Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2019

'Here Comes the Sun'

A lovely Beatles' song, but also the title of a new book by Professor of Genetics Steve Jones, who is encouraging us all to top up our vitamin D levels. See...

A lovely Beatles' song, but also the title of a new book by Professor of Genetic...

Marijo1951

•5 years ago

13 Replies

PUZZLED

GCA diagnosed 3 yrs ago. No flares. Got down to 5 1/2 in April but tried 5mgs and pain in bones at back of head and pressure both sides of face in front of...

GCA diagnosed 3 yrs ago. No flares. Got down to 5 1/2 in April but tried 5mgs a...

joat

•5 years ago

8 Replies

Can you take cold meds with prednisone?

Can you take cold meds with prednisone? I have only been on it a short time and I think I’m catching my husbands cold. Just my luck!

Can you take cold meds with prednisone? I have only been on it a short time and ...

Kern1410

•5 years ago

21 Replies

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Pain an tenderness on top ofhead

I was diagnosed with PMR but doctor wasn’t sure about GCA , although he put me on a high dose of prednisone. I am now down to 5mg and having the tenderness on...

I was diagnosed with PMR but doctor wasn’t sure about GCA , although he put me o...

MaryA_

•5 years ago

15 Replies

Vitamin D Supplements and Health

Interesting article regarding the value of taking Vitamin D supplements especially more so in some parts of the world. In Australia we are generally focusing...

Interesting article regarding the value of taking Vitamin D supplements especial...

Rimmy

•5 years ago

22 Replies

Letter from a Doctor

HeronNS

•5 years ago

19 Replies

How about Homeopathy?

Are there any people out there who have chosen a Homeopathic treatment after starting with Prednison to get rid of the pain first and foremost? I am...

Are there any people out there who have chosen a Homeopathic treatment after sta...

km5yx7

•5 years ago

13 Replies

Reduction in pred 10mg to 9.5mg

Hi I’ve had four days on 9.5 now. Doc said I could reduce to 9mg but I’m doing a slower taper. I don’t have any increase in pain but I’m very “weary” . Can I...

Hi I’ve had four days on 9.5 now. Doc said I could reduce to 9mg but I’m doing a...

Rosina1871

•5 years ago

26 Replies

Does pmr/gca bring on heart problems

Is this just a coincidence, noticed quite a lot of people have this.

Fifelassieo

•5 years ago

8 Replies

Hello new friends! Need guidance!

I have been on this webpage the last few days talking with some people but have not put up an formal posting. I have not been officially diagnosed as of yet -...

I have been on this webpage the last few days talking with some people but have ...

Kern1410

•5 years ago

17 Replies

Family links with auto immune disease

My 34 year old son has MS diagnosed 5 years ago but symptoms we know now for at least 4 years before he got a diagnosis. Now I have PMR I am wondering if there...

My 34 year old son has MS diagnosed 5 years ago but symptoms we know now for at ...

Blues1

•5 years ago

19 Replies

Moon Face

As you reduce prednisone, does the moon face also start to reduce? Also very tired & feel wobbly if I walk a lot, is it from the PMR or the prednisone?

As you reduce prednisone, does the moon face also start to reduce? Also very t...

Summerrental

•5 years ago

46 Replies

Steroids and Levothyrox

Has anyone experience of taking these two medications together or separately. It seems best to take them separately which is something I have never been told....

Has anyone experience of taking these two medications together or separately. It...

Deemar

•5 years ago

13 Replies

Golden Years - At 60?

Don't know about you but, with my 60th b'day on the horizon, I personally feel a bit aggrieved that my 'golden years' have come a bit sooner than I had...

Don't know about you but, with my 60th b'day on the horizon, I personally feel a...

Marilyn1959

•5 years ago

103 Replies

Flare!

In September of last year I tried to reduce from 2/1/2 mg to 2 mg without success. Back to 21/2 and stability returned. As we were gong to NZ for the winter I...

In September of last year I tried to reduce from 2/1/2 mg to 2 mg without succes...

Deemar

•5 years ago

19 Replies

Encouraging rheumy visit

I saw my consultant on Wednesday for the first time in over a year - for the previous 3 appointments I'd seen one of the registrars. I told her I was in the...

I saw my consultant on Wednesday for the first time in over a year - for the pre...

Marijo1951

•5 years ago

9 Replies

CRP & ear level

Little to sick to do my own review. My crp is 52 & ear 38. Lost 3 more pounds-18 pounds in <1mo. Rheumatologist getting me in next week. Can you tell me more...

Little to sick to do my own review. My crp is 52 & ear 38. Lost 3 more pounds-18...

Spanky2019

•5 years ago

12 Replies

Feeling frustrated and in the dark

Fairly new PMR I've been on steroids almost 3 weeks 15mg and good response. But my GP hasn't advised re further supplements (vit D or calcium) She prescribed...

