At the beginning of my PMR diagnosis, when I rang for my blood test results, the receptionist told me my ESR was normal but to contact GP about my CRP level, just that - no numbers offered. Asked GP later and my CRP level was 27. I did not think to query ESR level. A month later after being on 15mg Pred, my GP ordered a second blood test. When I rang, I was again told my ESR was normal. I asked for exact numbers for CRP and was told it was now 6.7, a significant drop.
Having recently read on this forum that we should keep a record of our changing levels of both ESR and CRP, I rang reception again today. It turns out my ESR had dropped from 24 to 6 since taking Pred!! I am amazed I wasn’t informed of this big drop. Surely this is very relevant information which should be shared with the patient. Just to remind others to always ask for details of their results and don’t just accept their ‘normal’. I imagine 24 must have been high for me personally and I would have been very reassured to know how much it had come down.