Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2018

Coincidence or divine intervention?

In preparation for the birth of my first grandchild, my son and his lovely partner moved recently. They are now living only ten minutes away - child care on...

In preparation for the birth of my first grandchild, my son and his lovely partn...

Marilyn1959

•6 years ago

12 Replies

Weekend in Bridport

I didn't really feel up to it, but my husband had promised our friend we'd visit... *sign* How many times can you cancel plans, before you start to come across...

I didn't really feel up to it, but my husband had promised our friend we'd visit...

Hidden

•6 years ago

40 Replies

Made it :)

5am and stood on cruise balcony. Sailing into Palma. Then flight home. I made it. Two weeks hols. Did the walking (reduced) but still managed a good deal...

5am and stood on cruise balcony. Sailing into Palma. Then flight home. I made it...

Chrissy1953

•6 years ago

19 Replies

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Feet pain with PMR

The soles of my feet are so tender - does this come with PMR or is this something else?

The soles of my feet are so tender - does this come with PMR or is this somethin...

LMAR

•6 years ago

5 Replies

Professor Dasgupta at Rettondon meet today - what a good talk he gave...

Wanted you to know... Professor Dasgupta was guest speaker at the Rettondon Meet today and gave an excellent talk on the illness, he gave a lot of detail yet...

Wanted you to know... Professor Dasgupta was guest speaker at the Rettondon Mee...

Telian

•6 years ago

44 Replies

Just a question

I know perhaps this shouldn't be asked. But is there anyone on this site who shares this disease and is also or has been a solicitor? Just wanted to ask a...

I know perhaps this shouldn't be asked. But is there anyone on this site who sha...

morrison

•6 years ago

8 Replies

Fatigue these last few days

Well I know I've been tired when getting home from work, but the last couple of days! Driving home from work yesterday and again today I felt really tired....

Well I know I've been tired when getting home from work, but the last couple of ...

JulianJ

•6 years ago

35 Replies

Not GCA

So here I am still waiting for the lp test. Headache getting much stronger put me on depacote pill for the headache. The neurologist and the hospitalist they...

So here I am still waiting for the lp test. Headache getting much stronger put m...

Hali12

•6 years ago

17 Replies

Old age, pred or just plain stupid?

I meticulously counted out preds and amlodipine before a 4 day trip to Amsterdam. So far so good but, on arrival, found only enough amlodipine for 2...

I meticulously counted out preds and amlodipine before a 4 day trip to Amsterdam...

tgca

•6 years ago

9 Replies

Not Feeling Great

11 months on PMR journey...started at 25 mg Pred now tapering from 8 to 7 mg. I have stress fractures in both feet (sever steoporosis on Reclast). Sunday I...

11 months on PMR journey...started at 25 mg Pred now tapering from 8 to 7 mg. I ...

Sandy1947

•6 years ago

36 Replies

Off Piste.......................

OK, this is not about PMR or GCA, but it is about money. I am taking a liberty and posting this information just in case you know someone who might benefit,....

OK, this is not about PMR or GCA, but it is about money. I am taking a liberty...

jinasc

•6 years ago

11 Replies

From Pins and needles to Smocking.

Following on from my post about severe numbness and tingling Iam sad to say that it has now progressed to bouts of agony .My arms feel like they have been...

Following on from my post about severe numbness and tingling Iam sad to say that...

Dewdrop456

•6 years ago

13 Replies

While I was fiddling with my Pred - Albany was burning !!

While I have been focusing on my health and all its requirements we have just been reminded there are 'bigger things' to distract us at times like having to...

While I have been focusing on my health and all its requirements we have just be...

Rimmy

•6 years ago

11 Replies

Just joined!

Diagnosed with PMR in late September 2017 when I eas still living in France. It was a shock to say the least but the pred worked its magic on what had been...

Diagnosed with PMR in late September 2017 when I eas still living in France. It ...

MamaBeagle

•6 years ago

9 Replies

Very high dose

So here is what is happening now. I’m still here in the hospital. Told them I’m not leaving until we find an answer. So the neurologist came. She had me on...

So here is what is happening now. I’m still here in the hospital. Told them I’m ...

Hali12

•6 years ago

33 Replies

Traumatic brain injury, resulting in complete blindness

My bfriend was trampled by a mule causing a traumatic head injury whereas he woke up from A 4 day coma, completely blind. After the initial impact he could see...

My bfriend was trampled by a mule causing a traumatic head injury whereas he wok...

sambolina2000

•6 years ago

2 Replies

Down and weak vs stiff. Different kind of Pred withdrawal effects?