Fairly new PMR I've been on steroids almost 3 weeks 15mg and good response. But...

Daisyfield

•5 years ago

7 Replies

Among the many things I can’t quite understand...

There is a lot of discussion about pred and tapering on the board, and how pred controls the symptoms of PMR. Yet a lot of people seem to have significant...

There is a lot of discussion about pred and tapering on the board, and how pred ...

Devedaaee

•5 years ago

7 Replies

Asking for ESR & CRP numbers

At the beginning of my PMR diagnosis, when I rang for my blood test results, the receptionist told me my ESR was normal but to contact GP about my CRP level,...

At the beginning of my PMR diagnosis, when I rang for my blood test results, the...

Rache

•5 years ago

20 Replies

Splitting the dose?

I would like to hear from somebody who also split their Pred dose --one in the morning one in the evening. ( right now 12mg all together, down from 20) I sleep...

I would like to hear from somebody who also split their Pred dose --one in the m...

km5yx7

•5 years ago

16 Replies

Prednisolone and Hair

Am I right in thinking that some of you have had hair loss with Prednisolone? Since my little foray into the journey of suspected GCA there has been a marked...

Am I right in thinking that some of you have had hair loss with Prednisolone? S...

Pippah45

•5 years ago

14 Replies

Ignoring advice of doctor regarding osteoporosis meds

I am interested in hearing people who have osteoporosis (bone scan t-scores of at least -2.5), whose doctor advised them to go on osteoporosis medication like...

I am interested in hearing people who have osteoporosis (bone scan t-scores of a...

Navion

•5 years ago

31 Replies

Lichen Slerosus

Can anyone advise what to use to soothe the Vulva. The pain & itching don't let me sleep. Currently trying bathing with bicarbonate soda in lukewarm water....

Can anyone advise what to use to soothe the Vulva. The pain & itching don't let ...

Izie

•5 years ago

21 Replies

Help for groin pain

After posting off and on for several months about groin pain and trying pred increase to no effect the answer has proven to be a hip inpingement. I was fixed...

After posting off and on for several months about groin pain and trying pred inc...

bunnymom

•5 years ago

12 Replies

Sore tender left temple

Have just developed a sore tender temple on left of head for no apparent reason and had been feeling quite a lot better recently apart from usual sore eyes,...

Have just developed a sore tender temple on left of head for no apparent reaso...

kathleen18

•5 years ago

21 Replies

NEW SUPPORT GROUP WHITSTABLE KENT

Whitstable Meet Up Group is a new group. Its first meeting, to which you are warmly invited, will take place on: Friday 21st June at 2pm to 4pm Seasalter and...

Whitstable Meet Up Group is a new group. Its first meeting, to which you are wa...

Soraya_PMR

•5 years ago

16 Replies

Worried about possible GCA. Can anyone recommend rheumatologist in N. ireland?

Hello, Recently joined this forum having been diagnosed with PMR in April. I am 68 years old. My first symptoms were L sided headache stretching down to ear...

Hello, Recently joined this forum having been diagnosed with PMR in April. I am ...

Rache

•5 years ago

21 Replies

Back on Prednisolone

I ended a tapering year of Pred in January. All good, so good my 2 nd Rheum was unconvinced I ever had PMR and taken off their follow up. Alas within weeks I...

I ended a tapering year of Pred in January. All good, so good my 2 nd Rheum was ...

Breconblue

•5 years ago

11 Replies

Advice on calcium

Can anyone tell me which calcium product is easiest on the stomach? I feel ive tried them all, but maybe not. Im trying to get the calcium thru food but...

Can anyone tell me which calcium product is easiest on the stomach? I feel ive t...

Hidden

•5 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

'Here Comes the Sun'

PUZZLED

Can you take cold meds with prednisone?

Pain an tenderness on top ofhead

Vitamin D Supplements and Health

Letter from a Doctor

How about Homeopathy?

Reduction in pred 10mg to 9.5mg

Does pmr/gca bring on heart problems

Hello new friends! Need guidance!

Family links with auto immune disease

Moon Face

Steroids and Levothyrox

Golden Years - At 60?

Flare!

Encouraging rheumy visit

CRP & ear level

Feeling frustrated and in the dark

Among the many things I can’t quite understand...

Asking for ESR & CRP numbers

Splitting the dose?

Prednisolone and Hair

Ignoring advice of doctor regarding osteoporosis meds

Lichen Slerosus

Help for groin pain

Sore tender left temple

NEW SUPPORT GROUP WHITSTABLE KENT

Worried about possible GCA. Can anyone recommend rheumatologist in N. ireland?

Back on Prednisolone

Advice on calcium

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