Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for May 2019

Off of methotrexate

Been taking methotrexate for about 3months now but due to bad headaches a cold for over 2months and feet full of verrucas I have been told to come off of it...

Been taking methotrexate for about 3months now but due to bad headaches a cold f...

Hidden

•5 years ago

1 Reply

Doctor's Advice

Earlier I asked if I should just taper taper more quickly since I felt so good and secretly thought PMR might be burned out and I didn't know it yet...and you...

Earlier I asked if I should just taper taper more quickly since I felt so good a...

yogabonnie

•5 years ago

6 Replies

Polymyalgia Rheumatica [PMR] and Wobbly Legs

I am a long-term Polymyalgia Rheumatica [PMR] sufferer and been on steroids for quite a few years now. All of a sudden my lower legs started to give away and I...

I am a long-term Polymyalgia Rheumatica [PMR] sufferer and been on steroids for ...

davidemm

•5 years ago

29 Replies

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Medical cannabis, safe, effective for elderly

https://www.medscape.com/viewarticle/912624?src=WNL_infoc_190523_MSCPEDIT_AGS&uac=97343EZ&impID=1971977&faf=1 Interesting read, particularly reduction of...

https://www.medscape.com/viewarticle/912624?src=WNL_infoc_190523_MSCPEDIT_AGS&ua...

Soraya_PMR

•5 years ago

13 Replies

Exercise.... not only does it make you feel better.....

I’m not feeling so good, for a myriad of reasons probably, and I’m teetering at 5mg. I know from past experience that my daily walk ‘improved’ me, I feel...

I’m not feeling so good, for a myriad of reasons probably, and I’m teetering at ...

Soraya_PMR

•5 years ago

35 Replies

Flu and flare

Last week, I felt a cold coming on. Sore throat, coughing, etc, I blamed it on my allergy to heavy seasonal pollen. I used inhalers and just plodded...

Last week, I felt a cold coming on. Sore throat, coughing, etc, I blamed it on...

Purplecrow

•5 years ago

18 Replies

The last one!

After two and a half years, two flares and all the side effects Pred causes, I’m free!! Today I took my last steroid tablet. Thank you so so much to whoever...

After two and a half years, two flares and all the side effects Pred causes, I’m...

Paulamac77

•5 years ago

61 Replies

Has anyone with pmr/gca (or both) had to see a neurologist?

I've been diagnosed with pmr/gca since January 2019. I have a rheumy and a gp and the next thing they want is an MRI and to see a Neurologist. Is this common?...

I've been diagnosed with pmr/gca since January 2019. I have a rheumy and a gp an...

pollymarierose

•5 years ago

29 Replies

Great primary DR -GCA

Saw Primary provider, got to love those NP's that really take time to help when you need them. Can hardly function with GCA steroid effects & other diagnoses I...

Saw Primary provider, got to love those NP's that really take time to help when ...

Spanky2019

•5 years ago

14 Replies

PMR reoccurrence or Rheumatoid Arthritis

My SED rate has never shown anything. My CRP has never been high. When I was first diagnosed with PMR back in 2016 I had trouble getting up off the floor or...

My SED rate has never shown anything. My CRP has never been high. When I was f...

RNRN

•5 years ago

9 Replies

To anyone who uses a Tens machine.

How often do you use it - and for how long? Does it help you? Thanks in advance.💐💐

How often do you use it - and for how long? Does it help you? Thanks in advance....

Constance13

•5 years ago

52 Replies

Testing for steroid withdrawal

I am going from 7.5 to 7 using the slow method. Had PMR for 3 years 3 months. I now am having pain in hands and knees. They feel sore and inflamed but look ok....

I am going from 7.5 to 7 using the slow method. Had PMR for 3 years 3 months. I ...

bunnymom

•5 years ago

13 Replies

PMR pain gone but...

I am still struggling with the Prednisolone. Changed to coated but still having stomach pains and swelling of abdomen. Feeling giddy and spaced out. 25 mg but...

I am still struggling with the Prednisolone. Changed to coated but still having ...

Blues1

•5 years ago

10 Replies

So let me clarify

I am currently on 10 mg of prednisone.....for 2 weeks. Started prednisone back in December made it down to 2.5 mg and then wham the pain. Dr. had me go up to...

I am currently on 10 mg of prednisone.....for 2 weeks. Started prednisone back ...

Musiclady18

•5 years ago

12 Replies

GCA then PMR?

Diagnosed with GCA about 5 months ago. GP's put me onto 50mg Pred straight away. All the symptoms, headaches, temporal artery, scalp tenderness, jaw...

Diagnosed with GCA about 5 months ago. GP's put me onto 50mg Pred straight away...

FowlerVF

•5 years ago

27 Replies

GCA future?

Can't research thoroughly yet. Am I correct in that with initial high dose pred 40 or 60 mg the gca symptoms are covered up by the side effects of pred?...

