So after my post a couple of months ago about my GP wanting me off the pred - getting her to let me keep going on a low dose but this was to be the end of it - (PMR disgnosed in Apr/May 2016) even though I was in a bad state. I went last night to get a prescription - told her I couldn't get right down and actually had to increase a bit to 5 for a while - she has reluctantly agreed to allow me (at my suggestion!!) to reduce by 0.5mg to see if that will get me off it. I told her how bad I get, physically even, when the dose is low - the nauseating fatigue so bad I can barely string a sentance together and the pain. She had no interest whatsoever in this and certainly no suggestion of getting my adrenals checked. Her reluctance to let me keep going on the pred for a while is awful as she isn't even listening to me when I say that this PMR can last much longer than 12/18 months. She said I could just be in the "rare" group that it will last for 18 months. (My rheumy had taken me off the pred at circa 12 months with absolute disastrous results). This post is really just to show how these people are so ill informed and will not listen to the person who is going through the pain. I came out so frustrated that she was basically ignoring everything I was saying. Her attitude was that she is doing me a big favour. Not like we want to be on this stuff for goodness sake. Sorry for the rant - its just so dishertening to have to keep battling all the time.