Saw him on Friday and he doesn't think I've got GCA or PMR and wants me to come off the Pred within 6 months, then see him again!! I had blood and urine tests while at hospital, and a chest X ray and now waiting to hear from the doctor for an appointment.
I've reduced my Pred over the weekend from 30mg to 25mg, which I was on before, but got bad headache after a few days on 25mg, so went back up to 30mg.
I would like to ask if it is realistic to be able to get off Pred in 6 months, and the doctor is apparently going to advise me on how to reduce the dosage? Also, I hope that as I do, the awful sweats, puffy face and concrete legs will disappear, as I suspect that they are all to do with the Pred.
So, now I'm back to the drawing board, not knowing what I've got. I hope I will be able to stay on this forum and will be interested to see what the doc comes up with!!
Any advice on reducing Pred, and getting my energy back gratefully received!