Having joined the PMR party, with an unexpected invite in January 2017, I was eventually diagnosed in March. My CRP was 176. I was prescribed Pred, which was quite new to me. I started at 30mg and I'm now down to 7mg and tapering 1mg per month from now on.
I eventually got to see a Rheumy consultant at my local hospital in December '17, (he left in January '18). I then saw the registrar , who sent me for several scans, ultra sound, MRI Contrast, Dexa. and several blood tests.
The only concern I had was that my 2nd and 3rd fingers on both hands were slightly stiff in the mornings but it gradually wore off by mid morning.
I saw the Registrar again, last week. He told me that the MRI contrast scan had shown up inflammation in my wrists and fingers on both hands, more so on my right hand.
He said I needed to change my medication, start tapering the Pred and start taking Sulphasaline, 500mgs (increasing the dosage over the next 4 weeks).
I started taking the Sulpha last Saturday morning, and since then I've had a constant headache and my hands have stiffened up, they are painful and very weak, my toes have started stiffening as well.
Has anyone else had the pleasure of this behaviour? Re-diagnosed ? Using this Sulpha drug? And the side effects?
I've tried contacting the Rheumy Nurses at the local hospital ( as advised by the Registrar) but they seem to be permanently closed!!
Sorry its such a pathetic tale.