Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for May 2018

Suckers (as in drains) and Radiators

I love this way of describing different friends. After spending time with radiators I feel energised, but some people can just be suckers. After time with them...

I love this way of describing different friends. After spending time with radiat...

Pym1

•6 years ago

9 Replies

Swollen leg

Something has changed in my right lower leg over the last few days. Started with the Bank Holiday heat. It's not painful but it is swollen, feels different to...

Something has changed in my right lower leg over the last few days. Started with...

Q-owl

•6 years ago

8 Replies

Having PMR Is Like Dancing With A Gorilla……..

The dance isn’t over until the gorilla decides it’s over. On August 25, 2017, I began a treatment regimen which included weekly injections of depo-medrol that...

The dance isn’t over until the gorilla decides it’s over. On August 25, 2017, I...

Admiral06

•6 years ago

11 Replies

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Scary stuff

I’ve been trying not to push myself. I had to leave work early again today because I felt so tired and weak. I have absolutely no energy. I’ve been on...

I’ve been trying not to push myself. I had to leave work early again today beca...

Dejon73

•6 years ago

18 Replies

Arrived at zero

Hello Everyone Emailing just to say that I have very gradually tapered down to zero and all is going well. Thanks to the advice received from this forum I have...

Hello Everyone Emailing just to say that I have very gradually tapered down to z...

Irldino

•6 years ago

44 Replies

Put to shame!

I have been feeling sorry for myself lately ....you know, legs aching tired etc; the mirtzapine has helped depression and panic attacks. I had to go to...

I have been feeling sorry for myself lately ....you know, legs aching tired etc;...

Xanthe12345

•6 years ago

9 Replies

Nervous about trip

I am planning to go Thursday with my daughter and grandchildren to Memphis Tennessee to sightsee and visit my oldest grandson and his wife. My grandson is in...

I am planning to go Thursday with my daughter and grandchildren to Memphis Tenne...

Lanakay

•6 years ago

16 Replies

reducing

haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy...

haven,t posted for long time, but been reading some of your reduction plans, i s...

arvine

•6 years ago

13 Replies

How to Lose Friends and Disengage People

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/05/07/how-to-lose-friends-and-disengage-people/ Warning; This blog post contains strong...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/05/07/how-...

Hidden

•6 years ago

104 Replies

Awful headaches at around 6.30 pm every evening.

Currently experiencing fairly severe headaches at the same sort of time every evening, often involving eye strain and sometimes a poked in the eye sensation....

Currently experiencing fairly severe headaches at the same sort of time every ev...

SheffieldJane

•6 years ago

104 Replies

Wine and pain

Has anyone found PMR pain worse after a couple of red wines in the evening? I find some mornings I am sore after a wine and not sure if relevant. Haven’t...

Has anyone found PMR pain worse after a couple of red wines in the evening? I f...

Janicep

•6 years ago

16 Replies

Coated or non coated pred? - that is the question....

Good morning and I hope you're all enjoying this sunshine as best you can. I've been taking 2 x 5 MGS of coated pred at 7 pm followed by 2 MGS of uncoated pred...

Good morning and I hope you're all enjoying this sunshine as best you can. I've ...

Ronnie101

•6 years ago

10 Replies

Dental Flare

Recently another user asked about dental issues, and complications with PMR and prednisone. I responded that I had had previous dental work with no issues....

Recently another user asked about dental issues, and complications with PMR and ...

Purplecrow

•6 years ago

14 Replies

Trouble with site

Sounds like I am not only one to have trouble with the HU site. Makes me sign in each time I want to use. Thought it was just because my email was hacked....

Sounds like I am not only one to have trouble with the HU site. Makes me sign i...

Purplecrow

•6 years ago

7 Replies

Slight numbness in hand foot

I have been tapering down my Prednisone and noticed for a few days now I have a slight numbness on the side of my hand and foot. anyone experience this before?...

I have been tapering down my Prednisone and noticed for a few days now I have a ...

2roos

•6 years ago

23 Replies

tapering from high dosage of prednisone

Any suggestions on tapering from 50 mg? Not more than 10% and going down weekly or every 2 weeks if feeling ok? I'm new at this. Any thoughts appreciated....

Any suggestions on tapering from 50 mg? Not more than 10% and going down weekly...

gtate1914

•6 years ago

22 Replies

INSANITY OF INITIAL TREATMENT FOR PMR

In organizing my files on this long, painful, mysterious, and frightening journey towards diagnosis of PMR and to the present, I came across an initial...

In organizing my files on this long, painful, mysterious, and frightening journe...

Robinre

•6 years ago

5 Replies

From 100 to 6

Tapering is definitely one of the most talked about topics here and slowly and I mean s-l-o-w-l-y and with with great care and listening to my body I am at 6....

Tapering is definitely one of the most talked about topics here and slowly and I...

