Painful thighs update

[Zhenya]

Thank you ladies for your advice last week on my painful thighs. I upped the pred from 5mg to 10mg five days ago. There has been minimal improvement and I don’t really like being on the double dose now. What do you think I should do please? Go straight back down to 5mg or taper down 1mg at a time daily, or 2.5 mg?

As there has been hardly any improvement, I guess the pain must be something other than PMR (I am wawaiting MRI appointment), although there are two indicators that suggest it is...it is worse in the mornings and gradually improves as the day goes on, and it is bilateral.

My other thought is that 10mg is not enough and, God forbid, I should take 15mg as I did 3.5 years ago.

Any advice you can give me will be gratefully received as I feel in rather a quandary.

Thank you

Zhenya

[suzy1959]

Looking at your previous post, you say you know your PMR pain, so it is likely that this is still a flare. I have had countless flares, the last one being over Xmas, and I often have had to go back up to 15 mgs to get it under control. In fact, I always flare whenever anything goes wrong and just going up a few mgs. Pred. never does it for me. While you are waiting for the MRI why not try an even higher dose? You can always come down again. I have had additional thigh pain , but this was only on one side and turned out to be OA in my hip,but it was not bilateral.

[Zhenya in reply to suzy1959]

Thank you Suzy. I am not sure what to do right now as Kate has advised not to go up further. I think I will try reducing to 7.5mg and see if thigh pain gets worse. Fingers crossed it won’t as you know how it is...we spend years reducing our daily dose of pred only to have to increase it.

[Soraya_PMR]

Have you tried analgesia? Does it have any effect?

[Zhenya in reply to Soraya_PMR]

Yes thank you I have taken paracetamol but it doesn’t seem to help.

[jinasc]

Try a Tens Machine - look it up

Take a look at Bowen Technique make sure it is the official site and read Tom Bowen Story.

[Zhenya in reply to jinasc]

Thank you I will take a look

[Polywotsit PMRGCAuk team member]

Zhenya is this post up twice? Pain does not necessarily indicate a flare. This is a common misconception.

[Zhenya in reply to Polywotsit]

Thank you Kate I did post about it a week or so ago.