Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2018

Fool me once…

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/05/23/fool-me-once/ Warning; This blog post contains strong language. If you are offended...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/05/23/fool...

Hidden

•6 years ago

106 Replies

Taking the plunge

A very good late PMR morning (it was when I started writing this) to anyone picking-up this post. Having followed the forum for a couple of months, written 1...

A very good late PMR morning (it was when I started writing this) to anyone pick...

Nerak12

•6 years ago

72 Replies

Awake in the small hours

It’s now 3.25 a.m. ! Does anyone have similar troubles with a rumbling rolling squeaking stomach ? I have tried a bite to eat but still the grumbling...

It’s now 3.25 a.m. ! Does anyone have similar troubles with a rumbling rolling s...

Annie1001

•6 years ago

23 Replies

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Blood work

Good Morning All When I was diagnosed with pmr all the blood work they did was high. I was on 20 mg for awhile and then tapered down from there to today at...

Good Morning All When I was diagnosed with pmr all the blood work they did was h...

Lin6075

•6 years ago

9 Replies

High Gamma GT Blood Result. MMmm!

OK. some honesty! I enjoy a glass of wine or two!! It's helped & lifted me through many a challenge or enjoyable time! Latest bloods high Gamma GT. Other...

OK. some honesty! I enjoy a glass of wine or two!! It's helped & lifted me throu...

Hidden

•6 years ago

15 Replies

PMR for almost two years

I've been on prednisone for my PMR for almost two years, I've gained probably 20lbs. I can get down to 5mg and maintain with minimal pain and then I have a...

I've been on prednisone for my PMR for almost two years, I've gained probably 20...

LThomas

•6 years ago

79 Replies

Salt and morning headaches

I've held off posting about this for a few days, although I've mentioned it where it seems relevant in replies. For a long time I've often woken up with a...

I've held off posting about this for a few days, although I've mentioned it wher...

HeronNS

•6 years ago

28 Replies

Update on 'where do I go next'

Just had a good phone consultation with my GP. My ESR had gone up since the previous blood test in spite of increasing the dose but we both agreed that I was...

Just had a good phone consultation with my GP. My ESR had gone up since the prev...

Louisepenygraig

•6 years ago

8 Replies

muzzy head and creepy feeling

Reduced from 4mg to 3.5 now into my 4th week am now getting a muzzy head and a creepy feeling has anybody else had these symptoms no pains

Reduced from 4mg to 3.5 now into my 4th week am now getting a muzzy head and a c...

Rose1bud

•6 years ago

15 Replies

Side effects of diuretics Part 2

Thank you for the helpful answers to my query of yesterday. I went to see the GP this morning. She said she'd never heard of extreme fatigue being a side...

Thank you for the helpful answers to my query of yesterday. I went to see the GP...

Marijo1951

•6 years ago

16 Replies

Is it normal

Good morning everyone. Woke up with really bad pain all over especially in the back of my head. Same feeling as the first time on front of the head. Tender to...

Good morning everyone. Woke up with really bad pain all over especially in the ...

Hali12

•6 years ago

10 Replies

Who the Hell is Ali ibn Isa?

He may be the guy who documented the very first written account of a TAB (Temporal Artery Biopsy) procedure; sometime between 940 to 1010 A.D!!! Go Ali!...

He may be the guy who documented the very first written account of a TAB (Tempor...

Hidden

•6 years ago

20 Replies

I give up!!!!!!! discouraged

sooooooooooo----Prednisone, GCA and Actemra all thave dizziness and lightheaded, as a side effect, then throw in PMR and fatigue, no wonder I feel like awful...

sooooooooooo----Prednisone, GCA and Actemra all thave dizziness and lightheaded...

pwalker801

•6 years ago

24 Replies

Beware of the Water

Who knew Swimming wasn’t just like riding a bike again after a suitable hiatus? Then again maybe the bike wouldn’t go so well either. I’m aware I must take...

Who knew Swimming wasn’t just like riding a bike again after a suitable hiatus?...

ConventCassie

•6 years ago

49 Replies

Feeling worried contd..

I forgot to add that the neck pains are mainly coming on late afternoon/early evening.

I forgot to add that the neck pains are mainly coming on late afternoon/early ev...