Can't research thoroughly yet. Am I correct in that with initial high dose pred...

Spanky2019

•5 years ago

6 Replies

Dining out !

Appetizer : PMR ( Prednisone included) Choice cuts : hips, buttocks, groin, neck thighs and shoulder....

Appetizer : PMR ( Prednisone included) Choice cuts : hips,...

aladymo

•5 years ago

5 Replies

leflunomide

Any information from those who are taking this drug and were on Prednisone that did not work? Just started it yesterday and will take both for 1 month then...

Any information from those who are taking this drug and were on Prednisone that ...

composition

•5 years ago

14 Replies

Fatigue Assessment Score (FAS)

Possibly of use to some if discussing fatigue with doctors? Here’s the article that I read re FAS in Systemic Lupus Erythematosus (SLE)....

Possibly of use to some if discussing fatigue with doctors? Here’s the article t...

Soraya_PMR

•5 years ago

23 Replies

Viagra

I tooka viagra this morning, not sure it was such a good idea, feel quite weak. :-((

I tooka viagra this morning, not sure it was such a good idea, feel quite weak. ...

SRIXON

•5 years ago

15 Replies

Lasering of eyes

Had an appointment at the hospital and been diagnosed with blepharitis and also offered laser treatment for my left eye. Since my last post I have downloaded a...

Had an appointment at the hospital and been diagnosed with blepharitis and also ...

prunus

•5 years ago

8 Replies

Healing Achilles Tendonosis

I am a 75-year-old California psychologist, physically active, and working full-time. I was diagnosed with PMR in January 2018 and have slowly reduced my...

I am a 75-year-old California psychologist, physically active, and working full-...

Doclew44

•5 years ago

8 Replies

Steroid knee injection

Had fluid aspiration and a steroid injection in my swollen knee this morning. Now I feel years younger all over! It may just be euphoria because the knee feels...

Had fluid aspiration and a steroid injection in my swollen knee this morning. No...

Roltuba

•5 years ago

13 Replies

Just started slow tapering

Going from 10mg to 9 as from tomorrow for a month and then have to phone my doc with progress. Fingers crossed. Wish me luck

Going from 10mg to 9 as from tomorrow for a month and then have to phone my doc ...

Rosina1871

•5 years ago

25 Replies

GCA emergency

Back briefly my new found friends. Don't want too much screen time on my baby blues right now. Increased prednisone from 40 to 60mg. Said they thought higher...

Back briefly my new found friends. Don't want too much screen time on my baby bl...

Spanky2019

•5 years ago

14 Replies

Glucosamine.

Hello everyone, I read in the newspaper yesterday that scientists have concluded that taking a daily dose of glucosamine reduces inflammation in the body and...

Hello everyone, I read in the newspaper yesterday that scientists have concluded...

sandrathecat

•5 years ago

31 Replies

Coated Pred

Hi - probably a question with an obvious answer (like when you ask a shop assistant where the toothpaste is and you’re standing next to it) - but how do you...

Hi - probably a question with an obvious answer (like when you ask a shop assist...

Thelmarina

•5 years ago

64 Replies

Blood Pressure with PMR

Has anyone had low blood pressure occur when you are trying a tapering dose of prednisone? I went from 10mg to 9mg. I have been on 9mg for 5 days now.

Has anyone had low blood pressure occur when you are trying a tapering dose of p...

29Pain00

•5 years ago

11 Replies

Letrazole and prednisolone

Saw Dr last week who wants a faster taper due to the 2 drugs what I want to know if slight pains will become worse or should I just accept slight pains to...

Saw Dr last week who wants a faster taper due to the 2 drugs what I want to kno...

irisweeder

•5 years ago

14 Replies

Prednisone taper maybe Thursday

So I'm on 20 mgs prednisone - back up yet again - and from all the information I've read on this forum I am going to try to reduce, but much more slowly now....

So I'm on 20 mgs prednisone - back up yet again - and from all the information I...

Nanna71

•5 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Off of methotrexate

Doctor's Advice

Polymyalgia Rheumatica [PMR] and Wobbly Legs

Medical cannabis, safe, effective for elderly

Exercise.... not only does it make you feel better.....

Flu and flare

The last one!

Has anyone with pmr/gca (or both) had to see a neurologist?

Great primary DR -GCA

PMR reoccurrence or Rheumatoid Arthritis

To anyone who uses a Tens machine.

Testing for steroid withdrawal

PMR pain gone but...

So let me clarify

GCA then PMR?

GCA future?

Dining out !

leflunomide

Fatigue Assessment Score (FAS)

Viagra

Lasering of eyes

Healing Achilles Tendonosis

Steroid knee injection

Just started slow tapering

GCA emergency

Glucosamine.

Coated Pred

Blood Pressure with PMR

Letrazole and prednisolone

Prednisone taper maybe Thursday

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