Nitrobunny

•6 years ago

13 Replies

frustrating to figure out

Random thoughts---I think one of the most frustrating things is ---- all those things we would have dismissed, a sore groin, a head ache, shoulder pain, etc,...

Random thoughts---I think one of the most frustrating things is ---- all those t...

pwalker801

•6 years ago

33 Replies

Calcium! Taking Amlodipine. Heart.BP. (Calcium Channel Blocker) + Adcal-D3. Calcium. ( Bone Saver) Seems Contra! Wise ones?

Think I said it all in the headline! My footie team escaped relegation today! Barking madness to feel emotion about this branding world but there it is! I...

Think I said it all in the headline! My footie team escaped relegation today! B...

Hidden

•6 years ago

13 Replies

Warfarin reduces vitamin K, which aids calcium build bone

I finished my DSNS taper of pred on 13th March, after 20 months. I have now set about seeing whether I should and could change my blood thinner from warfarin...

I finished my DSNS taper of pred on 13th March, after 20 months. I have now set ...

hopeful-1

•6 years ago

10 Replies

PMR/ OSTEOARTHRITES QUESTION. Direction appreciated.

Hi all. I hope it is a good day for everyone. I can't walk on the bottom of the R foot this morning. I think I lost a lot of fat pads. However I do have...

Hi all. I hope it is a good day for everyone. I can't walk on the bottom of th...

Coachev

•6 years ago

3 Replies

Low dose pred long term effects

Hi All , I haven’t posted for some time wondered if there are any other people in my current situation . Been on pred 3 years this July , usual story reduced...

Hi All , I haven’t posted for some time wondered if there are any other people i...

Gaz227

•6 years ago

14 Replies

Reducing prednisone

Is it helpful to take my Pred in 2 doses. I am down to 7mg a day but having quite a few symptoms. Stiffness in my legs, horrible fatigue and a general feeling...

Is it helpful to take my Pred in 2 doses. I am down to 7mg a day but having quit...

Tonysue

•6 years ago

14 Replies

MY LEGS WONT WORK !

Hi everyone ... I hope you're all having fun in the sun ! I wonder if anyone can advise me ? I am coming up to 64 years of age, female. I was diagnosed with...

Hi everyone ... I hope you're all having fun in the sun ! I wonder if anyone can...

Polylinc

•6 years ago

36 Replies

Progress

I was recently in Spain visiting my 95 yr old aunt and enjoyed the warmth after a long hard winter here in Scotland. I was diagnosed in Dec and from 60mg...

I was recently in Spain visiting my 95 yr old aunt and enjoyed the warmth after ...

Hidden

•6 years ago

21 Replies

Acid reducers

What about stomach issues while on prednisone? On Actemra? Anyone taking acid controllers such as proton pump inhibitors or h2-2 inhibitors? My rheumy and my...

What about stomach issues while on prednisone? On Actemra? Anyone taking acid c...

gtate1914

•6 years ago

13 Replies

This a tester to see if I am back in my own body!

If this comes through as Telian then I am up and running again yeeaaaah - if I'm still Lynnc84 then noooooo....

If this comes through as Telian then I am up and running again yeeaaaah - if I'm...

Telian

•6 years ago

16 Replies

Am I just being a wuss?

Glorious Bank Holiday weekend greetings to one and all. Boy doesn't some sunshine make you feel better even if you've no energy to do anything in it! :-) I'm...

Glorious Bank Holiday weekend greetings to one and all. Boy doesn't some sunshin...

Mike1964

•6 years ago

61 Replies

Update on site problems

Just had correspondence from the real Lynnc84 and she is admin on another site - she tells me the problems are site wide and 'it's a right mess and won't be...

Just had correspondence from the real Lynnc84 and she is admin on another site -...

Lynnc84

•6 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

Suckers (as in drains) and Radiators

Swollen leg

Having PMR Is Like Dancing With A Gorilla……..

Scary stuff

Arrived at zero

Put to shame!

Nervous about trip

reducing

How to Lose Friends and Disengage People

Awful headaches at around 6.30 pm every evening.

Wine and pain

Coated or non coated pred? - that is the question....

Dental Flare

Trouble with site

Slight numbness in hand foot

tapering from high dosage of prednisone

INSANITY OF INITIAL TREATMENT FOR PMR

From 100 to 6

frustrating to figure out

Calcium! Taking Amlodipine. Heart.BP. (Calcium Channel Blocker) + Adcal-D3. Calcium. ( Bone Saver) Seems Contra! Wise ones?

Warfarin reduces vitamin K, which aids calcium build bone

PMR/ OSTEOARTHRITES QUESTION. Direction appreciated.

Low dose pred long term effects

Reducing prednisone

MY LEGS WONT WORK !

Progress

Acid reducers

This a tester to see if I am back in my own body!

Am I just being a wuss?

Update on site problems

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