Hearing

[Mgeorge]

Does PMR/GCA cause hearing problems

[Primarose]

Hi Mgeorge

Yes, GCA *can* cause hearing problems. I took part in a survey a while ago which was based on this.

[Mgeorge in reply to Primarose]

Is the survey still on? I could benefit from it.

[DorsetLady PMRGCAuk volunteer]

Does for some.

This is survey Primarose refers to -

healthunlocked.com/pmrgcauk....

Just type in “hearing” in search box and you see previous posts on subject.

[Mgeorge in reply to DorsetLady]

Where is the search box? There was a post about particular sounds being a problem. I have hearing aids, but can’t abide high pitched sounds, especially children. I would love to show my audiologist.

[PMRpro Ambassador in reply to Mgeorge]

On a computer the search box is top right - not sure about other devices.

Children screaming: OMG!!!! OH cheats - he just switches off his hearing aids...

[Mgeorge in reply to Mgeorge]

I found it! On my iPhone, it’s under More! Thanks

[Telian in reply to Mgeorge]

Children screaming - makes me visibly jump - one young woman apologised as her child did that to me - plus they seem to be out in force at the moment, feel sorry for supermarket workers.

[PMRpro Ambassador]

It can - and as the others have said, doctors in the north of England are carrying out a survey study on it.

[Mgeorge]

I thought my bad reaction to certain sounds was because I was a “ cranky old lady”. Love to hear more examples and what to do to overcome.

[PMRpro Ambassador in reply to Mgeorge]

I suppose it doesn't rule out "cranky old lady" as a cause though ...

[HeronNS in reply to Mgeorge]

I went to a concert the other evening. It was Mahler, which might have been a challenge under any circumstances, but I was prepared to enjoy myself, having fairly eclectic tastes when it comes to classical music. It was so loud I was in pain. Left at the intermission. But everyone else seemed okay. Note to self: must buy ear plugs.

[PMRpro Ambassador in reply to HeronNS]

Our regional TV news on the Austrian network has changed its title format - to bear the music they now use we have to turn the volume down so far we can't hear the spoken bit! But I have noticed for years that others tolerate far higher volumes than I can and part of it is they have already developed a degree of hearing loss due to listening to loud music. Anyone who uses in-ear phones is at greater risk and it has been found there is an alarming level of hearing loss in young people.

[maria40 in reply to PMRpro]

I took my grandson to see the last Star Wars film and felt almost panicked by the volume. I was really quite grateful when he said he was frightened (he's not allowed much tv etc. at home) and he wanted to leave after three quarters of an hour. My ears were still buzzing when we got home half an hour later. I am constantly amazed by the volume at which friends have their televisions and saddened by the number of contemporaries who have hearing aids. Although I get buzzing in my ears, which may or may not be a symptom of GCA , thank Heaven my hearing seems unimpaired.

PS. Can anybody please help me to sort out my page which has gone into

Spanish?

[HeronNS in reply to maria40]

Which page? Check settings first.

[HeronNS in reply to maria40]

I have for a number of years deliberately covered my ears when a large noisy vehicle passes me if I'm out walking. I loathe the motorcyclists who soup up their engines to be louder than a fully loaded eighteen-wheeler. My youngest child has always been quite interested in music. He went to a bar which was particularly notorious for loud volume music. He complained to me about how loud it was. but he went a second time, and told me he didn't find it as bad the second time. Had he already lost a small range of his hearing? A musician acquaintance is unable to take a particular walk in our community because it goes near a stretch of highway (a bypass highway where cars can go 100 km) and the noise bothers him. Once I saw a man training a falcon - he'd brought it to the side of that road to accustom it to traffic noise as its eventual task was to be keeping other birds away from the airport.

[Telian in reply to HeronNS]

No 2 son used to be in a band and he has tinnitus as a result, he can't sleep without very low music on - if the room is silent all he can hear is ringing.

[Hidden]

I have the same problem. Look up Hyperacusis on NHS Website. Intolerance to everyday sounds.

[HeronNS in reply to Hidden]

It sounds (no pun intended) as though hyperacusis is intolerance to certain everyday sounds. I'm not sure that very loud machinery or very loud musical instruments played in a relatively small space (the concert I attended was in a church, albeit high ceiling, not concert hall) count as "everyday" sounds? I have heard (no pun!) oversensitivity to loud noises is ironically a sign of hearing loss.

[Hidden in reply to HeronNS]

Had hearing aids before and now don't need to ear them as everything too loud. Lol

[Mgeorge]

Thank you!

[MavisEllen]

I have recently been fitted with digital hearing aids and wear them bilaterally. The audiologist informed me that the permanent damage in the cochleas in both ears had probably been caused by the high doses of prednisolone destroying the stereocilias which are hair like structures, millions of them, that interpret the vibrations of sound and send messages to the brain. I had been having real problems with spatial awareness, missing things when reaching for them and also had experienced frequent falls. Long story short, since having the digital hearing aids not only can I hear really well, I have not fallen and my spatial awareness is back to how it used to be. My lovely daughter says that I am like a huge bat and sound waves bounce off solids and I now recognise where walls and doorways are. I had been quite worried as although I could see the open door I often walked bang slap into the door jamb.