12/2016 PMR. Delayed release Pred taken at 10 PM. Markers stable since 04/2017. Day 28 of 38 day taper 6-5. I have two topics I'd love some help with. For all...

12/2016 PMR. Delayed release Pred taken at 10 PM. Markers stable since 04/2017. ...

Hindags

•6 years ago

16 Replies

Mole Change .. Hair Loss Can’t take much more

Have been on Pred for 6 months for GCA now down to 12mgs .. have noticed bald patches! Also, a mole changed within 4 weeks of being on this med .. saw gp...

Have been on Pred for 6 months for GCA now down to 12mgs .. have noticed bald p...

777s

•6 years ago

15 Replies

Can find the search. Where is it located?

Can anyone tell me where the search for topics?

Hartmare

•6 years ago

4 Replies

2nd bout with Pmr

I got diagnosed in December of last year, get this by my 84 year old retired uncle who was a doctor. My GP hadn’t clue and had me run through stress test to...

I got diagnosed in December of last year, get this by my 84 year old retired unc...

Julesster84

•6 years ago

7 Replies

Pmr

I wonder if anyone experiences knee issues after having pmr for a while?

Drummerbear

•6 years ago

15 Replies

Thank you all for your encouragement and caring and understanding

So here is what happened once I got to ER. So I had my son drive me to there I was not in shape or form to drive. Not surprised. I got wheelchaired in....

So here is what happened once I got to ER. So I had my son drive me to there I...

Hali12

•6 years ago

19 Replies

Sweats......Won't boast next time

Not long ago I wrote that I was pain free!!! Well that jinxed it... Well last will I started having sweats.. and over last two days some pain has returned.. so...

Not long ago I wrote that I was pain free!!! Well that jinxed it... Well last wi...

Katrinaroper

•6 years ago

11 Replies

I dropped from 12 to 10 nine weeks ago and things are getting worse

I had a horrible 5 days at the start of this drop--then a couple of weeks okay and now I hurt all over. My feet are killing me and it is very hard to walk. I...

I had a horrible 5 days at the start of this drop--then a couple of weeks okay a...

Celebrant

•6 years ago

8 Replies

Cataracts

Has anyone had cataracts op .... I hear it’s a simple procedure but does Vasculitis GCA have any bearing ?

Has anyone had cataracts op .... I hear it’s a simple procedure but does Vasculi...

shella

•6 years ago

54 Replies

search feature?

hello everyone, OK, pred head question: Where is the little search icon on the website? I'm usually on my phone on the website, but now I'm on my laptop...

hello everyone, OK, pred head question: Where is the little search icon on ...

Mstiles

•6 years ago

6 Replies

Prednisone and PMR

Oh, I've been an emotional wreck. Have always been a worrier but this is unreal, I've never been so stressed. Dr says I have anxiety ! !! Will prednisone play...

Oh, I've been an emotional wreck. Have always been a worrier but this is unreal,...

Sunshinemaggie9

•6 years ago

15 Replies

leg pain

I had surgery on back for pinch nerve March 1 but my buttock and leg is numb how will it take to heal

I had surgery on back for pinch nerve March 1 but my buttock and leg is numb ho...

larryterry

•6 years ago

3 Replies

Just whining

Have had PMR for 2 years and was at 8 mgs trying to go down but just hurt all the time then I went through treatment for skin cancer and was told steroids are...

Have had PMR for 2 years and was at 8 mgs trying to go down but just hurt all th...

England05

•6 years ago

6 Replies

GOING TO ER NOW

Not feeling so good

Hali12

•6 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

Coincidence or divine intervention?

Weekend in Bridport

Made it :)

Feet pain with PMR

Professor Dasgupta at Rettondon meet today - what a good talk he gave...

Just a question

Fatigue these last few days

Not GCA

Old age, pred or just plain stupid?

Not Feeling Great

Off Piste.......................

From Pins and needles to Smocking.

While I was fiddling with my Pred - Albany was burning !!

Just joined!

Very high dose

Traumatic brain injury, resulting in complete blindness

Down and weak vs stiff. Different kind of Pred withdrawal effects?

Mole Change .. Hair Loss Can’t take much more

Can find the search. Where is it located?

2nd bout with Pmr

Pmr

Thank you all for your encouragement and caring and understanding

Sweats......Won't boast next time

I dropped from 12 to 10 nine weeks ago and things are getting worse

Cataracts

search feature?

Prednisone and PMR

leg pain

Just whining

GOING TO ER NOW

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