I wrote a few months ago and received very helpful advice from you, thanks.
I had GCA diagnosed in September. I had my first review from the rheumatologist this week. I live in Oxford and he is very good. He is mentioned in the PMR and GCA survival guide, he is called Professor Luqmani.
I was concerned about taking alendronate (isn't everyone?). I have had a history of gastroesophageal reflux for about 15 years and used to take ranitidine and lansoprazole but had to stop as they caused colitis in 2015 so I had to take steroids.I still have gastric symptoms and I find alendronate gives me stomach pain and diarrhoea. He suggested changing to risedronate but this is also a bisphosphonate and seems to have the same side affects. Has anyone taken any other medication to prevent osteoporosis? I read about prolia which I think is new, has anyone any views on this? He said that anyone taking steroids, especially high doses, should take something.
He did not mention having a bone density screen and I felt too awkward to ask?! Do you think that it is a good idea as I could ask my GP.
Sorry to be so pathetic and any advice will be gratefully received.