good to get everyone'...

keepfitdoll

•5 years ago

1 Reply

Dead slow and nearly stop

Like the other responders, I am gobsmacked that your doctor suggested you come off it without a taper. I suggest you try the dead slow and nearly stop advice...

Like the other responders, I am gobsmacked that your doctor suggested you come o...

Bobbikins

•5 years ago

5 Replies

Lets consider this for today.

While admittedly many of us were type A, busy achieving types before PMR/GCA maybe it would be helpful to re frame our thinking of our PMR/GCA journey. My...

While admittedly many of us were type A, busy achieving types before PMR/GCA may...

bunnymom

•5 years ago

32 Replies

Newly diagnosed, in honeymoon pred stage and a few musings

Hi I'm recently PMR diagnosed. Previously fit, healthy, developed bilateral stiffness and pain esp shoulders. Bloods all normal. Despite worrying re taking...

Hi I'm recently PMR diagnosed. Previously fit, healthy, developed bilateral stif...

Daisyfield

•5 years ago

5 Replies

Giant cell and neaurlgia

I’m new and this is my first post. I’m on 3mg but just gone back up to 4mg. My question is does anybody get nuaralga. I have gca and PMRGCAuk for last 3years 6...

I’m new and this is my first post. I’m on 3mg but just gone back up to 4mg. My q...

Dancingrosie

•5 years ago

6 Replies

Can I cope?

I have GCA and PMR and the GCA is much better thanks to Actemra (tocilizumab) injections. I have recently reduced to one every four weeks. On the last day...

I have GCA and PMR and the GCA is much better thanks to Actemra (tocilizumab) in...

christine2715

•5 years ago

5 Replies

Update after seeing neurosurgeon

Hello again, I saw the Neorosurgeon on Wednesday re my (apparently two) bulging lumbar discs. After considerable poking and prodding and making me walk...

Hello again, I saw the Neorosurgeon on Wednesday re my (apparently two) bulgin...

Oxford8

•5 years ago

18 Replies

Moon face and continued swelling.

I am on 17mg pred.Have GCA since Sept. Really want to get down to at least 10 pred but at each step down I get cystitis, muscle cramps etc. Any suggestions as...

I am on 17mg pred.Have GCA since Sept. Really want to get down to at least 10 p...

ragdollcat4

•5 years ago

13 Replies

Different regimes

I have been reducing slowly my preds but been feeling awful the past few weeks went to GP last night who says have been reducing too fast It is difficult...

I have been reducing slowly my preds but been feeling awful the past few weeks w...

Emerlad_70

•5 years ago

5 Replies

Temporal artery biopsy.

Yesterday wasn’t the best day I have ever had. My appointment was for 12 o’clock but it was 3 o’clock before my name came up on the theatre list. The procedure...

Yesterday wasn’t the best day I have ever had. My appointment was for 12 o’clock...

polymy

•5 years ago

4 Replies

Best time to take Prednisolone to lessen Nausea

Im getting a lot of Nausea but taking Methotrexate as well as Prednisolone Omeprazole and Statins. Is there a better time to take the steroids rather than...

Im getting a lot of Nausea but taking Methotrexate as well as Prednisolone Omepr...

Blomps

•5 years ago

10 Replies

Wrists and other pain

I have discovered I have wrists and fingers, never before have these hurt so much, this is a whole new level! Not sure how I’m going to hold tools today, more...

I have discovered I have wrists and fingers, never before have these hurt so muc...

_multistrada

•5 years ago

21 Replies

10 percent rule

In years past while recovering from injury or sickness, I used the ten percent rule. I’ve incorporated this as a guideline to speed recovery and seems to be...

In years past while recovering from injury or sickness, I used the ten percent r...

Hidden

•5 years ago

6 Replies

Rotator Cuff Tendon Ruptures and Degeneration

I am new here. I was diagnosed with PMR in October of 2016. At that time I had the usual inflammatory markers and pain. Fourteen months ago and recently I...

I am new here. I was diagnosed with PMR in October of 2016. At that time I had...

Readingaddict48306

•5 years ago

10 Replies

Prednisolone

I had severe joint pain and was told I had arthritis but my new doctor said it is not arthritis but just joint pain. The problem is my old doctor put me on...

I had severe joint pain and was told I had arthritis but my new doctor said it i...

Shiv2019

•5 years ago

7 Replies

exercize

My friend with pmr has another problem with severe back pain. He was doing ok on 4 pred for a month, his doctors said doing well, inflammation down. But then...

My friend with pmr has another problem with severe back pain. He was doing ok o...

kate24

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Prednisone dosing

The power of 0.5 mg prednisone

GCA and being a mayoress!

Sore hip

Turning up again...how much?

Itchy scalp

What’s my diagnosis?

R/A PMR to Vasculitis: Positive update 11months into (Rituximab intrusion) treatment.

Cramp in feet

At sea with trying to taper

PMR now?

Does Saw Palmetto help?

Vasculitis Awareness Month - Living with an autoimmune disorder

Mitochondrial damage and osteoporosis

Eye screening replies

Dead slow and nearly stop

Lets consider this for today.

Newly diagnosed, in honeymoon pred stage and a few musings

Giant cell and neaurlgia

Can I cope?

Update after seeing neurosurgeon

Moon face and continued swelling.

Different regimes

Temporal artery biopsy.

Best time to take Prednisolone to lessen Nausea

Wrists and other pain

10 percent rule

Rotator Cuff Tendon Ruptures and Degeneration

Prednisolone

exercize

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