Cyclegirl54

•6 years ago

17 Replies

Feeling worried

I’ve been on 15 mg of Pred for 7 weeks after having upped it from my start dose of 10 mg for 3 weeks. The 10 mg was too low and gp agreed to increase, thank...

I’ve been on 15 mg of Pred for 7 weeks after having upped it from my start dose ...

Cyclegirl54

•6 years ago

19 Replies

Swollen Knees

I’ve been reading questions and comments for a few weeks now, but this is my first post. I can’t seem to get rid of my swollen, stiff knees. My PMR has been...

I’ve been reading questions and comments for a few weeks now, but this is my fir...

Kshelsmi

•6 years ago

11 Replies

leflunomide

Anyone have experience with leflunomide? Either positive or otherwise? Would like to hear about it.

Anyone have experience with leflunomide? Either positive or otherwise? Would li...

gtate1914

•6 years ago

24 Replies

Two year anniversary

Well it’s two years this week, I remember as I was going to the Chelsea flower show with my sister on the day after my diagnosis. And the Dr gave me these...

Well it’s two years this week, I remember as I was going to the Chelsea flower s...

9lives

•6 years ago

7 Replies

This afternoon, the bees

Can’t remember who posted a photo like this last week but here’s another. There are lots of tiny bell like flowers on the underside which I thought were too...

Can’t remember who posted a photo like this last week but here’s another. There ...

CT-5012

•6 years ago

26 Replies

Side effects of diuretics

One of the main side effects I experience from Prednisolone is swollen feet and ankles. Last week during the very hot weather I couldn't even get on the old...

One of the main side effects I experience from Prednisolone is swollen feet and ...

Marijo1951

•6 years ago

20 Replies

ITS A GOOD DAY

Sleep right through last night and woke with very little pain or discomfort today :). No idea why and no changes to my daily routine. Long May It Last!.

Sleep right through last night and woke with very little pain or discomfort toda...

Ta1ch1

•6 years ago

4 Replies

flare

my friend has PMR, so I am visiting and sharing advice with him, best we can do at the moment. He asked me what constitutes a flare. I know that is to be...

my friend has PMR, so I am visiting and sharing advice with him, best we can do ...

kate24

•6 years ago

12 Replies

Hip pain - is it PMR?

Woke up 4.30am with very painful and sore right hip, not had this before. If it's PMR would it be bilateral pain? I have OA but not in the hip!

Woke up 4.30am with very painful and sore right hip, not had this before. If it...

Telian

•6 years ago

24 Replies

So Much to Learn...

I've watched this Cleveland Clinic video 3 times now... it's hard work (for me!) but after the 3rd time (and looking up a lot of the medical terms) some of...

I've watched this Cleveland Clinic video 3 times now... it's hard work (for me!)...

Hidden

•6 years ago

27 Replies

Rock on!

Well last Thursday I really put my slow recovery to the test. My son had bought my hubby and me tickets to see the Rolling Stones. Beyond excited, I got ready...

Well last Thursday I really put my slow recovery to the test. My son had bought ...

GerriMc

•6 years ago

13 Replies

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

1 Reply

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

2 Replies

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

1 Reply

What's on this week!

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden Centre. http://www.pmrgca.co.uk/group-pages/bedfordshire/ Coventry, Fri 25 May,...

Groups and meet-ups this week: Bedfordshire, Thurs 24 May, 10.30 Frosts Garden C...

Polywotsit

PMRGCAuk team member•6 years ago

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

Fool me once…

Taking the plunge

Awake in the small hours

Blood work

High Gamma GT Blood Result. MMmm!

PMR for almost two years

Salt and morning headaches

Update on 'where do I go next'

muzzy head and creepy feeling

Side effects of diuretics Part 2

Is it normal

Who the Hell is Ali ibn Isa?

I give up!!!!!!! discouraged

Beware of the Water

Feeling worried contd..

Feeling worried

Swollen Knees

leflunomide

Two year anniversary

This afternoon, the bees

Side effects of diuretics

ITS A GOOD DAY

flare

Hip pain - is it PMR?

So Much to Learn...

Rock on!

What's on this week!

What's on this week!

What's on this week!

What's on this week!

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