Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,944 posts

All posts for May 2018

Nutrition and medications

I have slowly been learning the effects of prednisone on the body and its nutritional status. How many of us were told at the beginning of the PMR/pred...

I have slowly been learning the effects of prednisone on the body and its nutrit...

HeronNS

•6 years ago

180 Replies

Guess Who's Coming to Dinner? ... and Breakfast and Lunch and Dinner and...

Yes, it's true! Max is coming to visit Grandma for 4 whole days! His parents are coming too, but that's inconsequential! I have not seen him (in person)...

Yes, it's true! Max is coming to visit Grandma for 4 whole days! His parents ar...

Hidden

•6 years ago

61 Replies

Recent Diagnosis of GCA

Hi, I have recently been diagnosed with GCA and am currently taking prednisolone. Started at 12 a day for two weeks, then 10, am now taking 8. Does anyone else...

Hi, I have recently been diagnosed with GCA and am currently taking prednisolone...

JanboC

•6 years ago

30 Replies

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So confusing continued

Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine...

Long talk with GP today and getting a better understanding of his reasoning I ha...

Angiejnz

•6 years ago

17 Replies

So confusing

I am an expat living in NZ with no support hence coming 'home' for help. I have been diagnosed with pmr on the basis of imaging and cry results. I was put on...

I am an expat living in NZ with no support hence coming 'home' for help. I have ...

Angiejnz

•6 years ago

27 Replies

PMR, GCA, Fibromyalgia

Hi...Is there anyone who has these illnesses? Can you tell me how you cope or your experiences? Struggle with extreme fatigue. I am at the 2 year mark. I...

Hi...Is there anyone who has these illnesses? Can you tell me how you cope or yo...

Dream21

•6 years ago

2 Replies

Marigold

I was on 40 mg pred and reduced it to 35 mg on day 12 have now got crippling lower back pain should I go back to 40 mg?

I was on 40 mg pred and reduced it to 35 mg on day 12 have now got crippling low...

Berylholley

•6 years ago

18 Replies

There and back a hubbies tale!

Well the other day I decided that I'd take SWMBO to go and see our daughter in uni. Me being me I didn't say anything to her. My son was primed to look after...

Well the other day I decided that I'd take SWMBO to go and see our daughter in u...

JulianJ

•6 years ago

6 Replies

With PMR Activity Is A Must.

Working out, as in outside. After being stricken w/ PMR last July I realized some of the things I do out in the yard that are more stressful we’re pretty much...

Working out, as in outside. After being stricken w/ PMR last July I realized som...

LarryLeek

•6 years ago

12 Replies

Bloods fine but I’m not.

See previous post - bloods came back fine so GP stopped my atorvastatin to see if that would help. Nope , pains worse and now as well as shoulders, neck and...

See previous post - bloods came back fine so GP stopped my atorvastatin to see i...

Pamela60

•6 years ago

7 Replies

Still Working on reducing Working!! Fantasy!

Second time I've mowed the lawn this week! As you see from the stripes I'm beginning to waver! It's still there! The madness of dealing with this illness. I...

Second time I've mowed the lawn this week! As you see from the stripes I'm begi...

Hidden

•6 years ago

17 Replies

The Tiger or the tiger

I'm feeling quite down today due to my suspicion that I'm experiencing yet another flare on my way down the Prednisolone ladder. As result I was reflecting on...

I'm feeling quite down today due to my suspicion that I'm experiencing yet anoth...

MichaelW

•6 years ago

35 Replies

The difference

The difference. Can anyone tell me the difference between PMR and Fibromyalgia please. I was diagnosed with PMR Oct. 17. I am also type1 diabetic and under...

The difference. Can anyone tell me the difference between PMR and Fibromyalgia ...

Kathy21

•6 years ago

21 Replies

Anne new member,

Hello Anne, I have had all that you are having now, but am quite fit now 3 years later, start with change of diet google all herbs that reduce inflammation...

Hello Anne, I have had all that you are having now, but am quite fit now 3 year...

ritter

•6 years ago

3 Replies

New pains!

Hello, oh wise ones! I've been trying, yet again, to reduce from 7mg to 6, using DSNS (DL's taper) and a reduction of 0.5. (Diagnosed and started on Pred at...

Hello, oh wise ones! I've been trying, yet again, to reduce from 7mg to 6, using...

Mrsd12f

•6 years ago

9 Replies

Heart Attack!

Hi. Haven’t been on much recently, but lots been happening. My BP has been playing up for around four to five weeks and I hadn’t been feeling quite “right”....

Hi. Haven’t been on much recently, but lots been happening. My BP has been play...

Hev1964

•6 years ago

26 Replies

New to Forum

My name is Anne...I was diagnosed 2 years ago with polymyalgia rheumatica, 5 months later with temporal arteritis, and then later with fibromyalgia. The...

