Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2018

Hi I have just joined the network. Was diagnosed with P, 18 months ago aged 56yrs. Be great to get advice of fellow members

My mum who is 89 has had Polymyalgia for 10 yrs and never been able to get lower than 5 mg. Every time she's tried these last 10 yrs she becomes exceedingly...

My mum who is 89 has had Polymyalgia for 10 yrs and never been able to get lower...

JudithWarrior

•6 years ago

25 Replies

Tapering steroids

Hi I had a dexa scan a couple of weeks ago. The doctor call this morning saying I'm osteoporosis of the spine, -3 on the T score. The doctor said I need to...

Hi I had a dexa scan a couple of weeks ago. The doctor call this morning saying ...

Flrchrs

•6 years ago

23 Replies

Calcium intake

Good morning all I am about to stop taking alendronate after weighing all the pros and cons. The general advice seems to be if a bone scan shows normal...

Good morning all I am about to stop taking alendronate after weighing all the p...

Jud666

•6 years ago

18 Replies

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PMR perhaps

Hello every one I have suffers very badly over the last few weeks, i guess like all of you so will not go into more detail. I have just returned from the...

Hello every one I have suffers very badly over the last few weeks, i guess lik...

jimpayne2000

•6 years ago

41 Replies

tapering

Really trying to get to 12mg and 10 before summer but I don't know...as soon as I get to 12 1/2 things get crappy...have tried 12 the last two days but it not...

Really trying to get to 12mg and 10 before summer but I don't know...as soon as ...

daworm

•6 years ago

18 Replies

Neck, ears, jaw and ...

Hi friends, Suffering from general head malaise in the temples, above eyebrows and back neck. Then started to have ear aches. When not aching my ears have a...

Hi friends, Suffering from general head malaise in the temples, above eyebrows a...

granny-b

•6 years ago

8 Replies

Re: Taper

When one tapers...how asymtomatic are we supposed to be? Are we supposed to feel 100% or like 80% well?

When one tapers...how asymtomatic are we supposed to be? Are we supposed to fee...

ConventCassie

•6 years ago

46 Replies

My last post.

Forgot to say these bunnies are for my grandchildren. I didn't realise at the time that the left hand one is steroid free but the one on the right has wonky...

Forgot to say these bunnies are for my grandchildren. I didn't realise at the t...

morrison

•6 years ago

1 Reply

Brighter nights.

Isn't it so nice that it is 6.50pm and it is daylight 😁😁😁. Roll on the better weather. Certainly makes you look on the brighter side of life. Hope you all...

Isn't it so nice that it is 6.50pm and it is daylight 😁😁😁. Roll on the bette...

morrison

•6 years ago

12 Replies

Shingrix

I took the lead and had the first shot of Shingrix. Shingrix is the new shingles virus vaccine that is safe for people with immune compromised systems and is...

I took the lead and had the first shot of Shingrix. Shingrix is the new shingles...

northwesterner

•6 years ago

7 Replies

Swollen abdomen

Is it normal to have a swollen abdomen? I am on 15mg of pred now, can the pred be the cause of this? Very uncomfortable.

Is it normal to have a swollen abdomen? I am on 15mg of pred now, can the pred b...

Horizon12

•6 years ago

36 Replies

Check Prednisalone sell by dates! 🐿

Just a heads up. I have a few accumulated boxes of Prednisalone that I have been keeping for odd taper amounts like 2.5 mgs. I have just noticed that they all...

Just a heads up. I have a few accumulated boxes of Prednisalone that I have been...

SheffieldJane

•6 years ago

11 Replies

Things are looking up

I went to the dr this week. My numbers are in the normal range. Happy me . I didn't even mention Rochester and neither did he. I am now at 20mg. I know it...

I went to the dr this week. My numbers are in the normal range. Happy me . I did...

mngirl

•6 years ago

10 Replies

PMR and iron levels

Hello everyone. I was diagnosed with PMR three years ago after waking up one morning hardly able to get out of bed because of stiffness and pain all over....

Hello everyone. I was diagnosed with PMR three years ago after waking up one mor...

PMRSUE

•6 years ago

14 Replies

Pleased as Punch!

I've been reluctant to mention it... because obviously I didn't want to jinx it, but I have actually felt "not so bad," for the past 4-5 days. (Shhhh, I...

I've been reluctant to mention it... because obviously I didn't want to jinx it,...

Hidden

•6 years ago

55 Replies

Tapering, Lab Results and the Flu

Given that my wife's first rheumy totally botched up the tapering process last year, her new rheumy is being very careful this time. Her first step was to go...

Given that my wife's first rheumy totally botched up the tapering process last y...

navejasjoe

•6 years ago

12 Replies

The Lighter Side: That (silly) Book Website - Thank You! And.. about my new 'Badge' here.. ;-)

Dear All Just a very quick note to thank those of You Lot who have kindly ordered my book - 'Write Me Funny...' - via the newly launched website and Paypal...

