Sounds like your adrenals are a bit flat. My energy levels have been pants since getting below 8mg. Some days are rubbish, then I’ll rally, then it’s back to walking through treacle. No disease symptoms however.
I was worse on 7. I felt like I didn’t have enough to deal with the day (of not very much) but no extra juice coming from the adrenals. It felt better on 6, but some days nothing works.
Not going to be easy, I'm on coated pred so can't cut them.
I will be getting 2.5's when I next talk to the doctor and I'll be reducing by .5 from now on.
Extra couple of hours in bed this morning an no doubt a few hours sleep during the day and I'm sure I'll be a lot better. If not it will be a holding pattern until I can get the 2.5's and continue at 6.5.
Choices choices choices, so many but they all involve pred
Hi Julian. I asked doc to prescribe me both coated and uncoated 1 mg tablets, so that if I needed 0.5 mg reduction I could cut them. Doc obliged so that I have the option. Might be worth considering?
You must not cut entric coated tablets - it takes the entire point of the coating away. That why it is better to mix 2.5mg enteric coated plus whole mg denomination tablets - some people would find even the small amount of a 1/2mg cut plain pred tablet could irritate their stomach. It would also enter the bloodstream very quickly while the enteric coated part of the dose was still in the gastrointestinal tract so might get a bit "lost".
Hi Julian, I was tapering from 7 to 6 and was almost a month in and omg fatigue hit like I have never felt before! I was driving home from work, sitting at traffic lights and desperately wanted to rest my head on the steering wheel until lights changed 🙈 I didn’t though lol it actually lasted a couple of days and back up to 7mg I went.
That’s where I am now a week later but still don’t feel as good as I was before the fatigue.
Hope you get through it and come out the other side, good luck x
I'm sure it will Melissa, but I can always hold or go backup, time is one thing I have plenty of
Our chief weapon is knowing our bodies...knowing our bodies and listening to them...listening to them and knowing our bodies.... Our two weapons are knowing our bodies and listening to them...and telling doctors what to do.... Our *three* weapons are knowing our bodies and listening to them...and telling doctors what to do...and an almost fanatical devotion to this forum.... Our *four*...no... *Amongst* our weapons.... Amongst our weaponry...are such elements as knowing our bodies, listening to them.... I'll come in again.
I find the mental challenges at work to be the most draining. I am at 6 and staying for two weeks as I am really blah. Two more days and I am retired. Cutting my work hours has really helped me. I am very blessed in that aspect.
Yes, the mental stress from work doesn't help. I wish I could retire. Actually, I wish this would go away, so that I'm not always wishing I could retire. I'm happy you're able to cut your hours.
I agree. I was off sick with this for 10 months, but have now returned to work on four days a week. I don’t want to retire but I’m not sure I can keep going as I am. It’s hard going. I’d rather this just went away, but in the meantime I’ve just got to accept it is what it is and do a better job of pacing. I’m still too young to retire.
I've had a couple of days that required a lot of thought not just doing stuff, that is draining.
I can't cut my hours and either need a good payoff or a few more years before I can think about retiring, but as every day passes the end of pred or work gets closer.
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