My name is Anne...I was diagnosed 2 years ago with polymyalgia rheumatica, 5 mon...

Hidden

•6 years ago

11 Replies

Thank you

I want thank you all for your kind words and thoughts and prayers. Greatly appreciated. All test came back normal. But they were still clueless. So I left the...

I want thank you all for your kind words and thoughts and prayers. Greatly appre...

Hali12

•6 years ago

24 Replies

Heartburn/reflux, coated pred?

Is this from the pred? I’m wondering about the timing of this symptom. I’m currently on 25 mg. Tapered down from 40, been on the 25 for almost a...

Is this from the pred? I’m wondering about the timing of this symptom. ...

Mstiles

•6 years ago

23 Replies

Could be the Pred. Head Anthem! Funny I Hope!

"Senior Moments". by Golf Brookes. Just Google & turn the sound up! KRO.

Hidden

•6 years ago

8 Replies

I was feeling so good. Then... WHAM!

I was struck with PMR last September. Couldn't even turn over in bed. My theory is that PMR was triggered by an inflamed insect bite that became a blister on...

I was struck with PMR last September. Couldn't even turn over in bed. My theory ...

Purple-Owl

•6 years ago

26 Replies

Meloxicam to Help with Tapering

when my wife's prednisone taper from 12mg to 11mg became too painful after 2+ weeks, she went back to 12mg. In her next rheumatologist appointment, she was...

when my wife's prednisone taper from 12mg to 11mg became too painful after 2+ we...

navejasjoe

•6 years ago

30 Replies

Feeling breathless

I had a chest X-ray and a stress test not very long ago so I am feeling like this is from tapering. I guess I just need some reassurance. I tapered from 7mg to...

I had a chest X-ray and a stress test not very long ago so I am feeling like thi...

Lanakay

•6 years ago

27 Replies

The site seems to be playing up again.

I haven’t been able to open posts and reply to people. I will try again tomorrow. Night night. X

I haven’t been able to open posts and reply to people. I will try again tomorrow...

SheffieldJane

•6 years ago

8 Replies

Lumber puncture

So today a neurologist came in at 11:00. Did a lumber puncture right in the room. Now it’s a waiting game. Which I hate. Gave me gababapentin. For headache. I...

So today a neurologist came in at 11:00. Did a lumber puncture right in the roo...

Hali12

•6 years ago

19 Replies

Low carb food options

Just been checking out the BBC Good food app for low carb meals- some very nice ideas available. Breakfast tomorrow is going to be Mexican egg roll!

Just been checking out the BBC Good food app for low carb meals- some very nice ...

Cyclegirl54

•6 years ago

18 Replies

Methotrexate and pred reduction

I have just reduced pred to 3 mg. I had a clinic appointment this week which I had to reschedule owing to a family crisis and have been given an appointment...

I have just reduced pred to 3 mg. I had a clinic appointment this week which I ...

PenelopeVita-Finzi

•6 years ago

14 Replies

PMRGCAuk Charity Week June 2018

Dear all Can I please ask for your support for my 2018 challenge, which is to ski 50 runs at the dry ski slope Snowtrax near Christchurch in Dorset. Any...

Dear all Can I please ask for your support for my 2018 challenge, which is to sk...

LizMitchell

•6 years ago

8 Replies

SURGERY

I need to have inguimal hernia surgery. I’m currently on 4.5 mg of Prednisone. I don’t know whether to increase the Pred before or after the surgery and how...

I need to have inguimal hernia surgery. I’m currently on 4.5 mg of Prednisone. I...

ConventCassie

•6 years ago

7 Replies

Blue card update

Just looked at my steroid blue card which I carry in my wallet and realised I haven’t updated since April. Due to a flare there was only a 1mg difference but...

Just looked at my steroid blue card which I carry in my wallet and realised I ha...

MichaelW

•6 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

Nutrition and medications

Guess Who's Coming to Dinner? ... and Breakfast and Lunch and Dinner and...

Recent Diagnosis of GCA

So confusing continued

So confusing

PMR, GCA, Fibromyalgia

Marigold

There and back a hubbies tale!

With PMR Activity Is A Must.

Bloods fine but I’m not.

Still Working on reducing Working!! Fantasy!

The Tiger or the tiger

The difference

Anne new member,

New pains!

Heart Attack!

New to Forum

Thank you

Heartburn/reflux, coated pred?

Could be the Pred. Head Anthem! Funny I Hope!

I was feeling so good. Then... WHAM!

Meloxicam to Help with Tapering

Feeling breathless

The site seems to be playing up again.

Lumber puncture

Low carb food options

Methotrexate and pred reduction

PMRGCAuk Charity Week June 2018

SURGERY

Blue card update

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