Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for May 2019

Meggsy - Profile Update as Requested

Female 74 years - PMR Australia Diagnosed Feb 2018. After 5 months of accumulating symptoms I woke up one morning with the whole kit and caboodle. ESR 70, CRP...

Female 74 years - PMR Australia Diagnosed Feb 2018. After 5 months of accumulati...

Meggsy

•5 years ago

11 Replies

O No I only been and done it!!. Update

Update on my post 3 months ago. I had gained 2 stone in weight due to steroids in only 18 months. So I joined slimming world on line. Very pleased to...

Update on my post 3 months ago. I had gained 2 stone in weight due to steroids ...

SuziCutie

•5 years ago

23 Replies

Disappointed

Iv been left 6 yrs in pain by a lazy doctor who wouldn’t refer me to anyone, all she did was put me on strong pain killers, when seeing another doctor I told...

Iv been left 6 yrs in pain by a lazy doctor who wouldn’t refer me to anyone, all...

nettie66

•5 years ago

31 Replies

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_Flashes; Warn of GCA flare

Went too a new Ophthalmologist this morning for a routine check of the eyes. He He said,"I've found that GCA patients experience light flashes on the cusp of a...

Went too a new Ophthalmologist this morning for a routine check of the eyes. He ...

Blurry62

•5 years ago

18 Replies

The lesser of two evils, Prednisone vs Naproxen?

I have had PMR for about six years and take 5mg of Prednisone a day, I have painful knees and my GP has diagnosed OA and prescribed Naproxen which at this...

I have had PMR for about six years and take 5mg of Prednisone a day, I have pain...

Loco99

•5 years ago

46 Replies

Am I being stupid? Follow up

Hello Having got lots of useful information from my post 2 weeks ago, just a few more questions. I am assuming that my calcium will come from eating a...

Hello Having got lots of useful information from my post 2 weeks ago, just a fe...

Urtica

•5 years ago

8 Replies

Extreme sciatica pain

Had back surgery at L4/L5 for sciatica about 2.5 years ago after trying everything in the book to help me, discectomy and laminectomy. Hit by drunk...Took...

Had back surgery at L4/L5 for sciatica about 2.5 years ago after trying everythi...

Fulltilt

•5 years ago

11 Replies

New cook book for low carb diets

Having many side effects from prednisolone I was told I am now pre diabetic so have been trying hard to have a low carb no sugar diet. Have found this very...

Having many side effects from prednisolone I was told I am now pre diabetic so ...

Linlang

•5 years ago

29 Replies

Rheumy appointment

I saw my rheumatologist yesterday. I am currently on 30 mg pred for GCA. My U/S and temporal biopsies were both negative. My recent CRP is less than 5. GCA has...

I saw my rheumatologist yesterday. I am currently on 30 mg pred for GCA. My U/S ...

polymy

•5 years ago

21 Replies

What studies are available to show a link between untreated PMR and the development of GCA?

I've had PMR for almost a year, but the prednisone (and necessary PPI) were so badly tolerated that I've now tapered to no meds at all. I have a very high...

I've had PMR for almost a year, but the prednisone (and necessary PPI) were so b...

Hidden

•5 years ago

15 Replies

PMR Relapse or not ?

Hi Everybody I would appreciate it if some of the long time specialists on this panel could read my post and comment . Thank you I was diagnosed with PMR in...

Hi Everybody I would appreciate it if some of the long time specialists on this...

josvanloo

•5 years ago

5 Replies

Little worried about tapering to 7.5mg prednisone

Brief background Age 58 Diagnosed in December 2018with PMR February saw Rheumatologist prescribed 30 mg prednisone 3/6/2019 20 mg, 3/26/3029 15 mg 5/5/2019...

Brief background Age 58 Diagnosed in December 2018with PMR February saw Rheumat...

jensen0518

•5 years ago

5 Replies

Pred taper or flare?

Thank you all so much for your previous advice re weight gain etc. i feel much better for cutting out carbs - don’t think I’m getting the blood sugar swings....

Thank you all so much for your previous advice re weight gain etc. i feel much ...

Enfin

•5 years ago

8 Replies

Skin cancer

I am having horrible problems with thin skin I am on blood thinners which don’t help as if knock legs I end up with bruises that bleed on inside forget the...

I am having horrible problems with thin skin I am on blood thinners which don’t...

Rusty8

•5 years ago

14 Replies

Reduced symptoms...what are we going for here?

We are all encouraged to reduce Pred dosage but what exactly should we expect when we do? As I continue to reduce my dose, I still have have pain and...

We are all encouraged to reduce Pred dosage but what exactly should we expect wh...

jackswife

•5 years ago

37 Replies

Radiotherapy and pmr

Hello. I have been diagnosed with cancer and I was programmed to receive radiotherapy. It has been mentioned that because i have been on long-term steroids...

