Things were going so well with the Actemra. A headache one day a week I was handling.
Why have things gone so wrong?????
I have been back on preds for the last week. No Actemra until next week and I come off preds again. My body was itching all over and I came out in a rash. That part is over now, thank goodness.
I attended the eye specialist yesterday and did get some good news from him. The pressure in my eyes was down due to less preds.
Is there anybody in Australia who would be interested in trying to get Actemra on PBS? I have been in contact with Roche, but there is nothing in the pipeline yet.