Fatigue these last few days: Well I know I've been... - PMRGCAuk

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Fatigue these last few days

JulianJ profile image
35 Replies

Well I know I've been tired when getting home from work, but the last couple of days!

Driving home from work yesterday and again today I felt really tired.

Getting ready for work today I was still tired, had, what was for me, a good night.

Well, no need to get up early for a few days :)

Happy weekend everybody. have a good one.

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JulianJ profile image
JulianJ
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35 Replies
SheffieldJane profile image
SheffieldJane

I think it is the thought of being able to rest soon that does you in. Have a really restful, slothful, lazy, weekend. The jobs will wait.

JulianJ profile image
JulianJ in reply to SheffieldJane

Saturday will be a sleep day, Sunday have to do something for a few hours.

Monday is a long drive, just have to get SWMBO to drive home :)

SheffieldJane profile image
SheffieldJane in reply to JulianJ

SWMBO ? 🤔

JulianJ profile image
JulianJ in reply to SheffieldJane

She Who Must Be Obeyed

ConventCassie profile image
ConventCassie in reply to JulianJ

😉 Must be a Mortimer fan!

in reply to JulianJ

🤣🤣🤣🤣🤣🤣

Telian profile image
Telian in reply to JulianJ

Are you mates with my husband?....ha ha

SnazzyD profile image
SnazzyD

Sounds like your adrenals are a bit flat. My energy levels have been pants since getting below 8mg. Some days are rubbish, then I’ll rally, then it’s back to walking through treacle. No disease symptoms however.

JulianJ profile image
JulianJ in reply to SnazzyD

I think your right, getting closer to more days on 6mg than on 7mg.

I'm sure I'll get through it or go back to 7mg!

SnazzyD profile image
SnazzyD in reply to JulianJ

I was worse on 7. I felt like I didn’t have enough to deal with the day (of not very much) but no extra juice coming from the adrenals. It felt better on 6, but some days nothing works.

JulianJ profile image
JulianJ in reply to SnazzyD

I'm right in the middle of my taper, with luck I'll be less tired in a few days.

At least I know to expect fatigue, this morning was a hard one, could so easily have stayed home from work!

GOOD_GRIEF profile image
GOOD_GRIEF in reply to JulianJ

Maybe 6.5 for a while?

JulianJ profile image
JulianJ in reply to GOOD_GRIEF

Not going to be easy, I'm on coated pred so can't cut them.

I will be getting 2.5's when I next talk to the doctor and I'll be reducing by .5 from now on.

Extra couple of hours in bed this morning an no doubt a few hours sleep during the day and I'm sure I'll be a lot better. If not it will be a holding pattern until I can get the 2.5's and continue at 6.5.

Choices choices choices, so many but they all involve pred ;)

Marilyn1959 profile image
Marilyn1959 in reply to JulianJ

Hi Julian. I asked doc to prescribe me both coated and uncoated 1 mg tablets, so that if I needed 0.5 mg reduction I could cut them. Doc obliged so that I have the option. Might be worth considering?

PMRpro profile image
PMRproAmbassador in reply to Marilyn1959

Down to 2mg you can use 2.5s and 1s to make up a dose of enteric coated with 0.5mg drops.

JulianJ profile image
JulianJ in reply to PMRpro

That's my plan.

Then the steps below 2 may have to be back to ordinary pred, but I'm not thinking of that just yet.

Lin6075 profile image
Lin6075 in reply to Marilyn1959

Hope I don't sound too dumb, but what difference does it make? Which would I use to cut in 1/2?

PMRpro profile image
PMRproAmbassador in reply to Lin6075

You must not cut entric coated tablets - it takes the entire point of the coating away. That why it is better to mix 2.5mg enteric coated plus whole mg denomination tablets - some people would find even the small amount of a 1/2mg cut plain pred tablet could irritate their stomach. It would also enter the bloodstream very quickly while the enteric coated part of the dose was still in the gastrointestinal tract so might get a bit "lost".

Telian profile image
Telian in reply to SnazzyD

They say 7.5 is a sticking point - didn't think it meant literally! ha ha

Perhaps you too need new coil..

Have a good weekend...lots of driving for me so next week will be the charm. 🌻

JulianJ profile image
JulianJ in reply to

Very good, does feel like I need a bigger spark :)

Allsgrandso profile image
Allsgrandso in reply to JulianJ

Hi Julian, I was tapering from 7 to 6 and was almost a month in and omg fatigue hit like I have never felt before! I was driving home from work, sitting at traffic lights and desperately wanted to rest my head on the steering wheel until lights changed 🙈 I didn’t though lol it actually lasted a couple of days and back up to 7mg I went.

That’s where I am now a week later but still don’t feel as good as I was before the fatigue.

Hope you get through it and come out the other side, good luck x

Bummer... hopefull, this too shall pass.

JulianJ profile image
JulianJ in reply to

I'm sure it will Melissa, but I can always hold or go backup, time is one thing I have plenty of ;)

Our chief weapon is knowing our bodies...knowing our bodies and listening to them...listening to them and knowing our bodies.... Our two weapons are knowing our bodies and listening to them...and telling doctors what to do.... Our *three* weapons are knowing our bodies and listening to them...and telling doctors what to do...and an almost fanatical devotion to this forum.... Our *four*...no... *Amongst* our weapons.... Amongst our weaponry...are such elements as knowing our bodies, listening to them.... I'll come in again.

in reply to JulianJ

No truer words.

Lee1945 profile image
Lee1945

I hope your body will benefit from the extra rest - this illness is so restricting

JulianJ profile image
JulianJ in reply to Lee1945

Saturdays are big rest days for me, already slept about 3 hours and may well get another our or two in ;)

bunnymom profile image
bunnymom

I find the mental challenges at work to be the most draining. I am at 6 and staying for two weeks as I am really blah. Two more days and I am retired. Cutting my work hours has really helped me. I am very blessed in that aspect.

sewinggirl profile image
sewinggirl in reply to bunnymom

Yes, the mental stress from work doesn't help. I wish I could retire. Actually, I wish this would go away, so that I'm not always wishing I could retire. I'm happy you're able to cut your hours.

bunnymom profile image
bunnymom in reply to sewinggirl

Thanks I get what you are saying. After two plus years I couldn't keep on.

Ladybird25 profile image
Ladybird25 in reply to sewinggirl

I agree. I was off sick with this for 10 months, but have now returned to work on four days a week. I don’t want to retire but I’m not sure I can keep going as I am. It’s hard going. I’d rather this just went away, but in the meantime I’ve just got to accept it is what it is and do a better job of pacing. I’m still too young to retire.

JulianJ profile image
JulianJ in reply to bunnymom

I've had a couple of days that required a lot of thought not just doing stuff, that is draining.

I can't cut my hours and either need a good payoff or a few more years before I can think about retiring, but as every day passes the end of pred or work gets closer.

bunnymom profile image
bunnymom

Yes each day we are a step closer to being well 😃

Ladybird25 profile image
Ladybird25 in reply to bunnymom

Great way of looking at it!

bunnymom profile image
bunnymom in reply to Ladybird25

Easier for me to say as I am in the home stretch I believe. Couldn't have said that two years ago sorry to say.

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