Hello. I have been diagnosed with cancer and I was programmed to receive radiot...

potmad

•5 years ago

17 Replies

Do flares affect the overall time to remission?

I know it will be what it will be, but I'm wondering if anyone can say whether one or more flares of duration have seemingly increased the overall time to full...

I know it will be what it will be, but I'm wondering if anyone can say whether o...

clieder

•5 years ago

16 Replies

The new saga continues....

Hello all!! I wrote over the weekend I was new and mentioned that my tapering was pretty fast and I thought I needed more meds. I have only started this...

Hello all!! I wrote over the weekend I was new and mentioned that my tapering wa...

Kern1410

•5 years ago

23 Replies

CRP and ESR question

Is it possible for your sedimentation rate and CRP to be EXACTLY the same number, to the decimal point, after a month and a half? I'm thinking the lab goofed...

Is it possible for your sedimentation rate and CRP to be EXACTLY the same number...

Navion

•5 years ago

13 Replies

thank you.....

Just want to say as a new member that your discussions have been soothing to me--just knowing I am not going crazy, that these ups and downs are common. Do I...

Just want to say as a new member that your discussions have been soothing to me-...

composition

•5 years ago

7 Replies

Flare at 5mg

Hi - sorry if this is answered already in this forum but I have been tapering well and got to 5mg, split 2.5 at 8am and 2.5 at 8pm. Started getting sore upper...

Hi - sorry if this is answered already in this forum but I have been tapering we...

Bern435413

•5 years ago

21 Replies

Useful article about carb intake

A poster on the Healthy Eating forum gave this link. It provides a good summary of the carbs we should be eating and it also includes a number of other useful...

A poster on the Healthy Eating forum gave this link. It provides a good summary ...

Marijo1951

•5 years ago

81 Replies

Weak and wobbly

I have been on pred for over three years , but in many ways am feeling worse . I have never had the level of pain that some suffer, but am troubled by extreme...

I have been on pred for over three years , but in many ways am feeling worse . I...

Tiny_Tim

•5 years ago

6 Replies

15 mg or 10??

Hi all, I have been on prednisone for 1 month. I suspect I've had PMR for 15 months, but was just diagnosed 3 months ago. The first week I was at only 5 mg...

Hi all, I have been on prednisone for 1 month. I suspect I've had PMR for 15 mon...

Navion

•5 years ago

20 Replies

Puzzled

Thank you to all who replied. Everything that was said made sense and I feel better for it. Rather wishful thinking that I might finish Pred this year.

Thank you to all who replied. Everything that was said made sense and I feel bet...

joat

•5 years ago

2 Replies

Disability badge (blue badge in UK)

Hello again, After my recent experience with combined spinal nerve pain and a PMR flare when I could hardly move, I 've shocked myself by applying for a...

Hello again, After my recent experience with combined spinal nerve pain and a ...

Oxford8

•5 years ago

52 Replies

Weak arms

Hi all Now alternating 10 preds one day 9 the next then 10 on advice from the rheumatologist at the WSH I guess I’m doing a bit to much but damed if I’m going...

Hi all Now alternating 10 preds one day 9 the next then 10 on advice from the rh...

_multistrada

•5 years ago

15 Replies

How do you help stupid.

As you know I am moving house and you have probably guessed I have over done things. My arms from my elbow to shoulders hurt and I am having trouble lifting...

As you know I am moving house and you have probably guessed I have over done thi...

Whippetygirl

•5 years ago

4 Replies

Have been feeling okay but today............

Not sure what is going on, I'm back on the post. Today I woke up with pain in my fingers, palms and wrists big time. I am still on 10mg of prednisone, have...

Not sure what is going on, I'm back on the post. Today I woke up with pain in my...

Musiclady18

•5 years ago

7 Replies

Finally prescribed pred

Started pred on Weds, pain in hips and legs gone by Thurs - couldn't believe it and was so angry I have had to live like this for so long when 15mg of pred had...

Started pred on Weds, pain in hips and legs gone by Thurs - couldn't believe it ...

Aamar

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2019

Meggsy - Profile Update as Requested

O No I only been and done it!!. Update

Disappointed

_Flashes; Warn of GCA flare

The lesser of two evils, Prednisone vs Naproxen?

Am I being stupid? Follow up

Extreme sciatica pain

New cook book for low carb diets

Rheumy appointment

What studies are available to show a link between untreated PMR and the development of GCA?

PMR Relapse or not ?

Little worried about tapering to 7.5mg prednisone

Pred taper or flare?

Skin cancer

Reduced symptoms...what are we going for here?

Radiotherapy and pmr

Do flares affect the overall time to remission?

The new saga continues....

CRP and ESR question

thank you.....

Flare at 5mg

Useful article about carb intake

Weak and wobbly

15 mg or 10??

Puzzled

Disability badge (blue badge in UK)

Weak arms

How do you help stupid.

Have been feeling okay but today............

Finally prescribed pred

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