Dear All Just a very quick note to thank those of You Lot who have kindly ordere...

markbenjamin57

•6 years ago

26 Replies

Thank you

Thank you all for your best wishes, much appreciated. bowler.

bowler

•6 years ago

1 Reply

Diet changes and CBD oil

Has anyone changed their diet, like taking out foods that are inflammatory, like gluten and dairy? Also does anyone use CBD oil? Thanks!

Has anyone changed their diet, like taking out foods that are inflammatory, like...

CycleGirlColumbus

•6 years ago

31 Replies

Update

Hello all Just thought I'd update those of you that are interested. Cut a story, I will be having a pre op on the 4th May prior to having a double coronary...

Hello all Just thought I'd update those of you that are interested. Cut a stor...

bowler

•6 years ago

19 Replies

Help pleassssssssse

I seemed to have classic PMR symptoms, chronic pain in neck, very sore tired muscles in shoulders, pain in lower back, my thigh bones ached so much it hurt to...

I seemed to have classic PMR symptoms, chronic pain in neck, very sore tired mus...

Mike1964

•6 years ago

89 Replies

I HAVE MISSED YOU

Hi everyone ... Had internet problems and wasn't receiving daily emails, have missed reading your posts so much ...

Hi everyone ... Had internet problems and wasn't receiving daily emails, have mi...

Polylinc

•6 years ago

16 Replies

Taking Pantethine

Does anyone take Pantethine to support the adrenal glands as you reduce? I read somewhere it's a good supplement, but what's good for one isn't for another....

Does anyone take Pantethine to support the adrenal glands as you reduce? I read ...

Suffolklady

•6 years ago

16 Replies

Polymyalgia and methotrexate

Hi Does anyone suffer from polymyalgia and taking methotrexate? Are you suffering from side effects? My husband does and is. Had to come off it for a while...

Hi Does anyone suffer from polymyalgia and taking methotrexate? Are you sufferi...

Hidden

•6 years ago

31 Replies

Meeting

Is there anyone in Dunedin New Zealand who wants to meet for a chat and coffee maybe = would be good to find out others experiences with Health system here +...

Is there anyone in Dunedin New Zealand who wants to meet for a chat and coffee m...

Janicep

•6 years ago

7 Replies

The Lighter Side: THUNDERBIRDS are ‘GO’! At Last, the ‘Write Me Funny…’ book website goes ‘Live’ ;-)

Greetings Polymylingers and Pred Playmates everywhere. I hope you're well (or as well as can be), and bearing-up after the Icy Winter weather. :-)  I know....

Greetings Polymylingers and Pred Playmates everywhere. I hope you're well (or as...

markbenjamin57

•6 years ago

24 Replies

Heat or Ice or Both?

I just tapered and my shoulders are a bit sore. It usually lasts a 3-4 days. Both ice and heat feel good but which is really better?

I just tapered and my shoulders are a bit sore. It usually lasts a 3-4 days. Bo...

Marie1479

•6 years ago

22 Replies

“Un mal pour un bien”

Those that can't do... rant! https://rantingsofamadwomanblog.com/2018/03/23/un-mal-pour-un-bien/ Warning: If you are easily offended, you may find some of...

Those that can't do... rant! https://rantingsofamadwomanblog.com/2018/03/23/un-...

Hidden

•6 years ago

42 Replies

All test neg.

How did they know you have GCA? All my tests have been neg or normal. Bloodwork, bio and MRI. But they still say I have it.

How did they know you have GCA? All my tests have been neg or normal. Bloodwor...

viamonv

•6 years ago

10 Replies

Turning to you once again! Fatigue plus

Well the euphoria has slipped a bit. I’m still so happy about new doctor but......I don’t know if it’s the Prednisone or PMR or what is happening today. I...

Well the euphoria has slipped a bit. I’m still so happy about new doctor but......

vnett

•6 years ago

67 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

Hi I have just joined the network. Was diagnosed with P, 18 months ago aged 56yrs. Be great to get advice of fellow members

Tapering steroids

Calcium intake

PMR perhaps

tapering

Neck, ears, jaw and ...

Re: Taper

My last post.

Brighter nights.

Shingrix

Swollen abdomen

Check Prednisalone sell by dates! 🐿

Things are looking up

PMR and iron levels

Pleased as Punch!

Tapering, Lab Results and the Flu

The Lighter Side: That (silly) Book Website - Thank You! And.. about my new 'Badge' here.. ;-)

Thank you

Diet changes and CBD oil

Update

Help pleassssssssse

I HAVE MISSED YOU

Taking Pantethine

Polymyalgia and methotrexate

Meeting

The Lighter Side: THUNDERBIRDS are ‘GO’! At Last, the ‘Write Me Funny…’ book website goes ‘Live’ ;-)

Heat or Ice or Both?

“Un mal pour un bien”

All test neg.

Turning to you once again! Fatigue plus

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