I haven't posted on here for quite some while, so first a bit of background.
Diagnosed with PMR in Oct 2015.
Struggled to reduce to below 10mg pred for ages as every time I did I got "ice pic" headaches
Eventually got to 7.5 after about 18months and stayed there for around 6 months as same thing happened if I tried to reduce no matter how slowly.
In the last year I have now got to 2.5mg. with no symptoms and no headaches
Now the bad news begins.
I was feeling more and more tired and fatigued didn't know if it was pred induces but with no other symptoms I decided to have a thyroid function test (I live in Cyprus and here we can just rock up to the lab, pay the fee and have whatever tests done we like. Usefull)
Thyroid was low so went to see endocrinologist. he ordered several other bloods and an MRI of pituitary gland.
It seems I have very low hormone levels and both a tumour and a cyst on my pituitary.
The Drs are now suggesting that it may not have been PMR but could have been the early stages of the tumour and/or cyst that were causing the PMR like symptoms in the first place. Possibly 3 years on pred for nothing.
I'm now waiting for my next appointment with the endo, next Tuesday and have a Neuro surgeon primed and on standby. (Isn't private medicine wonderful?)
I don't actually have any option other than private as I'm not covered on state system.
I think I need some happy pills as things are starting to get me down now.
Stay as well as you can everyone.